Editing Database: North-West Regional Cancer Registry (Romania)

{{#subobject:North-West Regional Cancer Registry
 |dct:title=North-West Regional Cancer Registry
 |datatype=registry
}}

[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html]

'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN).

'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.

'''Type of information:''' The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death.

'''Available type of information:''' Number of new cases of cancer; Region; Type of cancer; Year; Sex; Annual incidence by 100.000 inhabitants;
Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; Age group; Number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).

'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.

'''Data level:''' Patient-level.

'''Available data level:''' Regional-level.

'''Number of Records:''' Unknown.

'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.

'''Cancer Areas of Interest:''' Cancer areas of interest [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc]. Some specific cancer locations are excluded [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc].

'''Data access:''' Partially publicly available [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html]. Instructions to request data for restricted content [http://nwcanportal.iocn.ro/OncReg/].

'''Contact information:''' Information [https://www.old.iocn.ro/en].