Database: Croatian National Cancer Registry (Croatia): Difference between revisions

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(Created page with "{{#subobject:Croatian National Cancer Registry |dct:title=Croatian National Cancer Registry |datatype=registry }} '''Primary purpose:''' Register new cancer cases and provide data on incidence, prevalence, and survival in Croatia. '''Sponsor, manager or home institution:''' Croatian Institute of Public Health. '''Type of information:''' For patients: sex, date of birth, age at diagnosis, place of residence, vital status, date of death. For tumors: date of cancer dia...")
 
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{{#subobject:Croatian National Cancer Registry
|dct:title=Croatian National Cancer Registry
|datatype=registry
}}
'''Primary purpose:''' Register new cancer cases and provide data on incidence, prevalence, and survival in Croatia.
'''Primary purpose:''' Register new cancer cases and provide data on incidence, prevalence, and survival in Croatia.


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'''Date Range:''' 1959 onwards [https://ghdx.healthdata.org/organizations/croatian-national-cancer-registry].
'''Date Range:''' 1959 onwards [https://ghdx.healthdata.org/organizations/croatian-national-cancer-registry].


'''Cancer Areas of Interest:''' All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS tumors.
'''Cancer Areas of Interest:''' All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS tumors [https://www.hzjz.hr/wp-content/uploads/2017/01/Bilten-Incidencija-raka-u-Hrvatskoj-2020.-godine.pdf].


'''Data access:''' Partially publicly available [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/publikacije-odjel-za-maligne-bolesti/]. Instructions to request data for restricted content [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/].
'''Data access:''' Partially publicly available [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/publikacije-odjel-za-maligne-bolesti/]. Instructions to request data for restricted content [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/].


'''Contact information:''' Information [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/].
'''Contact information:''' Information [https://www.hzjz.hr/sluzba-epidemiologija-prevencija-nezaraznih-bolesti/odjel-za-maligne-bolesti/].

Revision as of 17:37, 11 November 2023

Primary purpose: Register new cancer cases and provide data on incidence, prevalence, and survival in Croatia.

Sponsor, manager or home institution: Croatian Institute of Public Health.

Type of information: For patients: sex, date of birth, age at diagnosis, place of residence, vital status, date of death. For tumors: date of cancer diagnosis, cancer diagnosis (ICD-10 and ICD-O-3), basis of diagnosis, morphological diagnosis (ICD-O-3), stage at diagnosis, grade.

Source of Information: Hospital report forms, primary care report forms, pathology and cytology reports, and death certificates. Additional data sources include hospital discharge diagnoses and outpatient visit diagnoses.

Data level: Patient level.

Number of Records: >500,000 cancer incidence diagnoses (since 2001).

Date Range: 1959 onwards [1].

Cancer Areas of Interest: All cancers except non-melanoma skin cancer (C44), including carcinoma in situ and benign and borderline CNS tumors [2].

Data access: Partially publicly available [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].