Database: Echantillon généraliste de bénéficiaires (EGB) (France)

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Type of database: administrative/claims data.

Primary purpose: To serve as a manageable and representative subset of the larger SNIIRAM database, enabling more efficient preliminary research activities. Click here to access.

Sponsor, manager or home institution: Caisse Nationale de l'Assurance Maladie (CNAM). Click here to access.

Type of information: longitudinal. age; sex; place of residence; diagnosis; year; healthcare costs; medication use; type of medical activity; medical procedures; check-up examinations; length of stay; costs reimbursement.

Data Dictionary: Echantillon généraliste de bénéficiaires (EGB).

Click here to learn more. It is a 1/97th random permanent sample of SNIIRAM, so its variables are identical.

Source of Information: Includes data from 3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems. Click here to learn more.

Data level: patient level.

Number of Records: 780,000.

Date Range: 2004 onwards.

Cancer Areas of Interest C00-D48: All neoplasms. Click here to learn more.

Data access: not publicly available. Instructions to request data for restricted content: Click here to access. Click here to access. There is a facilitated process to obtain access to SNIIRAM's dashboards, aggregated data (or datamarts), and a general sample of beneficiaries (EGB) data from the database. It is described in the following document: Click here to access. Data requires a grant proposal to be accessed.

Contact information: Information. Click here to learn more.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::administrative/claims data dataOwner::Caisse Nationale de l'Assurance Maladie (CNAM) databaseStructure::longitudinal hasVariable::age hasVariable::sex hasVariable::place of residence hasVariable::diagnosis hasVariable::year hasVariable::healthcare costs hasVariable::medication use hasVariable::type of medical activity hasVariable::medical procedures hasVariable::check-up examinations hasVariable::length of stay hasVariable::costs reimbursement hasDataDictionary::Data Dictionary: Echantillon généraliste de bénéficiaires (EGB) dataLevel::patient level dataStart::2004 dataEnd::onwards dataAvailability::not publicly available hasDataAccessInstructions::[https://www.health-data-hub.fr/sites/default/files/2023-06/202306%20-%20Guide%20p%C3%A9dagogique%20sur%20la%20proc%C3%A9dure%20d%27acc%C3%A8s%20simplifi%C3%A9%20%C3%A0%20l%27ESND%20VF.pptx.pdf Click here to access hasGrantRequirement::Data requires a grant proposal to be accessed isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine