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Database: Socialstyrelsen National Patient Register (Sweden)
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Go back to [[Sweden]] page <span style="display:none">forresearchers</span> <span style="display:none">swedencountry</span> '''Type of database:''' [[databaseType::administrative/claims data]]. '''Primary purpose:''' The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed. '''Sponsor, manager or home institution:''' [[dataOwner::Socialstyrelsen]]. '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::age]], [[hasVariable::sex]], [[hasVariable::marital status]], [[hasVariable::place of residence]], [[hasVariable::diagnosis]], [[hasVariable::medical procedures]], [[hasVariable::hospital location]], [[hasVariable::type of medical activity]], [[hasVariable::medication use]], [[hasVariable::hospital discharges]], [[hasVariable::type of patient discharge]], [[hasVariable::length of stay]], [[hasVariable::number of visits]], [[hasVariable::types of visits]], [[hasVariable::year]]. [[hasDataDictionary::Data Dictionary: Socialstyrelsen National Patient Register]]. [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/ovrigt/register-variabelforteckning-patientregistret.xlsx Click here to learn more]. '''Source of information:''' Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service. '''Data level:''' [[dataLevel::patient level]]. '''Number of records:''' [[numberRecords::unknown]]. '''Date range:''' [[dataStart::1964]] [[dataEnd::onwards]]. '''Cancer areas of interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.socialstyrelsen.se/statistik-och-data/register/patientregistret/ Click here to learn more]. '''Data access:''' [[dataAvailability::not publicly available]]. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more]]]. [[hasDataAccessCosts::Data has access costs]]. [https://bestalladata.socialstyrelsen.se/data-for-forskning/tid-och-kostnader/ Click here to learn more]. '''Contact information:''' [https://www.socialstyrelsen.se/statistik-och-data/register/patientregistret/ Click here to learn more]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::administrative/claims data</span> <span style="display:none">dataOwner::Socialstyrelsen</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::marital status</span> <span style="display:none">hasVariable::place of residence</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::hospital location</span> <span style="display:none">hasVariable::type of medical activity</span> <span style="display:none">hasVariable::medication use</span> <span style="display:none">hasVariable::hospital discharges</span> <span style="display:none">hasVariable::type of patient discharge</span> <span style="display:none">hasVariable::length of stay</span> <span style="display:none">hasVariable::number of visits</span> <span style="display:none">hasVariable::types of visits</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasDataDictionary::Data Dictionary: Socialstyrelsen National Patient Register</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">numberRecords::unknown</span> <span style="display:none">dataStart::1964</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::not publicly available</span> <span style="display:none">hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/ click here to learn more</span> <span style="display:none">hasDataAccessCosts::Data has access costs</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> <span style="display:none">hasCancerType::unknown</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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