Editing Database: German Childhood Cancer Registry (DKKR) (Germany)

{{#subobject:German Childhood Cancer Registry (DKKR)
 |dct:title=German Childhood Cancer Registry (DKKR)
 |datatype=registry
}}

'''Sponsor, manager or home institution:''' Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.

'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer.

'''Type of information:''' Incidence of children with cancer by age and cancer type.

'''Source of Information:''' Information about GPOH study patients is sent to the DKKR [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131].

'''Data level:''' National level.

'''Number of Records:''' Covers more than 95% of the population.

'''Date Range:''' 1980 onwards.

'''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.

'''Open data access:''' Partially publicly available [https://www.kinderkrebsregister.de/dkkr/ergebnisse/auswertungen-im-detail.html], [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html].  Instructions to request data for restricted content [https://wims.imbei.uni-mainz.de/kontakt.jsf].

'''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html].