Editing Data dictionary - Netherlands Cancer Registry (NKR)

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Source: [https://iknl.nl/nkr/registratie/itemsets Click here to learn more].

There are different types of variables available according to type of tumour and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumour, visit the data source.

=== Patient Records ===

{| class="wikitable"
|-
| Date of birth
|-
| Age at diagnosis
|-
| Sex
|-
| Country of birth
|-
| Date of death
|-
| Vital status with date
|-
| Patient number in the institution
|-
| Menopausal status at diagnosis
|-
| Postcode figures
|}

=== Tumour Data ===
{| class="wikitable"
| Diagnosis date
|-
| Basis for diagnosis
|-
| Topography (incl. sublocalization/lateralization)
|-
| Morphology (incl. behavior/degree of differentiation)
|-
| Topography metastasis (incl. sublocalization)
|-
| Clinical TNM stage
|-
| Pathological TNM stage
|-
| Multifocality tumour
|-
| Pathological size of the tumour (mm)
|-
| Estrogen receptor status
|-
| Estrogen receptor value
|-
| Progesterone receptor status
|-
| Value of progesterone receptor
|-
| HER2 status
|-
| Technique used for HER2 determination
|-
| Number of regional lymph nodes examined
|-
| Number of positive regional lymph nodes
|-
| Presence of DCIS component next to invasive tumour
|-
| BI-RADS classification
|-
| Tumour palpability
|-
| Breast print rash
|-
| Result of oncotype DX
|}

=== Treatment Details ===

{| class="wikitable"
|-
| Surgery
|-
| Date of surgery
|-
| Surgery discharge date
|-
| Tumour is an incidental finding during surgery for another indication
|-
| Hospital surgery
|-
| Direct reconstruction
|-
| Date of immediate reconstruction
|-
| Direct reconstruction technique
|-
| Hospital direct reconstruction
|-
| Axillary dissection performed
|-
| Date of axillary lymph node dissection
|-
| Hospital axillary dissection
|-
| Basic axillary dissection performed
|-
| Date of basal axillary lymph node dissection
|-
| Hospital of basal axillary dissection
|-
| Radiotherapy
|-
| Start/stop date of radiotherapy
|-
| Type of external radiotherapy
|-
| Hospital radiotherapy
|-
| Systemic chemotherapy
|-
| Start/stop date of systemic chemotherapy
|-
| Hospital systemic chemotherapy
|-
| Systemic hormonal therapy
|-
| Start date of systemic hormonal therapy
|-
| Hospital systemic hormonal therapy
|-
| Systemic target therapy
|-
| Start-stop date of systemic target therapy
|-
| Hospital systemic target therapy
|-
| Active surveillance
|-
| Radicality DCIS component surgery
|-
| Radicality invasive component surgery
|-
| No radiotherapy after breast-conserving treatment
|-
| Reason for no radiotherapy after breast-conserving treatment
|-
| Complication during/after surgery
|-
| Complication during/after systemic chemotherapy
|}

=== Follow up Data ===

{| class="wikitable"
|-
| Recurrences within 5 years of diagnosis
|-
| Follow-up local recurrence
|-
| Date of follow-up local recurrence
|-
| Localization of follow-up local recurrence
|-
| Basis for diagnosis of follow-up local recurrence
|-
| Pathological tumour size (mm) follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Date of follow-up for regional recurrence
|-
| Localization of follow-up regional recurrence
|-
| Basis for diagnosis of follow-up regional recurrence
|-
| Number of regional lymph nodes examined for follow-up regional recurrence
|-
| Number of positive lymph nodes follow-up regionally
|-
| Follow-up metastasis
|-
| Date of follow-up metastasis
|-
| Basis for diagnosis follow-up metastasis
|-
| Topography (incl. sublocalization/lateralization) follow-up metastasis
|-
| Number of follow-up metastases
|-
| Treatment follow-up
|-
| Date of last contact follow-up
|-
| Relapses within 10 years of diagnosis
|-
| Follow-up local recurrence
|-
| Date of follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Date of follow-up for regional recurrence
|-
| Follow-up metastasis
|-
| Date of follow-up metastasis
|-
| Treatment follow-up
|-
| Relapses due to project
|-
| Follow-up local recurrence
|-
| Localization of local recurrence
|-
| Basis for diagnosis of local recurrence
|-
| Date of follow-up local recurrence
|-
| Pathological tumour size (mm) follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Localization of regional recurrence
|-
| Basis for diagnosis of regional recurrence
|-
| Date of follow-up for regional recurrence
|-
| Number of regional lymph nodes examined for follow-up regional recurrence
|-
| Number of positive lymph nodes follow-up regional recurrence
|-
| Follow-up metastasis
|-
| Localization of metastasis
|-
| Basis for diagnosis of metastasis
|-
| Date of follow-up metastasis
|-
| Number of follow-up metastases
|-
| ER, PR, Her2 recurrence or metastasis
|-
| Treatment follow-up
|}

=== Risk Factors ===

{| class="wikitable"
|-
| Comorbidity
|-
| History of breast surgery
|-
| Smoking status
|-
| Pregnancy at diagnosis
|-
| Performance status
|-
| Weight
|-
| Length
|-
| Incidence year of previous/later malignancies
|-
| Tumour type previous/later malignancies
|}

=== Process Data ===

{| class="wikitable"
|-
| Tumour detected after referral for population screening
|-
| Reason for diagnosis
|-
| Gene mutation research conducted
|-
| Date of gene mutation research
|-
| Hospital gene mutation research
|-
| MRI performed
|-
| MRI date
|-
| Hospital MRI
|-
| Ultrasound-guided puncture and/or biopsy performed in the armpit
|-
| Date of ultrasound-guided puncture and/or biopsy in the armpit
|-
| Result of ultrasound-guided puncture and/or biopsy in armpit
|-
| Hospital ultrasound-guided puncture and/or biopsy in the armpit
|-
| Post-therapeutic MDO performed
|-
| Date post-therapeutic MDO
|-
| Hospital post-therapeutic MDO
|-
| Pretherapeutic MDO performed
|-
| Date of pre-therapeutic MDO
|-
| Hospital pretherapeutic MDO
|-
| Sentinel lymph node procedure performed
|-
| Date of sentinel procedure
|-
| Result of sentinel procedure
|-
| Hospital sentinel procedure
|-
| Tumour localization procedure
|-
| MARI procedure performed
|-
| Date of MARI procedure
|-
| Result of MARI procedure
|-
| Hospital MARI procedure
|-
| Date of first consultation with plastic surgeon for ablation
|-
| Date of first consultation with radiotherapist for pre-surgical therapy
|-
| Hospital of first contact regarding malignancy
|-
| Date of first consultation in hospital
|-
| Date of first consultation with practitioner at second hospital
|-
| Participation in clinical scientific research
|-
| Operation with plastic surgeon
|}