Editing Patient Pathways: Myeloma (section)

== Difficulties during palliative care ==

The difficulties faced by patients with myeloma in Croatia and their families during palliative care are multifaceted and encompass several key aspects:

'''Limited access to palliative care'''

There is a significant gap between the need for palliative care and available resources. Insufficient capacity of specialized palliative care providers.

'''Psychological challenges'''

The psychosocial and emotional burden of patients and their families is often significant. Family caregivers often face high levels of stress and emotional distress. Cultural and ethical issues: reluctance to discuss end-of-life issues can hinder the provision of effective palliative care. Ethical challenges in decision making and care provision can also create additional stress for families and healthcare professionals.

'''Financial challenges'''

The costs of care can be a significant burden for families, especially given the long-term nature of palliative care. Economic pressures can further exacerbate the stress experienced by patients and their families, impacting their overall well-being and quality of life. Challenges with care coordination: effective palliative care requires coordination among different healthcare providers. In Croatia, there are challenges related to care coordination between hospitals, palliative care units, and home care services. Addressing these challenges requires a comprehensive approach that includes improving access to palliative care, providing emotional and psychological support to families, addressing financial burdens, and ensuring effective care coordination. In addition, public education and awareness raising about the benefits of palliative care can help reduce cultural and ethical barriers.

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