Database: DHIR National Cancer Register (Malta)

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Sponsor, manager or home institution: Directorate for Health Information and Research; Ministry for Health.

Primary purpose: The primary purpose of the cancer registry is to collect data on cancer diagnoses, provide surveillance to examine trends, and facilitate epidemiological research to uncover the causes of cancer and evaluate the effects of control measures.

Type of information: Variables: DHIR National Cancer Register [1].

Available type of information: All cancer incidence (ICD-O-3 C00-C80); All deaths from Cancer (diagnosis: all ICD-10 codes); number of deaths, Site; sex; year; age [2].

Source of Information: Clinical notification; Copy of histology and cytology report; Copy of autopsy report; Death certificates; New referrals to the Oncology department.

Data level: patient level.

Available data level: national level.

Number of Records: About 1,200 cases per year.

Date Range: Unknown.

Available data range: 2007 to 2019.

Cancer Areas of Interest: All malignant neoplasms; All ‘in-situ’ neoplasms (including all levels of CIN); Some neoplasms of uncertain or unknown behaviour (eg: Myelodyplastic Syndrome); Certain benign tumours (mainly those arising in the CNS).

Data access: partially publicly available [3]. Instructions to request data for restricted content [4].

Contact information: Information [5].