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Database: Registry of Histo and Cytopathology (The Netherlands)
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Go back to [[The Netherlands]] page <span style="display:none">forresearchers</span> <span style="display:none">thenetherlandscountry</span> '''Type of Database:''' [[databaseType::registry]]. '''Primary purpose:''' Records organized pathology data to facilitate scientific study that improves the quality of diagnosis, treatment, and patient safety. [https://www.palga.nl/data/openbare-databank Click here to learn more]. '''Sponsor, manager or home institution''': [[dataOwner::the Pathological Anatomical National Automated Archive (PALGA)]]. '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::age]], [[hasVariable::sex]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour histology]], [[hasVariable::tumour staging]], [[hasVariable::comorbidities]], [[hasVariable::medical procedures]], [[hasVariable::screening]], [[hasVariable::year]]. [[hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)]]. [https://www.palga.nl/voor-pathologen/protocollen Click here to learn more]. It is possible to integrate data from this Registry of Histo and Cytopathology with other databases. This linkage enriches the investigations since it provides much more information regarding each case. In the following website, it is possible to see the list of databases that have an easier proccess of linkage with the Histo and Cytopathology database along with the instructions to this process. [https://www.palga.nl/en/gegevensaanvragen-engels/koppelingen-engels.html Click here to learn more]. '''Available type of information''': [[availableVariable::diagnosis]] (includes neoplasms); [[availableVariable::sex]]; [[availableVariable::year]]; [[availableVariable::age]]; [[availableVariable::tumour histology]]. [https://www.palga.nl/en/public-database.html Click here to learn more]. '''Source of information''': Pathology reports are sent daily from laboratories around the Netherlands to the national database. [https://www.palga.nl/data/openbare-databank Click here to learn more]. '''Data level''': [[dataLevel::patient level]]. '''Available data level''': [[availableDataLevel::national level]]. '''Number of Records:''' Since 2017, when there were more than 72 million pathology results stored, the number of registries has increased by approximately 2 million each year. [https://www.palga.nl/data/openbare-databank Click here to learn more]. '''Date range''': [[dataStart::1971]] [[dataEnd::onwards]]. The registry has had nationwide information since 1991. [https://www.palga.nl/data/openbare-databank Click here to learn more]. '''Cancer Areas of Interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.palga.nl/voor-pathologen/palga-on-line-thesaurus?filter_retrievalterm%5B%5D=7&search= Click here to learn more]. '''Data access''': [[dataAvailability::partially publicly available]]. Public database: [https://www.palgaopenbaredatabank.nl/menu/main/home Click here to access]. To facilitate the search process for cancer terms, the main thesaurus codes used are listed in this page: [https://www.palga.nl/voor-pathologen/palga-on-line-thesaurus?page_70=4 Click here to learn more]. [[hasDataAccessCosts::Data has access costs]]. [https://www.palga.nl/media/uploads/pdf/4/9/490_nvvp-handreiking-en-tarieven-rondom-materiaal-verzendingen-pathologie-230406.pdf Click here to learn more]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers Click here to learn more]]]. '''Contact information''': [https://www.palga.nl/contact Click here to learn more]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::the Pathological Anatomical National Automated Archive (PALGA)</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::comorbidities</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::screening</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasDataDictionary::Data dictionary - Registry of Histo and Cytopathology (The Netherlands)</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::year</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::tumour histology</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::national level</span> <span style="display:none">dataStart::1971</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDataAccessCosts::Data has access costs</span> <span style="display:none">hasDataAccessInstructions::[https://www.palga.nl/voor-onderzoekers/aanvragen-palga-portal-onderzoekers Click here to learn more</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> <span style="display:none">hasCancerType::unknown</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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