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Database: Socialstyrelsen Cancer Registry (Sweden)
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Go back to [[Sweden]] page <span style="display:none">forresearchers</span> <span style="display:none">swedencountry</span> '''Type of database:''' [[databaseType::registry]] '''Primary purpose:''' To map the occurrence and change of cancer diseases over time. '''Sponsor, manager or home institution:''' [[dataOwner::Socialstyrelsen]]. '''Type of information:''' [[databaseStructure::cross-sectional]]. [[hasVariable::age]], [[hasVariable::year]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour histology]], [[hasVariable::tumour staging]], [[hasVariable::hospital location]], [[hasVariable::number of deaths]], [[hasVariable::causes of death]], [[hasVariable::region]], [[hasVariable::sex]], [[hasVariable::place of residence]]. [[hasDataDictionary::Data Dictionary: Socialstyrelsen Cancer Registry]]. [https://www.socialstyrelsen.se/en/statistics-and-data/registers/national-cancer-register/ Click here to learn more]. '''Available type of information''': number of diagnostics; Cases per 100,000; [[availableVariable::cancer incidence]]; [[availableVariable::age]]; [[availableVariable::sex]]; [[availableVariable::diagnosis]], and [[availableVariable::year]]. '''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually. '''Data level:''' [[dataLevel::patient level]]. '''Available data level:''' [[availableDataLevel::regional level]] and [[availableDataLevel::national level]]. '''Number of records:''' 60,000 cases registered every year. [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register Click here to learn more]. '''Date range:''' [[dataStart::1970]] [[dataEnd::onwards]]. '''Cancer areas of interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.socialstyrelsen.se/en/statistics-and-data/registers/national-cancer-register/ Click here to learn more]. '''Data access:''' [[dataAvailability::partially publicly available]]: [https://sdb.socialstyrelsen.se/if_can/val.aspx click here to access]. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more]]]. Data can be downloaded in the formats [[hasDownloadableData::CSV]], [[hasDownloadableData::XLSX]]. [[hasDataAccessCosts::Data has access costs]]. '''Contact information:''' [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/ Click here to learn more]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Socialstyrelsen</span> <span style="display:none">databaseStructure::cross-sectional</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::hospital location</span> <span style="display:none">hasVariable::number of deaths</span> <span style="display:none">hasVariable::causes of death</span> <span style="display:none">hasVariable::region</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::place of residence</span> <span style="display:none">hasDataDictionary::Data Dictionary: Socialstyrelsen Cancer Registry</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::year</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::regional level</span> <span style="display:none">availableDataLevel::national level</span> <span style="display:none">dataStart::1970</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more</span> <span style="display:none">hasDownloadableData::CSV</span> <span style="display:none">hasDownloadableData::XLSX</span> <span style="display:none">hasDataAccessCosts::Data has access costs</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> <span style="display:none">hasCancerType::unknown</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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