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Database: ZfKD Cancer Registry (Germany)
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<span style="display:none">forresearchers</span> <span style="display:none">germanycountry</span> Go back to [[Germany]] page '''Type of database:''' [[databaseType::registry]]. '''Primary purpose:''' Collect and compile epidemiological cancer data from state cancer registries at the federal level. '''Sponsor, manager or home institution:''' [[dataOwner::Zentrum für Krebsregisterdaten]]. '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::sex]]; [[hasVariable::age]]; [[hasVariable::diagnosis]]; [[hasVariable::year]]; [[hasVariable::place of residence]]; [[hasVariable::medical procedures]]; [[hasVariable::tumour histology]]; [[hasVariable::tumour staging]]; [[hasVariable::primary tumour localization]]; [[hasVariable::check-up examinations]]. To see the full data dictionary [https://github.com/robert-koch-institut/Bundesweiter_klinischer_Krebsregisterdatensatz-Datenschema_und_Klassifikationen/blob/main/oBDS_v3.0.0.8a_RKI_Schema.xlsx click here to learn more]. [[hasDataDictionary::Data Dictionary: ZfkD Cancer Registry (Germany)|Data Dictionary: ZfkD Cancer Registry]] '''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer prevalence]], [[availableVariable::causes of death]], [[availableVariable::cancer survival]], [[availableVariable::number of deaths]], case numbers, crude rate, and age-standardized rate, filtered by [[availableVariable::diagnosis]], [[availableVariable::age]], [[availableVariable::sex]], and [[availableVariable::year]]. '''Source of Information:''' Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries. '''Data level:''' [[dataLevel::patient level]]. '''Available data level:''' [[availableDataLevel::national level]]. '''Number of records:''' [[numberRecords::unknown]]. '''Date range:''' [[dataStart::1999]] [[dataEnd::onwards]]. '''Cancer areas of interest:''' [[hasCancerType::C00-C97: All cancer types]]. See the full list of cancer types: [[Cancer Areas of Interest: ZfKD Cancer Registry|ZfKD Cancer Registry]]. [https://www.krebsdaten.de/Krebs/SiteGlobals/Forms/Datenbankabfrage/datenbankabfrage_stufe1_form.html Click here to learn more]. '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.krebsdaten.de/Krebs/SiteGlobals/Forms/Datenbankabfrage/datenbankabfrage_stufe1_form.html Click here to access]. Data can be downloaded in the formats [[hasDownloadableData::XLS]] and [[hasDownloadableData::CSV]]. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_Antragstellung/info_antrag_node.html click here to access]]]. '''Contact information:''' [https://www.krebsdaten.de/Krebs/DE/Content/ZfKD/Kontakt/kontakt_node.html Click here to access]. <span style="display:none">Mouth</span> <span style="display:none">Throat</span> <span style="display:none">Oropharynx</span> <span style="display:none">Nasopharynx</span> <span style="display:none">Hypopharynx</span> <span style="display:none">Larynx</span> <span style="display:none">Salivary glands</span> <span style="display:none">Lips</span> <span style="display:none">Tonsils</span> <span style="display:none">base of tongue</span> <span style="display:none">Voice box</span> <span style="display:none">Esophagus</span> <span style="display:none">Stomach</span> <span style="display:none">Small intestine</span> <span style="display:none">Large intestine</span> <span style="display:none">Colon</span> <span style="display:none">Rectum</span> <span style="display:none">Anus</span> <span style="display:none">Liver</span> <span style="display:none">Gallbladder</span> <span style="display:none">Bile ducts</span> <span style="display:none">Pancreas</span> <span style="display:none">Lung</span> <span style="display:none">Trachea</span> <span style="display:none">Bronchi</span> <span style="display:none">Pleura</span> <span style="display:none">Mediastinum</span> <span style="display:none">Bone</span> <span style="display:none">Cartilage</span> <span style="display:none">Osteosarcoma</span> <span style="display:none">Ewings sarcoma</span> <span style="display:none">Skin</span> <span style="display:none">Melanoma</span> <span style="display:none">Scalp</span> <span style="display:none">Lips</span> <span style="display:none">Hands</span> <span style="display:none">Feet</span> <span style="display:none">Muscle</span> <span style="display:none">Fat</span> <span style="display:none">Tendon</span> <span style="display:none">Ligament</span> <span style="display:none">Blood vessels</span> <span style="display:none">Connective tissue</span> <span style="display:none">Sarcoma</span> <span style="display:none">Angiosarcoma</span> <span style="display:none">Liposarcoma</span> <span style="display:none">Lobular</span> <span style="display:none">Breast</span> <span style="display:none">Nipple</span> <span style="display:none">Areola</span> <span style="display:none">Ductal</span> <span style="display:none">Vulva</span> <span style="display:none">Vagina</span> <span style="display:none">Cervix</span> <span style="display:none">Uterus</span> <span style="display:none">Ovary</span> <span style="display:none">Fallopian tubes</span> <span style="display:none">Endometrium</span> <span style="display:none">Prostate</span> <span style="display:none">Testicles</span> <span style="display:none">Penis</span> <span style="display:none">Kidney</span> <span style="display:none">Ureter</span> <span style="display:none">Bladder</span> <span style="display:none">Urethra</span> <span style="display:none">Eye</span> <span style="display:none">Brain</span> <span style="display:none">Spinal cord</span> <span style="display:none">Thyroid gland</span> <span style="display:none">Parathyroid</span> <span style="display:none">Adrenal glands</span> <span style="display:none">Pituitary gland</span> <span style="display:none">Pancreas</span> <span style="display:none">Thymus gland</span> <span style="display:none">Peritoneum</span> <span style="display:none">Pericardium</span> <span style="display:none">Retroperitoneum</span> <span style="display:none">Mesothelium</span> <span style="display:none">Blood</span> <span style="display:none">Bone marrow</span> <span style="display:none">Lymph nodes</span> <span style="display:none">Spleen</span> <span style="display:none">Leukemia</span> <span style="display:none">databaseType::registry</span> <span style="display:none">dataOwner::Zentrum für Krebsregisterdaten</span> <span style="display:none">databaseStructure::longitudinal</span> <span style="display:none">hasVariable::sex</span> <span style="display:none">hasVariable::age</span> <span style="display:none">hasVariable::diagnosis</span> <span style="display:none">hasVariable::year</span> <span style="display:none">hasVariable::place of residence</span> <span style="display:none">hasVariable::medical procedures</span> <span style="display:none">hasVariable::tumour histology</span> <span style="display:none">hasVariable::tumour staging</span> <span style="display:none">hasVariable::primary tumour localization</span> <span style="display:none">hasVariable::check-up examinations</span> <span style="display:none">hasDataDictionary::Data Dictionary: ZfkD Cancer Registry (Germany)|Data Dictionary: ZfkD Cancer Registry</span> <span style="display:none">availableVariable::cancer incidence</span> <span style="display:none">availableVariable::cancer prevalence</span> <span style="display:none">availableVariable::causes of death</span> <span style="display:none">availableVariable::cancer survival</span> <span style="display:none">availableVariable::number of deaths</span> <span style="display:none">availableVariable::diagnosis</span> <span style="display:none">availableVariable::age</span> <span style="display:none">availableVariable::sex</span> <span style="display:none">availableVariable::year</span> <span style="display:none">dataLevel::patient level</span> <span style="display:none">availableDataLevel::national level</span> <span style="display:none">numberRecords::unknown</span> <span style="display:none">dataStart::1999</span> <span style="display:none">dataEnd::onwards</span> <span style="display:none">dataAvailability::partially publicly available</span> <span style="display:none">hasDownloadableData::XLS</span> <span style="display:none">hasDownloadableData::CSV</span> <span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span> <span style="display:none">hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Info_antrag/info_antrag_node.html click here to access</span> <span style="display:none">isDatabase</span> <span style="display:none">hasCancerType::C00-C97: All cancer types</span> <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> <span style="display:none">hasCancerType::C50: Breast cancer</span> <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> <span style="display:none">hasDataAccessInstructions::[https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_Antragstellung/info_antrag_node.html click here to access</span> <span style="display:none">Head</span> <span style="display:none">Neck</span> <span style="display:none">Oral</span> <span style="display:none">Oral cavity</span> <span style="display:none">Pharynx</span> <span style="display:none">Pharyngeal</span> <span style="display:none">Tongue</span> <span style="display:none">Lingual</span> <span style="display:none">Nasal cavity</span> <span style="display:none">Nasal</span> <span style="display:none">Sinonasal</span> <span style="display:none">Sinus</span> <span style="display:none">Sinuses</span> <span style="display:none">Paranasal sinuses</span> <span style="display:none">Ear</span> <span style="display:none">Mandible</span> <span style="display:none">Maxilla</span> <span style="display:none">Jaw</span> <span style="display:none">Esophageal</span> <span style="display:none">Gastric</span> <span style="display:none">Intestinal</span> <span style="display:none">Bowel</span> <span style="display:none">Colorectal</span> <span style="display:none">Appendix</span> <span style="display:none">Appendiceal</span> <span style="display:none">Duodenum</span> <span style="display:none">Jejunum</span> <span style="display:none">Ileum</span> <span style="display:none">Anal</span> <span style="display:none">Perianal</span> <span style="display:none">Hepatic</span> <span style="display:none">Biliary</span> <span style="display:none">Hepatobiliary</span> <span style="display:none">Pulmonary</span> <span style="display:none">Thorax</span> <span style="display:none">Thoracic</span> <span style="display:none">Chest</span> <span style="display:none">Mediastinal</span> <span style="display:none">Pleural</span> <span style="display:none">Cutaneous</span> <span style="display:none">Dermal</span> <span style="display:none">Epidermal</span> <span style="display:none">Subcutaneous</span> <span style="display:none">Skeletal</span> <span style="display:none">Osseous</span> <span style="display:none">Chondral</span> <span style="display:none">Extremity</span> <span style="display:none">Axilla</span> <span style="display:none">Axillary</span> <span style="display:none">Mammary</span> <span style="display:none">Cervical</span> <span style="display:none">Uterine</span> <span style="display:none">Endometrial</span> <span style="display:none">Ovarian</span> <span style="display:none">Tubal</span> <span style="display:none">Fallopian</span> <span style="display:none">Vaginal</span> <span style="display:none">Vulvar</span> <span style="display:none">Adnexal</span> <span style="display:none">Renal</span> <span style="display:none">Urothelial</span> <span style="display:none">Ureteral</span> <span style="display:none">Urethral</span> <span style="display:none">Prostatic</span> <span style="display:none">Testicular</span> <span style="display:none">Penile</span> <span style="display:none">Ocular</span> <span style="display:none">Orbital</span> <span style="display:none">Retinal</span> <span style="display:none">Optic nerve</span> <span style="display:none">Meninges</span> <span style="display:none">Meningeal</span> <span style="display:none">Cerebral</span> <span style="display:none">Cerebellar</span> <span style="display:none">Brainstem</span> <span style="display:none">Lymphatic</span> <span style="display:none">Lymphoid</span> <span style="display:none">Lymphoma</span> <span style="display:none">Hematologic</span> <span style="display:none">Hematopoietic</span> <span style="display:none">Myeloma</span> <span style="display:none">Plasma cell</span> <span style="display:none">Diaphragm</span> <span style="display:none">Peripheral nerve</span> <span style="display:none">Heart</span> <span style="display:none">Cardiac</span> <span style="display:none">Endocrine</span>
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