Database: German Childhood Cancer Registry (DKKR) (Germany) - Revision history

Lucas: Update categories.

2025-12-14T11:57:42Z

Update categories.

← Older revision		Revision as of 11:57, 14 December 2025
Line 102:		Line 102:
	<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>		<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
	<span style="display:none">hasCancerType::C00-C97: All cancer types</span>		<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
			<span style="display:none">Esophageal</span>
			<span style="display:none">Gastric</span>
			<span style="display:none">Intestinal</span>
			<span style="display:none">Bowel</span>
			<span style="display:none">Colorectal</span>
			<span style="display:none">Appendix</span>
			<span style="display:none">Appendiceal</span>
			<span style="display:none">Duodenum</span>
			<span style="display:none">Jejunum</span>
			<span style="display:none">Ileum</span>
			<span style="display:none">Anal</span>
			<span style="display:none">Perianal</span>
			<span style="display:none">Hepatic</span>
			<span style="display:none">Biliary</span>
			<span style="display:none">Hepatobiliary</span>
			<span style="display:none">Subcutaneous</span>
			<span style="display:none">Extremity</span>
			<span style="display:none">Peripheral nerve</span>
			<span style="display:none">Axilla</span>
			<span style="display:none">Axillary</span>
			<span style="display:none">Mammary</span>
			<span style="display:none">Prostatic</span>
			<span style="display:none">Testicular</span>
			<span style="display:none">Penile</span>
			<span style="display:none">Ocular</span>
			<span style="display:none">Orbital</span>
			<span style="display:none">Retinal</span>
			<span style="display:none">Optic nerve</span>
			<span style="display:none">Meninges</span>
			<span style="display:none">Meningeal</span>
			<span style="display:none">Cerebral</span>
			<span style="display:none">Cerebellar</span>
			<span style="display:none">Brainstem</span>
			<span style="display:none">Lymphatic</span>
			<span style="display:none">Lymphoid</span>
			<span style="display:none">Lymphoma</span>
			<span style="display:none">Hematologic</span>
			<span style="display:none">Hematopoietic</span>
			<span style="display:none">Myeloma</span>
			<span style="display:none">Plasma cell</span>

Lucas: Update categories.

2025-12-10T18:59:04Z

Update categories.

@@ Line 88: / Line 88: @@
 <span style="display:none">dataStart::1980</span>
 <span style="display:none">dataEnd::onwards</span>
 <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
@@ Line 95: / Line 100: @@
 <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
 <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 <span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
 <span style="display:none">hasCancerType::C00-C97: All cancer types</span>

Lucas: Update categories.

2025-12-06T12:09:54Z

Update categories.

← Older revision		Revision as of 12:09, 6 December 2025
Line 102:		Line 102:
	<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>		<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
	<span style="display:none">hasCancerType::C00-C97: All cancer types</span>		<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
			<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
			<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
			<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
			<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
			<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
			<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
			<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
			<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
			<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
			<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
			<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
			<span style="display:none">hasCancerType::unknown</span>

Lucas: Update categories.

2025-12-06T11:17:24Z

Update categories.

← Older revision		Revision as of 11:17, 6 December 2025
Line 100:		Line 100:
	<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span>		<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span>
	<span style="display:none">isDatabase</span>		<span style="display:none">isDatabase</span>
			<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
			<span style="display:none">hasCancerType::C00-C97: All cancer types</span>

Lucas: Update categories.

2025-12-03T16:50:21Z

Update categories.

← Older revision		Revision as of 16:50, 3 December 2025
Line 99:		Line 99:
	<span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span>		<span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span>
	<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span>		<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span>
			<span style="display:none">isDatabase</span>

Larysse at 03:35, 3 December 2025

2025-12-03T03:35:26Z

← Older revision		Revision as of 03:35, 3 December 2025
Line 1:		Line 1:
	<span style="display:none">forresearchers</span>		<span style="display:none">forresearchers</span>
			<span style="display:none">germanycountry</span>
	Go back to [[Germany]] page		Go back to [[Germany]] page

Lucas: Update categories.

2025-12-02T13:28:42Z

Update categories.

← Older revision		Revision as of 13:28, 2 December 2025
Line 1:		Line 1:
	{{forresearchers}}		<span style="display:none">forresearchers</span>
	Go back to [[Germany]] page		Go back to [[Germany]] page

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	'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].		'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].

	{{Esophagus}}		<span style="display:none">Esophagus</span>
	{{Stomach}}		<span style="display:none">Stomach</span>
	{{Small intestine}}		<span style="display:none">Small intestine</span>
	{{Large intestine}}		<span style="display:none">Large intestine</span>
	{{Rectum}}		<span style="display:none">Rectum</span>
	{{Anus}}		<span style="display:none">Anus</span>
	{{Liver}}		<span style="display:none">Liver</span>
	{{Gallbladder}}		<span style="display:none">Gallbladder</span>
	{{Bile ducts}}		<span style="display:none">Bile ducts</span>
	{{Pancreas}}		<span style="display:none">Pancreas</span>
	{{Colon}}		<span style="display:none">Colon</span>
	{{Lung}}		<span style="display:none">Lung</span>
	{{Trachea}}		<span style="display:none">Trachea</span>
	{{Bronchi}}		<span style="display:none">Bronchi</span>
	{{Pleura}}		<span style="display:none">Pleura</span>
	{{Mediastinum}}		<span style="display:none">Mediastinum</span>
	{{Muscle}}		<span style="display:none">Muscle</span>
	{{Fat}}		<span style="display:none">Fat</span>
	{{Tendon}}		<span style="display:none">Tendon</span>
	{{Ligament}}		<span style="display:none">Ligament</span>
	{{Blood vessels}}		<span style="display:none">Blood vessels</span>
	{{Connective tissue}}		<span style="display:none">Connective tissue</span>
	{{Sarcoma}}		<span style="display:none">Sarcoma</span>
	{{Angiosarcoma}}		<span style="display:none">Angiosarcoma</span>
	{{Liposarcoma}}		<span style="display:none">Liposarcoma</span>
	{{Lobular}}		<span style="display:none">Lobular</span>
	{{Breast}}		<span style="display:none">Breast</span>
	{{Nipple}}		<span style="display:none">Nipple</span>
	{{Areola}}		<span style="display:none">Areola</span>
	{{Ductal}}		<span style="display:none">Ductal</span>
	{{Prostate}}		<span style="display:none">Prostate</span>
	{{Testicles}}		<span style="display:none">Testicles</span>
	{{Penis}}		<span style="display:none">Penis</span>
	{{Eye}}		<span style="display:none">Eye</span>
	{{Brain}}		<span style="display:none">Brain</span>
	{{Spinal cord}}		<span style="display:none">Spinal cord</span>
	{{Blood}}		<span style="display:none">Blood</span>
	{{Bone marrow}}		<span style="display:none">Bone marrow</span>
	{{Lymph nodes}}		<span style="display:none">Lymph nodes</span>
	{{Spleen}}		<span style="display:none">Spleen</span>
	{{Leukemia}}		<span style="display:none">Leukemia</span>
			<span style="display:none">databaseType::registry</span>
			<span style="display:none">dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz</span>
			<span style="display:none">databaseStructure::longitudinal</span>
			<span style="display:none">hasVariable::cancer incidence</span>
			<span style="display:none">hasVariable::cancer survival</span>
			<span style="display:none">hasVariable::number of deaths\|mortality</span>
			<span style="display:none">hasVariable::year</span>
			<span style="display:none">hasVariable::age</span>
			<span style="display:none">hasVariable::sex</span>
			<span style="display:none">hasVariable::diagnosis\|cancer type</span>
			<span style="display:none">availableVariable::cancer incidence</span>
			<span style="display:none">availableVariable::cancer survival</span>
			<span style="display:none">availableVariable::number of deaths\|mortality</span>
			<span style="display:none">availableVariable::year</span>
			<span style="display:none">availableVariable::age</span>
			<span style="display:none">availableVariable::sex</span>
			<span style="display:none">availableVariable::diagnosis\|cancer type</span>
			<span style="display:none">dataLevel::national level</span>
			<span style="display:none">dataStart::1980</span>
			<span style="display:none">dataEnd::onwards</span>
			<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
			<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
			<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
			<span style="display:none">hasCancerType::C50: Breast cancer</span>
			<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
			<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
			<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
			<span style="display:none">dataAvailability::partially publicly available</span>
			<span style="display:none">hasDownloadableData::PDF</span>
			<span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span>
			<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span>

Lara at 20:45, 11 September 2024

2024-09-11T20:45:35Z

← Older revision		Revision as of 20:45, 11 September 2024
Line 25:		Line 25:

	'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].		'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].

			{{Esophagus}}
			{{Stomach}}
			{{Small intestine}}
			{{Large intestine}}
			{{Rectum}}
			{{Anus}}
			{{Liver}}
			{{Gallbladder}}
			{{Bile ducts}}
			{{Pancreas}}
			{{Colon}}
			{{Lung}}
			{{Trachea}}
			{{Bronchi}}
			{{Pleura}}
			{{Mediastinum}}
			{{Muscle}}
			{{Fat}}
			{{Tendon}}
			{{Ligament}}
			{{Blood vessels}}
			{{Connective tissue}}
			{{Sarcoma}}
			{{Angiosarcoma}}
			{{Liposarcoma}}
			{{Lobular}}
			{{Breast}}
			{{Nipple}}
			{{Areola}}
			{{Ductal}}
			{{Prostate}}
			{{Testicles}}
			{{Penis}}
			{{Eye}}
			{{Brain}}
			{{Spinal cord}}
			{{Blood}}
			{{Bone marrow}}
			{{Lymph nodes}}
			{{Spleen}}
			{{Leukemia}}

Francine at 18:46, 21 June 2024

2024-06-21T18:46:52Z

← Older revision		Revision as of 18:46, 21 June 2024
Line 8:		Line 8:
	'''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]].		'''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]].

	'''Type of information:''' [[databaseStructure::longitudinal]]. A data dictionary was not found.		'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]], [[hasVariable::cancer survival]], and [[hasVariable::number of deaths\|mortality]] of children with cancer by [[hasVariable::year]], [[hasVariable::age]], [[hasVariable::sex]] and [[hasVariable::diagnosis\|cancer type]]. A data dictionary was not found.

	'''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], and [[availableVariable::number of deaths\|mortality]] of children with cancer by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::sex]] and [[availableVariable::diagnosis\|cancer type]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].		'''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], and [[availableVariable::number of deaths\|mortality]] of children with cancer by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::sex]] and [[availableVariable::diagnosis\|cancer type]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].

Francine at 13:35, 6 June 2024

2024-06-06T13:35:03Z

← Older revision		Revision as of 13:35, 6 June 2024
Line 22:		Line 22:
	'''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].		'''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more].

	'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access]]].		'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/arbeitsweise-des-dkkr.html Click here to learn more about the restricted data access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access]]].

	'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].		'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access].