Editing Data dictionary: Liver and bile ducts - DHBA

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This is a summary of the variables available in the database. You can download the complete data dictionary. [https://dica.nl/data-aanvragen/ Click here to learn more].

'''Table 1:''' Patient Identification Information
{| class="wikitable"
! Variables
|-
| Health Facility
|-
| Unique Patient Number
|-
| Date of Birth
|-
| Gender
|-
| Date of Death (if applicable)
|}

'''Table 2:''' Comorbidities and Previous Conditions
{| class="wikitable"
! Variables
|-
| Date of Comorbidities
|-
| Myocardial Infarction
|-
| Congestive Heart Failure
|-
| Chronic Pulmonary Disease
|-
| Peripheral Vascular Disease/Aortic Aneurysm
|-
| Cerebrovascular Disease (e.g., Stroke/TIA)
|-
| Dementia
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| Para-/Hemiplegia
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| Connective Tissue Disease (e.g., Rheumatic Diseases)
|-
| Gastrointestinal Ulcer Disease
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| Liver Disease
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| Liver Cirrhosis
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| Symptomatic Gallstone Disease
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| Primary Sclerosing Cholangitis
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| Diabetes Mellitus
|-
| Kidney Disease
|-
| HIV/AIDS
|-
| Malignancy (excluding PCC or BCC of the skin)
|}

'''Table 3:''' Surgical and Interventional Procedures
{| class="wikitable"
! Variables
|-
| Date of Comorbidities
|-
| Previous Liver Resection/Ablation for this Condition?
|-
| Length in cm
|-
| Weight on the Day of Surgery (in kg)
|-
| Date of Recurrence Section Creation
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| Is there also a recurrence elsewhere besides the liver?
|-
| Date of Recurrence Diagnosis
|-
| Is this recurrence a locoregional recurrence of the previous ablation or resection?
|-
| Date of the Previous Liver Resection/Ablation of the Tumour which the Current Tumour is a Recurrence of (local or intrahepatic elsewhere)
|-
| Recurrence Treatment
|-
| CT Scan?
|-
| MRI Scan of Liver?
|-
| PET Scan?
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| CT Volumetry?
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| Hepatobiliary Scintigraphy?
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| Date of Last Imaging Regarding the Liver Prior to Liver Resection/Ablation
|-
| CEA Value in Blood? (ng/mL)
|-
| CA 19-9 Value in Blood? (U/mL)
|-
| Alpha Fetoprotein (AFP) Value, Unit μg/L
|-
| Total Bilirubin Value? (µmol/L)
|-
| Location of Tumour in Bile Ducts or Gallbladder
|-
| Clinical T Stage of Cholangiocarcinoma on Last Preoperative Imaging
|-
| Clinical N Stage of Cholangiocarcinoma on Last Preoperative Imaging
|-
| Clinical M Stage of Cholangiocarcinoma on Last Preoperative Imaging
|-
| Liver Resection Performed for Gallbladder Carcinoma?
|-
| Indication for Resection
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| Presence of Bilobal Disease
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| Bismuth-Corlette Type?
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| Diameter of Lesion
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| Number of Liver Tumours
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| Diameter of Largest Lesion in mm (prior to any Neoadjuvant Therapy)
|-
| BCLC Stage Known?
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| BCLC Stage
|-
| Presence of Tumour Satellites or Daughter Nodules?
|-
| Origin of Liver Metastases
|-
| Are there Extra-Hepatic Metastases?
|-
| Location of Extrahepatic Liver Metastases
|-
| Are there Other Abdominal Metastases?
|-
| Are there Lung Metastases?
|-
| Are there Metastases at Other Locations?
|-
| Date of First Resection of Primary Tumour
|-
| Pathological N-Classification According to TNM System of Primary Tumour
|-
| Was Preoperative Biliary Drainage Performed?
|-
| Biliary Drainage Technique?
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| Was Imaging (CT/MRI) Performed Prior to Biliary Drainage?
|-
| Was the Future Liver Remnant Drained?
|-
| Was Preoperative Portal Embolization Performed?
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| When was the Portal Embolization Performed?
|-
| Was a Liver Function Test Done?
|-
| Was a Prehabilitation Process Started?
|-
| Date of Operation/Ablation
|-
| ASA Score as Reported by the Anesthetist
|-
| Procedure
|-
| Reason for Irresectability?
|-
| Procedure
|-
| Is it Synchronous or Metachronous Liver Metastases?
|-
| Type of Treatment for Synchronous Liver Metastases?
|-
| Is the Operation Part of a Two-Stage Procedure?
|-
| Was a Two-Stage Procedure Performed According to the (Mini)-ALPPS Technique?
|-
| Ablation Procedure:
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| Type of Imaging During Ablation
|-
| Type of Anesthesia During Ablation
|-
| Which Specialist Performed the Ablation?
|-
| Number of Ablated Lesions/Metastases.
|-
| Size of Largest Focus Ablated (mm)
|-
| Was there Technical Success?
|-
| Was a Post-Ablation Contrast Scan Made?
|-
| What Procedure was Performed?
|-
| What Type of Liver Resection was Performed?
|-
| Size of Largest Focus for Resection (mm)
|-
| Was it a Major Liver Resection?
|-
| Operation Combined with Other Intra-Abdominal Procedure?
|-
| Additional Resections Due to Tumour Invasion?
|-
| Was Portal Resection and Reconstruction Performed?
|-
| Wedge Excision?
|-
| Segmental Resection?
|-
| How Many Metastases Were Removed?
|-
| How Many Bilio-Digestive Anastomoses Were Performed?
|-
| Number of Abnormalities
|-
| Size of Abnormalities
|-
| Vascular Unfavorable Location
|-
| Extra-Hepatic Abnormalities
|-
| Other
|-
| Unknown
|-
| What was the Blood Loss? (ml)
|-
| Was an Abdominal Drain Placed Perioperatively?
|-
| How Much Volume of the Original Did the Remaining Liver Have After the Operation?
|-
| Were There Complications Within 30 Days After Resection/Ablation?
|-
| pT Stage of Perihilar Cholangiocarcinoma According to Pathology Report
|-
| pN Stage of Perihilar Cholangiocarcinoma According to Pathology Report
|-
| pM Stage of Perihilar Cholangiocarcinoma According to Pathology Report
|-
| pT Stage of Gallbladder Carcinoma According to Pathology Report
|-
| pN Stage of Gallbladder Carcinoma According to Pathology Report
|-
| pM Stage of Gallbladder Carcinoma According to Pathology Report
|-
| pG Stage According to Pathology Report
|-
| Pathological T Stage of HCC According to Pathology Report
|-
| Pathological N Stage of HCC According to Pathology Report
|-
| Pathological M Stage of HCC According to Pathology Report
|-
| pT Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
|-
| pTN Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
|-
| pM Stage of Intrahepatic Cholangiocarcinoma According to Pathology Report
|-
| Number of Tumours in the Resection Specimen
|-
| Was the Tumour Radically Removed?
|-
| Irradicality at Liver Resection Level?
|-
| Irradicality at Distal Bile Duct Level?
|-
| Irradicality at Proximal Bile Duct Level?
|-
| What is the Image of the Unaffected Liver?
|-
| PA Number (TJJ-CCCCCC)
|-
| PA Laboratory
|-
| Was (Neo-)Adjuvant Chemotherapy Given for the Liver Abnormality or the Abnormality of the Bile Ducts or Gallbladder?
|-
| Induction for Downstaging
|-
| Neoadjuvant for Resectable Tumour
|-
| Adjuvant for Resectable Tumour
|-
| Is Patient Participating in a Trial?
|-
| The Doctor Can Check Here That the Patient's Data is Complete and Correct.
|}

'''Table 4:''' Date of Last Information on Survival Status (If the Patient is Deceased, This is the Death Date)
{| class="wikitable"
! Variables
|-
| Health Facility
|-
| Hospital Patient Number
|-
| Is the Patient Deceased?
|-
| Is There a Recurrence After the Last Procedure?
|-
| Date of Recurrence Diagnosis
|-
| Was This Recurrence a Locoregional Recurrence of an Earlier Ablation or Resection?
|-
| Date of the Previous Liver Resection/Ablation of the Tumour which the Current Tumour is a Recurrence of (local or intrahepatic elsewhere)
|-
| Date of Last Information on Recurrence Status
|-
| Is This Recurrence Being Treated?
|-
| Nature of Reintervention
|}

'''Table 5:''' COVID-19 Related Variables
{| class="wikitable"
! Variables
|-
| Was There a (Clinical) Suspicion or Test for a SARS-CoV-2 Infection from the Period Before Admission to 30 Days After Admission?
|-
| Admission Date or, If Not Available, Date of Treatment
|-
| Was the Patient Tested for a SARS-CoV-2 Infection by CT Thorax, RT-PCR, or Another Specific Lab Test?
|-
| Date of First Suspicion of SARS-CoV-2 Infection [ICD-10: U07.2 Date]
|-
| If Unknown: Was This Before Treatment or During/After Treatment?
|-
| Date of First Specific Test for SARS-CoV-2 Infection [ICD-10: U07.1 or U07.2 Date]
|-
| If Unknown: Was This Before Treatment or During/After Treatment?
|-
| Date of First Positive Lab Test for SARS-CoV-2 [ICD-10: U07.1 Date]
|-
| If Unknown: Was This Before Treatment or During/After Treatment?
|-
| IC Admission Date and Time
|-
| IC Discharge Date and Time
|-
| Destination After IC Admission
|-
| What Was the Ultimate Status Regarding SARS-CoV-2?
|-
| Are You Participating in the COVIDSURG II Snapshot Study for This Registration?
|-
| Was There a Clinical Suspicion or Test for SARS-CoV-2 Infection or COVID-19 Around the Time of the Surgery?
|-
| Symptoms Compatible with COVID-19?
|-
| Number of Days of Symptoms Prior to Surgery
|-
| Did or Does the Patient Smoke?
|-
| Number of Packyears
|-
| What is the Patient's Height? (in cm)
|-
| What was the Patient's Weight at Admission? (in kg)
|-
| Was the Patient Tested for a SARS-CoV-2 Infection?
|-
| What Type(s) of Test(s) Did the Patient Undergo Preoperatively?
|-
| Number of Times Preoperative RT-PCR Test was Performed
|-
| Date of First Preoperative RT-PCR Test
|-
| Date of First Positive Preoperative RT-PCR Test
|-
| X-ray Thorax - Consolidations
|-
| CT Thorax - CORADS Score
|-
| Number of Preoperative CT Thoraxes with COVID-19 Question
|-
| Date of First Preoperative CT Thorax with COVID-19 Questioning
|-
| Date of First Preoperative CT Thorax with a CORADS Score of 4-5
|-
| Definitive Preoperative COVID-19 Status
|-
| Were There Pre-Operative COVID-Related Complications?
|-
| COVID-Related Complications?
|-
| Thrombo-Embolic Events?
|-
| Therapeutic Anticoagulation Prior to Embolic Event?
|-
| Therapeutic Anticoagulation Following COVID-Related Embolic Event?
|-
| Impact on Neoadjuvant Treatment?
|-
| What Impact on Neoadjuvant Treatment?
|-
| Impact on Planning/Surgery Postponed?
|-
| Reason for Impact on Planning/Surgery Postponed?
|-
| Impact on Surgical Approach (Scopic/Robot/Open)?
|-
| Impact on Surgical Approach (Scopic/Robot/Open)?
|-
| Were There Postoperative Complaints Compatible with COVID-19?
|-
| What Complaints Compatible with COVID-19?
|-
| How Many Days After Surgery Did COVID-19 Symptoms Begin?
|-
| Was the Patient Tested for a SARS-CoV-2 Infection Postoperatively?
|-
| What Type(s) of Test(s) Did the Patient Undergo Postoperatively?
|-
| Number of Times Postoperative RT-PCR Test was Performed
|-
| Date of First Postoperative RT-PCR
|-
| Date of First Positive Postoperative RT-PCR?
|-
| X-ray Thorax - Consolidations
|-
| CT Thorax - CORADS Score
|-
| Number of CT Thorax with COVID-19 Questioning
|-
| Date of First Postoperative CT Thorax with COVID-19 Questioning
|-
| Date of First Postoperative CT Thorax with a CORADS Score of 4-5
|-
| Definitive Postoperative COVID-19 Status
|-
| Were There Postoperative COVID-Related Complications?
|-
| COVID-Related Complications?
|-
| Thrombo-Embolic Events?
|-
| Therapeutic Anticoagulation Prior to Embolic Event?
|-
| Therapeutic Anticoagulation Following COVID-Related Embolic Event?
|-
| Was There an IC Admission Around the Time of Surgery?
|-
| Was There a COVID-Related IC Admission?
|-
| Was COVID Diagnosed During the IC Admission?
|-
| What Respiratory Support During the IC Admission?
|-
| IC Admission Date
|-
| IC Discharge Date
|-
| Duration of IC Admission (Days)
|-
| Destination After Last IC Admission
|}