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Type of database: registry.
Primary purpose: Assess the causes and impacts of cancer burden and the effectiveness of cancer screening programmes in the population.
Sponsor, manager or home institution: Cancer Society of Finland.
Type of information: longitudinal. sex; age; diagnosis; tumour staging; tumour histology; primary tumour localization; cancer survival; hospital location; region; screening; year.
Data Dictionary: Finnish Cancer Registry.
Click here to learn more.
Available type of information: cancer incidence, number of deaths, risk of cancer, sex, place of residence, type of cancer, year, age, cancer prevalence; cancer survival. Click here to learn more.
Source of Information: Health organizations provide information on every case or strong suspicion of cancer detected in Finland to the Cancer Registry of the National Institute for Health and Welfare, which is maintained by the Finnish Cancer Society.
Data level: patient level.
Available data level: regional level.
Number of Records: unknown.
Date range: 1953 onwards.
Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more. Full list of cancer types:
Cancer Areas of Interest: Finnish Cancer Registry.
Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLSX; CSV and PNG. Data requires a grant proposal to be accessed. Data has access costs. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::registry
dataOwner::Cancer Society of Finland
databaseStructure::longitudinal
hasVariable::sex
hasVariable::age
hasVariable::diagnosis
hasVariable::tumour staging
hasVariable::tumour histology
hasVariable::primary tumour localization
hasVariable::cancer survival
hasVariable::hospital location
hasVariable::region
hasVariable::screening
hasVariable::year
hasDataDictionary::Data Dictionary: Finnish Cancer Registry
availableVariable::cancer incidence
availableVariable::number of deaths
availableVariable::risk of cancer
availableVariable::sex
availableVariable::place of residence
availableVariable::diagnosis|type of cancer
availableVariable::year
availableVariable::age
availableVariable::cancer prevalence
availableVariable::cancer survival
dataLevel::patient level
availableDataLevel::regional level
numberRecords::unknown
dataStart::1953
dataEnd::onwards
dataAvailability::partially publicly available
hasDownloadableData::XLSX
hasDownloadableData::CSV
hasDownloadableData::PNG
hasGrantRequirement::Data requires a grant proposal to be accessed
hasDataAccessCosts::Data has access costs
hasDataAccessInstructions::[https://cancerregistry.fi/research/come-carry-research-us/ click here to access
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
