Editing Patient Pathways: Myeloma (section)

= Available support content for cancer patients =

The Croatian translation of several Patient Guides was carried out by the Association of Women with Cancer EVERYTHING for HER based on the approval of the European Society for Medical Oncology (ESMO).

'''ESMO Guide for Patients Living with Cancer'''

This Guide for Patients Living with Cancer was developed by the European Society for Medical Oncology (ESMO) and the European Cancer Patient Coalition (ECPC) in collaboration with the International Psycho-Oncology Society (IPOS) to help you and others like you during this important time in your life. In this Guide, you can find information about support in coping with your new reality, life after primary treatment, preventive care, and long-term follow-up. It will also help you keep your personal health record, i.e. plan your healthcare throughout your life with cancer.

The guide was translated by Dr. Sc. Dea Ajduković, and the translation was reviewed by Assoc. Dr. Sc. Natalija Dedić Plavetić, MD, specialist in internal medicine, oncology, and on behalf of the patient, psychologist Ljiljana Vukota from the EVERYTHING for HER association.

'''ESMO Personalized Medicine in Oncology: A Patient Guide'''

This Patient Guide was initiated by the ESMO Working Group on Personalized Medicine to help patients, their families and friends to better understand the factors that may influence a personalized approach to cancer prevention, diagnosis and treatment.

This brochure presents the current knowledge about the basic principles of personalized medicine, illustrating its application to several types of tumors. Personalized medicine is the future of cancer treatment, and in order for it to become a reality in the near future and enable better cancer therapy, the role of patients is crucial.

In this expanding and developing approach, ESMO is committed to educating patients so they can better understand its key principles and their own contribution to advancing therapy.

The Croatian translation of the Guide was made possible by the Association of Women with Cancer EVERYTHING for HER, based on the approval of the European Society for Medical Oncology (ESMO). The text of the Croatian translation was reviewed by: Prof. Ljiljana Šerman, Prof. Floriana Bulić-Jakuš and Mrs. Ljiljana Vukota.

'''ESMO Side Effects Associated with Immunotherapy and Their Management: A Patient Guide'''

This guide is designed to help you and your family, friends and carers to better understand the side effects associated with immunotherapy and their management. It contains information on the most common toxicities associated with modern immunotherapies (known as “immune checkpoint inhibitors”), how your oncology team can manage those symptoms, and some things you can do yourself to help reduce their impact. The medical information described in this document is based on ESMO Clinical Practice Guidelines for the management of immunotherapy toxicities, which are designed to support clinicians in the diagnosis, treatment, and follow-up of these events. All ESMO Clinical Practice Guidelines are developed and reviewed by leading experts using evidence from the latest clinical trials, scientific research, and expert opinion.

The Croatian translation of the guide was reviewed by: representative of the Croatian Society for Internal Oncology: Assoc. Dr. Sc. Natalija Dedić Plavetić, representative of the Croatian Thoracic Society: Prof. Dr. Sc. Marko Jakopović, representative of the Association of Women with Cancer EVERYTHING for HER: Ljiljana Vukota.

'''ESMO Cancer Treatment During the Covid-19 Pandemic: A Patient Guide'''

The guide provides information about the COVID-19 disease and its symptoms, as well as the steps you can take to reduce your risk of infection. Also, the guide provides information about the impact of the COVID-19 pandemic on various aspects of cancer treatment, including possible changes to your treatment plan and doctor visits that may be needed to protect yourself from infection.

The Croatian translation was reviewed by: Prim. Dr. Sc. Paula Podolski, President of the Croatian Senological Society, Assoc. Dr. Sc. Borislav Belev, internist oncologist, National Representative of the Croatian Society for Internal Oncology at ESMO and Ljiljana Vukota, representative of the EVERYTHING for HER association.

'''ESPEN practical guideline: Clinical Nutrition in cancer'''

Malnutrition is common and relevant in cancer patients and results from the presence of the tumor and from anti-cancer medical and surgical treatments.

Malnutrition negatively impacts quality of life and treatment toxicity, and it is estimated that up to 10-20% of cancer patients die from the consequences of malnutrition rather than from the tumor itself. Therefore, nutrition plays a key role in the context of multi-modal cancer treatment.

Strong evidence shows that nutritional issues should be taken into account from the time of cancer diagnosis, within the diagnostic and therapeutic pathway, and should run in parallel to anti-neoplastic treatments. However, worldwide, cancer-related malnutrition is still largely unrecognized, under-diagnosed and undertreated in clinical practice.

These evidence-based guidelines were developed to translate the current best evidence and expert opinion into recommendations for multidisciplinary teams in charge of the identification, prevention and treatment of reversible elements of malnutrition in adult cancer patients.

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