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Database: Southern Regional Oncology Registry (ROR-Sul) (Portugal)
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Go back to [[Portugal]] page <span style="display:none">forresearchers</span> '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira. '''Sponsor, manager or home institution''': [[dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)]]. '''Type of information''': [[databaseStructure::longitudinal]]. [[hasVariable::types of visits]] and [[hasVariable::number of visits]] to health care stablishments, [[hasVariable::periodicity of physician consultation]], [[hasVariable::diagnosis]], [[hasVariable::primary tumour localization]], [[hasVariable::tumour staging]], [[hasVariable::risk of cancer]], [[hasVariable::tumour histology]], [[hasVariable::medical procedures]], [[hasVariable::causes of death]], [[hasVariable::year]], [[hasVariable::sex]], [[hasVariable::region]]. [[hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. '''Available type of information''': [[availableVariable::cancer incidence]], [[availableVariable::number of deaths]] and [[availableVariable::cancer survival]] by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::diagnosis]], [[availableVariable::sex]], [[availableVariable::region]], [[availableVariable::causes of death]], [[availableVariable::primary tumour localization]], [[availableVariable::tumour histology]], [[availableVariable::tumour staging]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. '''Source of information''': Data from public and private health institutions of the region. '''Data level''': [[dataLevel::patient level]]. '''Available data level''': [[availableDataLevel::regional level]]. '''Number of records:''' [[numberRecords::unknown]]. '''Date range''': Regional level is presented from 2002 to [[dataEnd::2017]], and [[dataStart::1998]] - 2000/2001. The patient level date range is unknown. '''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf Click here to learn more]. '''Data access''': [[dataAvailability::partially publicly available]]. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website: [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 click here to access]. Instructions to request data for restricted content: [[hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access]]]. '''Contact information''': [https://www.dgs.pt/site/contactos.aspx Click here to access]. <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Instituto Português de Oncologia de Lisboa Francisco Gentil (IPOLFG)</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::types of visits</span> <span style="display:none">hasVariable::number of visits</span> <span style="display:none">hasVariable::periodicity of physician consultation</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::risk of cancer</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::causes of death</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::region</span> <span style="display:none">hasDataDictionary::Data Dictionary: Southern Regional Oncology Registry (ROR-Sul) (Portugal)</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::number of deaths</span> <span style="display:none">availableVariable::cancer survival</span> <span style="display:none">availableVariable::year</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::region</span> <span style="display:none">availableVariable::causes of death</span> <span style="display:none">availableVariable::primary tumour localization</span> <span style="display:none">availableVariable::tumour histology</span> <span style="display:none">availableVariable::tumour staging</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::regional level</span> <span style="display:none">numberRecords::unknown</span> <span style="display:none">dataEnd::2017</span> <span style="display:none">dataStart::1998</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDataAccessInstructions::[https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf click here to access</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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