Database: Socialstyrelsen Cancer Registry (Sweden): Difference between revisions
(Created page with "{{#subobject:Socialstyrelsen Cancer Registry |dct:title=Socialstyrelsen Cancer Registry |datatype=registry }} '''Sponsor, manager or home institution:''' Socialstyrelsen. '''Primary purpose:''' To map the occurrence and change of cancer diseases over time. '''Type of information:''' Data Dictionary: Socialstyrelsen Cancer Registry. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelfo...") |
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'''Sponsor, manager or home institution:''' [[dataOwner::Socialstyrelsen]]. | |||
'''Sponsor, manager or home institution:''' Socialstyrelsen. | |||
'''Primary purpose:''' To map the occurrence and change of cancer diseases over time. | '''Primary purpose:''' To map the occurrence and change of cancer diseases over time. | ||
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'''Type of information:''' [[Data Dictionary: Socialstyrelsen Cancer Registry]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-cancerregistret.xls]. | '''Type of information:''' [[Data Dictionary: Socialstyrelsen Cancer Registry]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-cancerregistret.xls]. | ||
'''Available type of information''': | '''Available type of information''': [[availableVariable::number of diagnostics]]; Cases per 100,000; [[availableVariable::cancer incidence]]; [[availableVariable::age]]; [[availableVariable::sex]]; [[availableVariable::type of cancer]], and [[availableVariable::year]]. | ||
'''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually. | '''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually. | ||
'''Data level:''' | '''Data level:''' [[dataLevel::patient level]]. | ||
'''Available data level:''' | '''Available data level:''' [[availableDataLevel::regional level]] and [[availableDataLevel::national level]]. | ||
'''Number of Records:''' 60,000 cases registered every year [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register]. | '''Number of Records:''' 60,000 cases registered every year [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register]. | ||
'''Date Range:''' 1970 onwards. | '''Date Range:''' [[dataStart::1970]] [[dataEnd::onwards]]. | ||
'''Cancer Areas of Interest:''' | '''Cancer Areas of Interest:''' [[hasCancerAreasList::neoplasms (C00-D48)]]. | ||
'''Data access:''' | '''Data access:''' [[dataAvailability::partially publicly available]] [https://sdb.socialstyrelsen.se/if_can/val.aspx]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://bestalladata.socialstyrelsen.se/]]]. | ||
'''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/]. | '''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/]. | ||
Revision as of 22:16, 15 November 2023
Sponsor, manager or home institution: Socialstyrelsen.
Primary purpose: To map the occurrence and change of cancer diseases over time.
Type of information: Data Dictionary: Socialstyrelsen Cancer Registry. Full list of variables [1].
Available type of information: number of diagnostics; Cases per 100,000; cancer incidence; age; sex; type of cancer, and year.
Source of Information: The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.
Data level: patient level.
Available data level: regional level and national level.
Number of Records: 60,000 cases registered every year [2].
Date Range: 1970 onwards.
Cancer Areas of Interest: neoplasms (C00-D48).
Data access: partially publicly available [3]. Instructions to request data for restricted content [4].
Contact information: Information [5].
