Editing Data Dictionary RNC - Luxembourg

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Source: [https://www.rnc.lu/Portals/5/Documents/RGD_RNC.pdf Click here to learn more]

====Information provided by hospital cancer registries (RHC)====
'''Table 1''': Patient identification.
{| class="wikitable"
| National pseudo-anonymization RNC number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country of birth
|-
| Hospital file number
|-
| RHC registration number
|-
| Country of the patient 
|-
| Postal code of the patient
|-
| Municipality of the patient
|-
| Referring primary care physician
|}

'''Table 2''': Patient status.
{| class="wikitable"
| Vital status
|-
| Date of last contact
|-
| Date of death
|-
| Cause of death
|-
| Autopsy
|}

'''Table 3''': Clinical description of the disease and staging.
{| class="wikitable"
| Order number of the tumour
|-
| RHC registration number of the tumour
|-
| Date of registration of the tumour
|-
| Date of tumour diagnosis
|-
| Basis of diagnosis
|-
| ICD code (topography and morphology)
|-
| Laterality
|-
| Multifocal tumour
|-
| Country of residence at the time of diagnosis
|-
| Postal code of residence at the time of diagnosis
|-
| Locality of residence at the time of diagnosis
|-
| Circumstances of tumour discovery
|-
| Family history
|-
| Personal history
|-
| Comorbidities
|-
| Performance score (WHO/ECOG)
|-
| Risk factors
|-
| Results of clinical examination (Initial assessment)
|-
| Types of performed tests (Initial assessment)
|-
| Tests dates (Initial assessment)
|-
| Tests results (Initial assessment)
|-
| Types of performed tests (staging evaluation)
|-
| Tests dates (staging evaluation)
|-
| Tests results (staging evaluation)
|-
| Tests date of serum tumour markers
|-
| Result of serum tumour markers
|-
| Laboratory of serum tumour markers
|-
| Clinical tumour size
|-
| Clinical lymph node involvement
|-
| Clinical TNM
|-
| Clinical metastases at the time of diagnosis
|}

'''Table 4''': Histological characteristics of the tumour.
{| class="wikitable"
| Cytology procedure
|-
| Date of cytology procedure
|-
| Result of cytology procedure
|-
| Laboratory of cytology procedure
|-
| Biopsy procedure
|-
| Date of biopsy procedure
|-
| Result of biopsy procedure
|-
| Laboratory of biopsy procedure
|-
| Vascular invasion
|-
| Lymphatic invasion
|-
| Perineural sheath invasion
|-
| Vascular emboli
|-
| Capsular rupture
|-
| Percentage of tumour invasion
|-
| Distance from resection margins
|-
| Specific scores by location
|-
| Conducted analises of tissue tumour markers and molecular alterations
|-
| Date of analises of tissue tumour markers and molecular alterations
|-
| Result of analises of tissue tumour markers and molecular alterations
|-
| Laboratory of analises of tissue tumour markers and molecular alterations
|-
| Histological size
|-
| Pathological lymph node involvement
|-
| Number of examined and positive lymph nodes
|-
| Tumour residue
|-
| Pathological TNM,
|-
| Specific grade by location
|-
| Laboratory
|-
| Pathological Metastases at the time of diagnosis
|-
| Grouping by extension stages.
|}

'''Table 5''': Revised diagnosis of the tumour.
{| class="wikitable"
| Revised incidence date 
|-
| Revised basis of diagnosis
|-
| Revised ICD code (topography and morphology)
|-
| Laterality
|-
| Laboratory
|}

'''Table 6''': Information on therapeutic management.
{| class="wikitable"
| Initial treatment performed
|-
| Inclusion in a therapeutic trial
|-
| Type of surgical intervention
|-
| Date of surgical intervention
|-
| Post-operative complications
|-
| Procedure for excision of regional lymph nodes
|-
| Surgeon's RNC identification number
|-
| Hospital facility
|-
| Date of discharge from hospital
|-
| Type of chemotherapy and drug molecules
|-
| Chemotherapy start date
|-
| Chemotherapy referring physician
|-
| Chemotherapy hospital facility.
|-
| Type of hormone therapy and drug molecules
|-
| Hormone terapy start date
|-
| Hormone terapy referring physician
|-
| Hormone therapy hospital facility
|-
| Type of radiotherapy
|-
| Radiotherapy irradiated fields
|-
| Radiotherapy start date
|-
| Radiotherapy total dose
|-
| Radiotherapy number of sessions
|-
| Radiotherapy referring physician
|-
| Radiotherapy center
|-
| Type of targeted therapy and drug molecules
|-
| Targeted Therapy start date
|-
| Targeted Therapy referring physician
|-
| Targeted Therapy hospital facility
|-
| Other Treatments
|-
| Date of genetic consultation
|-
| Location of genetic consultation.
|-
| Date of Multidisciplinary Consultation Meetings (RCP) 
|-
| Location of RCP 
|-
| Title of the RCP 
|-
| RNC identification number of RCP attending physicians 
|-
| Nature of RCP proposal 
|-
| Proposed therapeutic protocol
|}

'''Table 7''': Tumour follow-up.
{| class="wikitable"
| Location
|-
| Date of first recurrence
|-
| Basis of diagnosis
|-
| Location of first distant metastasis
|-
| Date of first distant metastasis
|}

====Information provided by the National Breast Cancer Screening Program====

'''Table 1''': National RNC pseudo-anonymization number of the woman.
{| class="wikitable"
| Date of birth)
|-
| Country
|-
| Postal code 
|-
| Locality (town/city)
|-
| Dates of Invitations to the Mammography Program
|-
| Dates of Participation in the Mammography Program
|-
| Dates of examinations conducted as part of the Mammography Program
|-
| Types of examinations conducted as part of the Mammography Program
|-
| Results of examinations conducted as part of the Mammography Program
|}

====Information provided by the National Health Fund (CNS)====

'''Table 1''': Data to be transmitted to RNC per patient (Databases of patients treated abroad).
{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country
|-
| Postal code 
|-
| Locality (town/city)
|-
| Name and specialty of the physician who requested services abroad
|-
| Data on the pathology
|-
| Types of services
|-
| Dates of services
|-
| Locations of services
|}

'''Table 2''': Data to be transmitted to RNC per hospital stay for cancer.
{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country
|-
| Postal code 
|-
| Locality (town/city) 
|-
| ICD-10 Codes for the discharge diagnosis
|-
| Name of the hospital facility related to the considered hospital stay
|-
| Admission date
|-
| Discharge date
|-
| Mode of hospital discharge.
|}

==== Information provided by the Joint European Communities Health Insurance Scheme (RCAM) ====

'''Table 1''': Data to be transmitted to RNC per patient.
{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country
|-
| Postal code 
|-
| Locality (town/city) 
|-
| Name and specialty of the physician who requested services abroad
|-
| Data on the pathology
|-
| Types of services
|-
| Dates of services
|-
| Locations of services
|}

'''Table 2''': Data to be transmitted to RNC per hospital stay for cancer.
{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country
|-
| Postal code 
|-
| Locality (town/city) 
|-
| ICD-10 Codes for the discharge diagnosis
|-
| Name of the hospital facility related to the considered hospital stay
|-
| Admission date
|-
| Discharge date
|-
| Mode of hospital discharge
|}

====Information provided by the Directorate of Health (death certificates) ====

'''Table 1''': Data to be transmitted to RNC per deceased individual.
{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country (at the time of death)
|-
| Postal code (at the time of death)
|-
| Locality (at the time of death)
|-
| Date of death
|-
| Place of death
|-
| Primary cause of death (1 ICD-10 code)
|-
| Immediate diseases (up to 3 possible ICD-10 codes)
|-
| Concurrent diseases (up to 2 possible ICD-10 codes).
|}

==== Information provided by the Civil status register ====
'''Table 1''': Data to be transmitted to RNC per deceased individual.

{| class="wikitable"
| National RNC Pseudo-anonymization Number of the patient
|-
| Date of birth
|-
| Gender
|-
| Country (at the time of death)
|-
| Postal code (at the time of death)
|-
| Locality (at the time of death)
|-
| Date of death
|-
| Place of death
|}

====Information provided by the private medical analysis laboratories ====

'''Table 1''': Examinations reports sent by the laboratories to RNC.
{| class="wikitable"
| Analysis of Tumour Markers
|-
| Analysis of Serum Tumour Markers
|-
| Analysis of Tissue Tumour Markers
|-
| Analysis of Molecular Alterations with Predictive Value for Response to Chemotherapy or Targeted Therapy
|-
| Cytology performed in cases of severe dysplasia and malignant tumours
|}