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Database: National Quality Register for Cervical Cancer Prevention (Sweden)
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Go back to [[Sweden]] page <span style="display:none">forresearchers</span> <span style="display:none">swedencountry</span> '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' To monitor and improve the quality of cervical cancer prevention in Sweden through the analysis of data on screenings, tests, diagnoses, and biobanking. '''Sponsor, manager or home institution:''' [[dataOwner::Karolinska University Hospital]]. '''Type of information:''' [[databaseStructure::cross-sectional]]. [[hasVariable::screening]], [[hasVariable::diagnosis]], [[hasVariable::medical procedures]], [[hasVariable::age]], [[hasVariable::sex]], [[hasVariable::cancer incidence]], [[hasVariable::number of deaths]]. Data on invitations to cytology (Pap smear) screenings, results of cytology and virus tests, records of tissue samples and diagnoses related to cervical cancer, information on biobanking of cytology samples. '''Available type of information''': [[availableVariable::cancer incidence]] (cervical cancer); [[availableVariable::age]]; [[availableVariable::region]], [[availableVariable::year]], participation in [[availableVariable::screening]] programs, coverage rates and trends in cervical cancer screening, [[availableVariable::diagnosis]] profiles for cytology and HPV testing, follow-up of high-grade cervical cell changes, [[availableVariable::number of deaths|mortality]] rates of invasive cervical cancer, among others. [https://www.nkcx.se/ Click here to learn more]. '''Source of information:''' The National Quality Register for Cervical Cancer Prevention (NKCx) in Sweden. NKCx is a national initiative that merges two existing quality registers with extensive experience and expertise in cervical cancer prevention. The register covers various aspects of cervical cancer prevention, including data on invitations, cell samples, tissue samples, and the care process. '''Data level:''' [[dataLevel::patient level]]. '''Available data level:''' [[availableDataLevel::regional level]] and [[availableDataLevel::national level]]. '''Number of Records:''' [[numberRecords::unknown]]. '''Date Range:''' [[dataStart::1970]] [[dataEnd::onwards]]. '''Cancer areas of interest:''' [[hasCancerType::C51-C58: Female genitalia cancer]]. [https://snd.se/sv/catalogue/dataset/ext0168-1 Click here to learn more]. '''Data access:''' [[dataAvailability::partially publicly available]]: [https://www.nkcx.se/qind.htm click here to access]; Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://www.nkcx.se/research.htm click here to learn more]]]. [[hasDataAccessCosts::Data has access costs]]. '''Contact information:''' [mailto:joakim.dillner@regionstockholm.se Click here to learn more]. <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Karolinska University Hospital</span> <span style="display:none">databaseStructure::cross-sectional</span> <span style="display:none">hasVariable::screening</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::cancer incidence</span> <span style="display:none">hasVariable::number of deaths</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::region</span> <span style="display:none">availableVariable::year</span> <span style="display:none">availableVariable::screening</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::number of deaths|mortality</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::regional level</span> <span style="display:none">availableDataLevel::national level</span> <span style="display:none">numberRecords::unknown</span> <span style="display:none">dataStart::1970</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancer</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDataAccessInstructions::[https://www.nkcx.se/research.htm click here to learn more</span> <span style="display:none">hasDataAccessCosts::Data has access costs</span> <span style="display:none">isDatabase</span>
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