Editing Data Dictionary - National Registry of Childhood Cancer (RNCCR)

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Go back to [[Database: National Registry of Childhood Cancer (RNCCR) (Romania)]] page

Source: [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf Click here to learn more].


'''Overview of the database'''

{| class="wikitable"
! Variable
! Description
|-
| Personal identification
| Preferably a unique ID number, otherwise full name
|-
| Date of birth (dd/mm/yyyy)
| 
|-
| Sex at birth
| Male/female/undetermined
|-
| Postal code, zip code
| Needed for identification and for geographical based studies
|-
| Hospital(s) of diagnosis
| 
|-
| Incidence date
| According to ENCR recommendations
|-
| Basis of the diagnosis
| According to ENCR recommendations
|-
| Topography (primary site)
| According to the latest version of ICD-O*
|-
| Laterality (left, right, bilateral)
| Laterality should be recorded for all solid cancers in paired organs (salivary gland, nasal cavity, paranasal sinuses, lung, pleura, breast, ovary/fallopian tube, testis, kidney, renal pelvis, ureter, eye and adrenal gland). Bilateral cases in paired organs should be registered separately, except for bilateral cancers of the ovary/fallopian tube, nephroblastoma and neuroblastoma. Laterality is optional for sarcomas and skin cancers of the extremities.
|-
| Morphology, including behaviour code
| According to the latest version of ICD-O*
|-
| Grade (differentiation grade, WHO grade, Gleason grade group)
| According to the latest version of ICD-O* and/or WHO
|-
| Immunophenotype (T-cell, B-cell, NK-cell)
| For lymphoid haematological malignancies
|-
| Stage
| See table 2 for the recommended stage variables
|-
| Prognostic (tumour) factors
| Such as ER/PR and Her2 (breast cancer), Breslow thickness (melanoma), HPV-status (oral cavity, cervix, vulva), cytogenetic aberrations (CNS, sarcoma, haematological malignancies), etc. According to ENCR recommendations
|-
| Primary treatment
| According to ENCR recommendations
|-
| Hospital(s) of treatment
| 
|-
| Date and site(s) of recurrence/progression
| According to ENCR recommendations
|-
| Vital status
| Needed for the study of survival
|-
| Date of death or date of last follow-up (dd/mm/yyyy)
| 
|-
| Cause of death
| According to the standard of the cause of death registration in the registration area
|}

'''Type of cancer'''

{| class="wikitable"
! Type of cancer
! Recommended stage variables
! Remarks
|-
| Solid cancers in adults
| TNM classification of malignant tumours (UICC)
| This includes (y)cTNM and (y)pTNM (if applicable). Essential TNM may be an alternative for poorly resourced registries.
|-
| Solid cancers in adults for which TNM is not applicable (excluding tumours of the central nervous system)
| Extent of disease
| Extent of disease should be classified as follows: Localized disease, Locally advanced disease (invasion of neighbouring organs), Regional disease (spread of the tumour to regional lymph nodes), Metastatic disease.
|-
| Paediatric tumours
| Tier 2 of the Toronto consensus principles and guidelines
| Tier 1 may be an alternative for poorly resourced registries.
|-
| Lymphoma
| Lugano classification
| The Lugano classification is an updated version of the Ann Arbor classification.
|-
| Haematological malignancies
| International prognostic scoring systems
| The scoring system is different for each haematological malignancy. For example, the IPI-score for diffuse large B-cell lymphoma requires information on age, Ann Arbor stage, performance status, serum LDH and extranodal involvement.
|}