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Type of database: registry.
Primary purpose: Collects data and produces epidemiology research about childhood cancer.
Sponsor, manager or home institution: Sociedad Española de Hematología y Oncología Pediátricas (SEHOP) and Universitat de Valéncia (UV).
Type of information: longitudinal. cancer survival (3 and 5 years after diagnosis); cancer incidence; medical procedures - treatment coverage in percentage; region; sex; year. Click here to learn more.
Source of information: Reports from all Spanish pediatric oncologic and hematologic hospital unities. Click here to learn more.
Data level: regional level.
Number of Records: Covers more than 90% of national children cases. Between 1980-2021 there were 31.275 incidence cases registered.
Date range: Varies accordingly to selected indicators: survival (1980-2004), incidence (1983-2002), medical treatment coverage (1980-2012).
Cancer Areas of Interest: C15-C26: Digestive system cancers; C40-C41: Bone cancers;
C43-C44: Skin cancers/melanoma; C45-C49: Soft tissue cancer; C60-C63: Male genitalia cancer; C64-C68: Urinary system cancers; C69-C72: Eye and brain cancer; C81-C96: Cancers of the blood and immune system; C73-C75: Thyroid and other gland cancers; C76-C80: Cancers of unknown or unspecified areas. The list can be checked on pages XXXII - XXXV of this document click here to learn more.
Cancer Areas of Interest: Spanish Registry of Pediatric Tumours (RETI-SEHOP).
Data access: publicly available. Click here to access. Data can be downloaded in the PDF format.
Contact information: Click here to access.
Esophagus
Stomach
Small intestine
Large intestine
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Colon
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
databaseType::registry
dataOwner::Sociedad Española de Hematología y Oncología Pediátricas (SEHOP)
dataOwner::Universitat de Valéncia (UV)
databaseStructure::longitudinal
availableVariable::cancer survival
availableVariable::diagnosis
availableVariable::cancer incidence
availableVariable::medical procedures
availableVariable::region
availableVariable::sex
availableVariable::year
dataLevel::regional level
dataStart::1980
dataEnd::2012
dataAvailability::publicly available
hasDownloadableData::PDF
isDatabase
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
