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Database: Netherlands Cancer Registry (NKR) (The Netherlands)
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<span style="display:none">forresearchers</span> <span style="display:none">thenetherlandscountry</span> Go back to [[The Netherlands]] page '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' Record and monitor cancer statistics across the Netherlands to improve quality of care and ability to treat disease. '''Sponsor, manager or home institution''': [[dataOwner::Comprehensive Cancer Center of the Netherlands (IKNL)]]. '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::age]], [[hasVariable::sex]], [[hasVariable::place of residence]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour histology]], [[hasVariable::tumour staging]], [[hasVariable::comorbidities]], [[hasVariable::medical procedures]], [[hasVariable::screening]], [[hasVariable::hospital location]], [[hasVariable::number of patients]], [[hasVariable::number of medical staff]], [[hasVariable::length of stay]], [[hasVariable::number of visits]], [[hasVariable::type of medical activity]], [[hasVariable::number of deaths]], [[hasVariable::causes of death]], [[hasVariable::medication use]], [[hasVariable::year]], [[hasVariable::risk factors]]. [[hasDataDictionary::Data dictionary - Netherlands Cancer Registry (NKR)]]. [https://iknl.nl/nkr/registratie/itemsets Click here to learn more]. '''Available type of information''': NKR Figures includes [[availableVariable::cancer incidence]]; [[availableVariable::diagnosis]]; [[availableVariable::sex]]; [[availableVariable::age]]; [[availableVariable::region]]; [[availableVariable::year]]; [[availableVariable::cancer prevalence]]; [[availableVariable::number of deaths|cancer mortality]]; [[availableVariable::cancer survival]]; relative survival; and [[availableVariable::tumour staging]]. [https://kankeratlas.iknl.nl/ Click here to learn more]. Also, there is a Cancer Atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011β2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender. [https://kankeratlas.iknl.nl/ Click here to learn more]. '''Source of information''': Hospitals' reports. [https://iknl.nl/nkr/over-nkr Click here to learn more]. '''Data level''': [[dataLevel::patient level]]. '''Available data level''': [[availableDataLevel::regional level]] and [[availableDataLevel::national level]]. '''Number of Records:''' Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumours of the central nervous system, borderline tumours of the ovary, and AL amyloidosis) in the Netherlands. '''Date range''': [[dataEnd::varies]] according to the diagnosis and the type of information. [https://iknl.nl/nkr/registratie/itemsets Click here to learn more]. '''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://iknl.nl/nkr/registratie/itemsets Click here to learn more]. '''Data access''': [[dataAvailability::partially publicly available]]. Publicly available data are the NKR Figures: [https://iknl.nl/nkr-cijfers Click here to access] and the Cancer atlas: [https://kankeratlas.iknl.nl/ Click here to access]. Data can be downloaded in the following format: [[hasDownloadableData::XLSX]]. [[hasDataAccessCosts::Data has access costs]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag Click here to learn more]]]. '''Contact information''': [https://iknl.nl/over-iknl/contact-adres Click here to learn more]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Comprehensive Cancer Center of the Netherlands (IKNL)</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::place of residence</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::comorbidities</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::screening</span> <span style="display:none">hasVariable::hospital location</span> <span style="display:none">hasVariable::number of patients</span> <span style="display:none">hasVariable::number of medical staff</span> <span style="display:none">hasVariable::length of stay</span> <span style="display:none">hasVariable::number of visits</span> <span style="display:none">hasVariable::type of medical activity</span> <span style="display:none">hasVariable::number of deaths</span> <span style="display:none">hasVariable::causes of death</span> <span style="display:none">hasVariable::medication use</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasVariable::risk factors</span> <span style="display:none">hasDataDictionary::Data dictionary - Netherlands Cancer Registry (NKR)</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::region</span> <span style="display:none">availableVariable::year</span> <span style="display:none">availableVariable::cancer prevalence</span> <span style="display:none">availableVariable::number of deaths|cancer mortality</span> <span style="display:none">availableVariable::cancer survival</span> <span style="display:none">availableVariable::tumour staging</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::regional level</span> <span style="display:none">availableDataLevel::national level</span> <span style="display:none">dataEnd::varies</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDownloadableData::XLSX</span> <span style="display:none">hasDataAccessCosts::Data has access costs</span> <span style="display:none">hasDataAccessInstructions::[https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag Click here to learn more</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> <span style="display:none">hasCancerType::unknown</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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