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Database: German Childhood Cancer Registry (DKKR) (Germany)
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<span style="display:none">forresearchers</span> <span style="display:none">germanycountry</span> Go back to [[Germany]] page '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]], [[hasVariable::cancer survival]], and [[hasVariable::number of deaths|mortality]] of children with cancer by [[hasVariable::year]], [[hasVariable::age]], [[hasVariable::sex]] and [[hasVariable::diagnosis|cancer type]]. A data dictionary was not found. '''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], and [[availableVariable::number of deaths|mortality]] of children with cancer by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::sex]] and [[availableVariable::diagnosis|cancer type]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. '''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. '''Data level:''' [[dataLevel::national level]]. '''Number of records:''' Covers more than 95% of the population. '''Date range:''' [[dataStart::1980]] [[dataEnd::onwards]]. '''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/arbeitsweise-des-dkkr.html Click here to learn more about the restricted data access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access]]]. '''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access]. <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Colon</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::cancer incidence</span> <span style="display:none">hasVariable::cancer survival</span> <span style="display:none">hasVariable::number of deaths|mortality</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::diagnosis|cancer type</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::cancer survival</span> <span style="display:none">availableVariable::number of deaths|mortality</span> <span style="display:none">availableVariable::year</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::diagnosis|cancer type</span> <span style="display:none">dataLevel::national level</span> <span style="display:none">dataStart::1980</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDownloadableData::PDF</span> <span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span> <span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Extremity</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span>
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