Editing Database: National Registry of Childhood Cancer (RNCCR) (Romania)

{{#subobject:National Registry of Childhood Cancer (RNCCR)
 |dct:title=National Registry of Childhood Cancer (RNCCR)
 |datatype=registry
}}

[https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/]

'''Sponsor, manager or home institution''': Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology.

'''Primary purpose:''' To compile and maintain a comprehensive database of cancer cases in children and young people in Romania.

'''Type of information''': The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext]. Data refers to people aged between 0 and 14 years. The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological/cytological examination: Behavior; Morphological code; Degree; Cod ICC3 primary; Cod ICC3 category; Cod ICC3 subcategory. Toronto staging: diagnostic class; level 1; level 2. TNM staging for solid tumors not included in Toronto staging: Stadium type; TNM classification. Treatment: Stadium type; TNM classification; Surgery date; Chemotherapy; Radiotherapy; Hormone therapy; Immunotherapy; Other treatments; Transplant; Diagnostic class; Therapeutic protocol; Another therapeutic protocol; Treatment abroad; Type of treatment abroad; Tara; end of therapy date; Response to treatment; Refusal; Reason for refusal; Abandon; Dropout reason). Tracking: Aate of last contact; Status; The last doctor; Death; The main cause; Secondary cause. 

'''Source of information''': Reports from pediatric oncologic centers.

'''Data level''': Patient-level.

'''Date range''': 2009 onwards.

'''Data access''': Partially publicly available [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf]. Instructions to request data for restricted content [http://oncped.iocn.ro/].

'''Cancer areas of interest''': Unknown.

'''Contact information''': Information [https://srohp.ro/contact/].