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Database: National Registry of Childhood Cancer (RNCCR) (Romania)
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Go back to [[Romania]] page <span style="display:none">forresearchers</span> <span style="display:none">romaniacountry</span> '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' To compile and maintain a comprehensive database of cancer cases in children and young people in Romania. [https://srohp.ro/pentru-medici/registrul-national-al-cancerului-la-copil-in-romania-rnccr/ Click here to learn more.] '''Sponsor, manager or home institution''': [[dataOwner::Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology]]. '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::age]]; [[hasVariable::sex]]; [[hasVariable::region]]; [[hasVariable::diagnosis]]; [[hasVariable::primary tumour localization]]; [[hasVariable::tumour histology]]; [[hasVariable::tumour staging]]; [[hasVariable::medical procedures]]; [[hasVariable::hospital location]]; [[hasVariable::cancer incidence]]; [[hasVariable::number of deaths]]; [[hasVariable::causes of death]]; [[hasVariable::potential years of life lost]], [[hasVariable::cancer survival]]; [[hasVariable::hospital discharges]], [[hasVariable::number of visits]], [[hasVariable::year]]. The information contained in the registry follows the recommendations of ENCR [https://encr.eu/sites/default/files/Recommendations/ENCR-Recommendation-standard-dataset_Mar2023.pdf Click here to learn more]. Furthermore, it includes clinical data and the newest pediatric cancer staging system recommended by the Toronto Consensus [https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(20)30320-X/fulltext Click here to learn more]. Data refers to people aged between 0 and 14 years. [[hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)]] '''Available type of information:''' [[availableVariable::age]], [[availableVariable::sex]], [[availableVariable::region]], [[availableVariable::diagnosis]], [[availableVariable::primary tumour localization]], [[availableVariable::tumour histology]], [[availableVariable::tumour staging]], [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], [[availableVariable::causes of death]], [[availableVariable::number of deaths]], [[availableVariable::potential years of life lost]], [[availableVariable::hospital discharges]], [[availableVariable::number of visits]], [[availableVariable::year]]. '''Source of information''': Reports from pediatric oncologic centers. '''Data level''': [[dataLevel::patient level]]. '''Date range''': [[dataStart::2009]] [[dataEnd::onwards]]. '''Cancer areas of interest''': [[hasCancerType::C00-D48: All neoplasms]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to learn more]. '''Data access''': [[dataAvailability::partially publicly available]]. [https://www.srohp.ro/wp-content/uploads/2019/04/Raport_RNCCR_-1-feb-2019.pdf Click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://srohp.ro/contact/ Click here to learn more.]]] '''Contact information''': [https://srohp.ro/contact/ Click here to learn more]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Daruieste Aripi Association and Romanian Society of Pediatric Onco-Hematology</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::region</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::hospital location</span> <span style="display:none">hasVariable::cancer incidence</span> <span style="display:none">hasVariable::number of deaths</span> <span style="display:none">hasVariable::causes of death</span> <span style="display:none">hasVariable::potential years of life lost</span> <span style="display:none">hasVariable::cancer survival</span> <span style="display:none">hasVariable::hospital discharges</span> <span style="display:none">hasVariable::number of visits</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasDataDictionary::Data Dictionary - National Registry of Childhood Cancer (RNCCR)</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::region</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::primary tumour localization</span> <span style="display:none">availableVariable::tumour histology</span> <span style="display:none">availableVariable::tumour staging</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::cancer survival</span> <span style="display:none">availableVariable::causes of death</span> <span style="display:none">availableVariable::number of deaths</span> <span style="display:none">availableVariable::potential years of life lost</span> <span style="display:none">availableVariable::hospital discharges</span> <span style="display:none">availableVariable::number of visits</span> <span style="display:none">availableVariable::year</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">dataStart::2009</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDownloadableData::PDF</span> <span style="display:none">hasDataAccessInstructions::[https://srohp.ro/contact/ Click here to learn more.</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> <span style="display:none">hasCancerType::unknown</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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