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Type of database: administrative/claims data.
Primary purpose: Merges anonymous information about reimbursements made by various health care plans to improve the study of the practice of health policies, furnish data for the definition of new policies, and account for health care expenditure. It also makes it easier to access medical activity data. Click here to learn more.
Sponsor, manager or home institution: Caisse Nationale de l'Assurance Maladie (CNAM). Click here to learn more.
Type of information: longitudinal. age; sex; place of residence; diagnosis; year; healthcare costs; medication use; type of medical activity; medical procedures; check-up examinations; length of stay; costs reimbursement.
Data Dictionary: SNIIRAM.
Click here to learn more.
Source of information: Includes data from 3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems. Click here to learn more.
Data level: patient level.
Number of Records: over 66 million (98.8% of the French population at 2017).
Date range: 2002 onwards. Click here to learn more.
Cancer areas of interest:C00-D48: All neoplasms. Click here to learn more.
Data access: not publicly available. Instructions to request data for restricted content: click here to learn more, click here to learn more. There is a facilitated process to obtain access to SNIIRAM's dashboards, aggregated data (or datamarts), and a general sample of beneficiaries (EGB) data from the database. It is described in the following document: Click here to access. Data requires a grant proposal to be accessed.
Contact information: Click here to learn more.
Mouth
Throat
Oropharynx
Nasopharynx
Hypopharynx
Larynx
Salivary glands
Lips
Tonsils
base of tongue
Voice box
Esophagus
Stomach
Small intestine
Large intestine
Colon
Rectum
Anus
Liver
Gallbladder
Bile ducts
Pancreas
Lung
Trachea
Bronchi
Pleura
Mediastinum
Bone
Cartilage
Osteosarcoma
Ewings sarcoma
Skin
Melanoma
Scalp
Lips
Hands
Feet
Muscle
Fat
Tendon
Ligament
Blood vessels
Connective tissue
Sarcoma
Angiosarcoma
Liposarcoma
Lobular
Breast
Nipple
Areola
Ductal
Vulva
Vagina
Cervix
Uterus
Ovary
Fallopian tubes
Endometrium
Prostate
Testicles
Penis
Kidney
Ureter
Bladder
Urethra
Eye
Brain
Spinal cord
Thyroid gland
Parathyroid
Adrenal glands
Pituitary gland
Pancreas
Thymus gland
Peritoneum
Pericardium
Retroperitoneum
Mesothelium
Blood
Bone marrow
Lymph nodes
Spleen
Leukemia
databaseType::administrative/claims data
dataOwner::Caisse Nationale de l'Assurance Maladie (CNAM)
databaseStructure::longitudinal
hasVariable::age
hasVariable::sex
hasVariable::place of residence
hasVariable::diagnosis
hasVariable::year
hasVariable::healthcare costs
hasVariable::medication use
hasVariable::type of medical activity
hasVariable::medical procedures
hasVariable::check-up examinations
hasVariable::length of stay
hasVariable::costs reimbursement
hasDataDictionary::Data Dictionary: SNIIRAM
dataLevel::patient level
dataStart::2002
dataEnd::onwards
dataAvailability::not publicly available
hasDataAccessInstructions::[https://www.health-data-hub.fr/sites/default/files/2023-06/202306%20-%20Guide%20p%C3%A9dagogique%20sur%20la%20proc%C3%A9dure%20d%27acc%C3%A8s%20simplifi%C3%A9%20%C3%A0%20l%27ESND%20VF.pptx.pdf click here to learn more
hasGrantRequirement::Data requires a grant proposal to be accessed
isDatabase
hasCancerType::C00-D48: All neoplasms
hasCancerType::C00-C97: All cancer types
hasCancerType::C00-C14: Mouth/throat cancers
hasCancerType::C15-C26: Digestive system cancers
hasCancerType::C30-C39: Lung/chest cancers
hasCancerType::C40-C41: Bone cancers
hasCancerType::C43-C44: Skin cancers/melanoma
hasCancerType::C45-C49: Soft tissue cancer
hasCancerType::C50: Breast cancer
hasCancerType::C51-C58: Female genitalia cancers
hasCancerType::C60-C63: Male genitalia cancer
hasCancerType::C64-C68: Urinary system cancers
hasCancerType::C69-C72: Eye and brain cancer
hasCancerType::C73-C75: Thyroid and other gland cancers
hasCancerType::C76-C80: Cancers of unknown or unspecified areas
hasCancerType::C81-C96: Cancers of the blood and immune system
hasCancerType::C97-C97: Cancers in multiple locations from the start
hasCancerType::D00-D09: Early-stage cancers not yet spread
hasCancerType::D10-D36: Benign tumour
hasCancerType::D37-D48: Growths of uncertain nature
hasCancerType::unknown
Head
Neck
Oral
Oral cavity
Pharynx
Pharyngeal
Tongue
Lingual
Nasal cavity
Nasal
Sinonasal
Sinus
Sinuses
Paranasal sinuses
Ear
Mandible
Maxilla
Jaw
Esophageal
Gastric
Intestinal
Bowel
Colorectal
Appendix
Appendiceal
Duodenum
Jejunum
Ileum
Anal
Perianal
Hepatic
Biliary
Hepatobiliary
Pulmonary
Thorax
Thoracic
Chest
Mediastinal
Pleural
Cutaneous
Dermal
Epidermal
Subcutaneous
Skeletal
Osseous
Chondral
Extremity
Axilla
Axillary
Mammary
Cervical
Uterine
Endometrial
Ovarian
Tubal
Fallopian
Vaginal
Vulvar
Adnexal
Renal
Urothelial
Ureteral
Urethral
Prostatic
Testicular
Penile
Ocular
Orbital
Retinal
Optic nerve
Meninges
Meningeal
Cerebral
Cerebellar
Brainstem
Lymphatic
Lymphoid
Lymphoma
Hematologic
Hematopoietic
Myeloma
Plasma cell
Diaphragm
Peripheral nerve
Heart
Cardiac
Endocrine
