Database: National Register of Cancer (RNC) (Luxembourg): Difference between revisions
(Created page with "{{#subobject:National Register of Cancer (RNC) |dct:title=National Register of Cancer (RNC) |datatype=registry }} [https://www.rnc.lu/] '''Sponsor, manager or home institution:''' The National Minister of Health and the Center of Expertise in Public Health (Department of Population Health of the Luxembourg Institute of Health). '''Primary purpose:''' Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg terr...") |
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[https://www.rnc.lu/] | [https://www.rnc.lu/] | ||
'''Sponsor, manager or home institution:''' The National Minister of Health and the Center of Expertise in Public Health (Department of Population Health of the Luxembourg Institute of Health). | '''Sponsor, manager or home institution:''' [[dataOwner::The National Minister of Health]] and [[dataOwner::the Center of Expertise in Public Health (Department of Population Health of the Luxembourg Institute of Health)]]. | ||
'''Primary purpose:''' Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance. | '''Primary purpose:''' Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance. | ||
'''Type of information:''' [[Data Dictionary RNC - Luxembourg]]. | '''Type of information:''' [[hasDataDictionary::Data Dictionary RNC - Luxembourg]]. | ||
'''Available type of information:''' Crude incidence tax by 100,000 inhabitants per year; Standardized rate for the European population by 100,000 inhabitants; Year; Cumulative risk of cancer before 65 years; Cumulative risk of cancer before 75 years; Distribution of new cases of cancer; | '''Available type of information:''' Crude [[availableVariable::cancer incidence]] tax by 100,000 inhabitants per [[availableVariable::year]]; Standardized rate for the European population by 100,000 inhabitants; Year; Cumulative risk of cancer before 65 years; Cumulative risk of cancer before 75 years; Distribution of new cases of cancer; [[availableVariable::age]] group; % Relative frequency of new cases of the 10 main [[availableVariable::type of cancer|tumor locations]]; [[availableVariable::sex]]. | ||
'''Source of Information:''' Main sources - Hospital Cancer Registries, and the National Health Laboratory; Auxiliary sources - National cancer screening programs (breast cancer, colorectal, other national cancer screening programs), Social Security Medical Control, the National Health Fund, the Common Health Insurance Scheme of the European Communities (JSIS), the Directorate of Health: Death certificates, Civil Registry, Private medical analysis laboratories. | '''Source of Information:''' Main sources - Hospital Cancer Registries, and the National Health Laboratory; Auxiliary sources - National cancer screening programs (breast cancer, colorectal, other national cancer screening programs), Social Security Medical Control, the National Health Fund, the Common Health Insurance Scheme of the European Communities (JSIS), the Directorate of Health: Death certificates, Civil Registry, Private medical analysis laboratories. | ||
'''Data level:''' | '''Data level:''' [[dataLevel::patient level]]. | ||
'''Available data level:''' | '''Available data level:''' [[availableDataLevel::national level]]. | ||
'''Number of Records:''' | '''Number of Records:''' [[numberRecords::unknown]]. | ||
'''Date Range:''' 2013 onwards. | '''Date Range:''' [[dataStart::2013]] [[dataEnd::onwards]]. | ||
'''Cancer Areas of Interest:''' All primary in situ and invasive tumors are recorded, except for non-melanoma skin cancers; For benign tumors or tumors with uncertain evolution, only the following tumors are recorded (benign tumors with uncertain evolution of the central nervous system (C70, C71 et C72) and intracerebral endocrine glands (C75.1 à C75.5); thymomas (C37.9); ovarian's borderline tumors (C56.9); invasive hydatidiform mole (placenta tumor) (C58.9); pTa non-invasive papillary carcinoma of the bladder (C67.*), urethra (C68.0), ureters (C66.9) and renal pelvis (C65.9); low-grade mucinous neoplasia limited to the appendix (LAMN); gastro-intestinal stroma tumors). High-grade intraepithelial neoplasia of the cervix, vulva, vagina, penis, prostate, and anus are also recorded. | '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: National Register of Cancer (RNC)]]. All primary in situ and invasive tumors are recorded, except for non-melanoma skin cancers; For benign tumors or tumors with uncertain evolution, only the following tumors are recorded (benign tumors with uncertain evolution of the central nervous system (C70, C71 et C72) and intracerebral endocrine glands (C75.1 à C75.5); thymomas (C37.9); ovarian's borderline tumors (C56.9); invasive hydatidiform mole (placenta tumor) (C58.9); pTa non-invasive papillary carcinoma of the bladder (C67.*), urethra (C68.0), ureters (C66.9) and renal pelvis (C65.9); low-grade mucinous neoplasia limited to the appendix (LAMN); gastro-intestinal stroma tumors). High-grade intraepithelial neoplasia of the cervix, vulva, vagina, penis, prostate, and anus are also recorded. | ||
'''Data access:''' | '''Data access:''' [[dataAvailability::partially publicly available]] in reports > epidemiological factsheets [https://www.rnc.lu/Publications]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.rnc.lu/M%c3%a9thodologie/Diffusion-des-r%c3%a9sultats]]], in "Annex 2" of the document "Procedures for disclosure of results". | ||
'''Contact information:''' Information [https://www.rnc.lu/Contact]. | '''Contact information:''' Information [https://www.rnc.lu/Contact]. | ||
Revision as of 17:03, 24 November 2023
Sponsor, manager or home institution: The National Minister of Health and the Center of Expertise in Public Health (Department of Population Health of the Luxembourg Institute of Health).
Primary purpose: Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance.
Type of information: Data Dictionary RNC - Luxembourg.
Available type of information: Crude cancer incidence tax by 100,000 inhabitants per year; Standardized rate for the European population by 100,000 inhabitants; Year; Cumulative risk of cancer before 65 years; Cumulative risk of cancer before 75 years; Distribution of new cases of cancer; age group; % Relative frequency of new cases of the 10 main tumor locations; sex.
Source of Information: Main sources - Hospital Cancer Registries, and the National Health Laboratory; Auxiliary sources - National cancer screening programs (breast cancer, colorectal, other national cancer screening programs), Social Security Medical Control, the National Health Fund, the Common Health Insurance Scheme of the European Communities (JSIS), the Directorate of Health: Death certificates, Civil Registry, Private medical analysis laboratories.
Data level: patient level.
Available data level: national level.
Number of Records: unknown.
Date Range: 2013 onwards.
Cancer Areas of Interest: Cancer Areas of Interest: National Register of Cancer (RNC). All primary in situ and invasive tumors are recorded, except for non-melanoma skin cancers; For benign tumors or tumors with uncertain evolution, only the following tumors are recorded (benign tumors with uncertain evolution of the central nervous system (C70, C71 et C72) and intracerebral endocrine glands (C75.1 à C75.5); thymomas (C37.9); ovarian's borderline tumors (C56.9); invasive hydatidiform mole (placenta tumor) (C58.9); pTa non-invasive papillary carcinoma of the bladder (C67.*), urethra (C68.0), ureters (C66.9) and renal pelvis (C65.9); low-grade mucinous neoplasia limited to the appendix (LAMN); gastro-intestinal stroma tumors). High-grade intraepithelial neoplasia of the cervix, vulva, vagina, penis, prostate, and anus are also recorded.
Data access: partially publicly available in reports > epidemiological factsheets [2]. Instructions to request data for restricted content [3], in "Annex 2" of the document "Procedures for disclosure of results".
Contact information: Information [4].
