Editing Data Dictionary: Pancreatic cancer - DPCA

Go back to [[Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)]] page.

You can download the complete data dictionary. [[https://support.mrdm.com/nl/downloads/documenten/ Click here to learn more].

==== PATIENT ====

{| class="wikitable"
! CATEGORY !! LABEL / DESCRIPTION !! VARIABLE NAME !! TYPE !! LENGTH !! FORMAT !! VARIABLE REQUIRED !! OPTION CHOICE REQUIRED !! OPTIONSET !! DEFAULT VALUE !! VISIBLE !! CONDITION !! CALCULATION !! HELP TEXT
|-
|  || SECTION || Identification ||  ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
| Patient identification || Health institution || id || integer || 4 ||  || Yes || Yes || 1002 || organisationId() || read-only ||  ||  || 
|-
| Patient identification || Unique Patient Number || upn || text (encrypted in Survey) || 15 ||  || Yes ||  ||  ||  ||  ||  ||  || The hospital patient number (UPN) as registered in the electronic patient record (EPR) of the respective hospital.
|-
| Patient identification || Citizen Service Number country || land || text || 10 ||  || Yes || Yes || countries ||  ||  ||  ||  || Choose here the country where the patient's identification number was issued. If nationality is other than Dutch, German, Belgian, or Swedish, choose 'Unknown'.
|-
| Patient identification || Citizen Service Number || idcode || text (encrypted in Survey) || 15 ||  || Yes ||  ||  ||  ||  ||  ||  || "Netherlands: Citizen Service Number: must consist of 9 digits and meet the eleven-test.
|-
| 
|-
| Germany: Ausweisnummer: must comply with the rules applicable to a German ausweisnummer.
|-
| 
|-
| Belgium: National Register Number: consists of 11 digits, composed of the birth date (year, month, day), series number (3 digits), and control number (2 digits).
|-
| 
|-
| Sweden: Personal Number: consists of 10 digits, composed of the birth date (year, month, day), a dash or plus sign, a series number (3 digits), and a control number (1 digit).
|-
| 
|-
| Other or Unknown: if Other or Unknown, enter the hospital number followed by the patient number (UPN) as registered in the electronic patient record (EPR) of the respective hospital."
|-
| Name data || Prefixes || tussen || text (encrypted in Survey) || 8 ||  ||  ||  ||  ||  ||  ||  ||  || Prefixes belonging to the last name (birth name) as stated on the patient's identity documents.
|-
| Name data || Last Name || naam || text (encrypted in Survey) || 40 ||  || Yes ||  ||  ||  ||  ||  ||  || Last name (birth name) as stated on the patient's identity documents.
|-
| Personal data || Birth Date || gebdat || date || 10 || yyyy-mm-dd || Yes ||  ||  ||  ||  ||  ||  || Birth date of the patient displayed in the Dutch date format. Example: 22-04-1999.
|-
| Personal data || Gender || geslacht || integer || 1 ||  || Yes || Yes || 500 ||  ||  ||  ||  || Gender as listed in the municipal basic administration (GBA).
|-
| Personal data || Country (Residence Address) || land-woon || integer || 4 ||  || Yes || Yes || 34 || 6030 ||  ||  ||  || 
|-
| Personal data || Postal Code || pcode || text (encrypted in Survey) || 7 ||  || Yes ||  ||  ||  ||  || [land-woon]==6030 ||  || Postal code at the time of first contact. Only fill in for a Dutch residential address! Preferably use the postal code from the Postal Code Table (OID: 2.16.840.1.113883.2.4.4.15). Dutch postal codes consist of 4 digits and two capital letters. Example: 1234AB.
|-
| Personal data || Date of Death (if applicable) || datovl || date || 10 || yyyy-mm-dd ||  ||  ||  ||  ||  ||  ||  || The date on which the patient died, in the Dutch date format. Example: 22-04-1999.
|-
|  || SECTION || Comorbidities ||  ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
| Comorbidities || Click yes, to carry over previously registered comorbidities into the record you are about to add. || comcopy || integer || 1 ||  ||  || Yes || 524 ||  ||  || plugin('IknlCounter','comorbidities') >= 1 ||  || 
|-
|  || "Comorbidities
|-
| 
|-
| Click on add new record when:
|-
| - You are registering the patient's comorbidity status for the first time;
|-
| - The patient's comorbidities have changed;
|-
| - The comorbidities were previously registered (> 1 year) and have not changed (in this case, you can use the above button to carry over previously registered values).
|-
| - The patient is being registered due to a suspicion of OR proven pancreatic/periampullary tumor or premalignant cyst OR 
|-
| - The patient is being registered due to chronic pancreatitis requiring pancreatic head or tail resection
|-
| 
|-
| Click on the existing record when:
|-
| - You want to correct a mistakenly entered value.
|-
| 
|-
| Do not add a record:
|-
| - If the patient was only discussed in the MDT" || comorbidities || dataset ||  ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
|  || SECTION || Procedures ||  ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
|  || "Procedures. 
|-
| It is possible to register multiple procedures per patient if applicable. If you want to register the first procedure or a new procedure for this patient, click on “add”. If you want to add information to a procedure that was already created for this patient, click on the horizontal bar. If you want to create a new patient, click back to ""home"" at the top left." || procedure || dataset ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
|  || SECTION || COVID-19 module ||  ||  ||  ||  ||  ||  ||  ||  || false ||  || 
|-
|  || "This generic COVID-19 module has been added to the DICA registrations 2020 due to the impact the corona crisis has had on the quality of care, as measured in the DICA registrations. With the data in this module, your indicator outcomes for this period can be better interpreted and possibly adjusted for the effects of SARS-CoV-2 infections of your patients and the measures that had to be taken in your hospital during the pandemic. 
|-
| This module is aligned with previous data collections of COVID-19 patients in hospitals by the NICE Foundation. By requesting an export of your own data from NICE and supplying it to MRDM, this data can be reused. A large part of the generic module can therefore be pre-filled. Contact the MRDM service desk for more information about this supply (servicedesk@mrdm.nl).
|-
| 
|-
| If you are participating in the COVIDSURG II snapshot study for this registration, first fill in the generic module here and then you can complete the research module by answering the last question: 'Are you participating in the COVIDSURG-2 Snapshot?' with 'Yes' and the questions will then become visible. For information or participation, please contact covidsurg@dica.nl." || covid19 || dataset ||  ||  ||  ||  ||  ||  || not visible due to section condition || FALSE ||  || 
|-
|  || SECTION || Pathology variables from PALGA ||  ||  ||  ||  ||  ||  ||  ||  ||  ||  || 
|-
|  || As part of the PALGA link, pathology variables from the PALGA Foundation are automatically and structuredly included in the registration. For this purpose, the PALGA pathology module has been added to the registration for which no additional data needs to be supplied || palga-pathology || dataset ||  ||  ||  ||  ||  ||  || read-only
|}