Database: Death registry (CepiDC) (France): Difference between revisions

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'''Primary purpose:''' A complete registry of medical causes of death in France.
'''Primary purpose:''' A complete registry of medical causes of death in France.


'''Sponsor, manager, or home institution:''' Center for Epidemiology on the Medical Causes of Death (CépiDC) [https://www.cepidc.inserm.fr/qui-sommes-nous/le-cepidc].
'''Sponsor, manager, or home institution:''' [[dataOwner::Center for Epidemiology on the Medical Causes of Death (CépiDC)]] [https://www.cepidc.inserm.fr/qui-sommes-nous/le-cepidc].


'''Data level:''' Patient level. Open data is available at the Regional and National level.
'''Type of information:''' Complete database: Patient name, address, date of birth, sex, date and time of death, medical component that includes the sequence of morbid events that led to death from the immediate cause to the underlying cause of death as well as the comorbidities, factors or physiological conditions that contributed to the death but not directly involved in the sequence of events described before.  


'''Collected information:''' Complete database: Patient name, address, date of birth, sex, date and time of death, medical component that includes the sequence of morbid events that led to death from the immediate cause to the underlying cause of death as well as the comorbidities, factors or physiological conditions that contributed to the death but not directly involved in the sequence of events described before. Open database: Sex, age, and cause of death.
'''Available type of information:''' [[availableVariable::sex]], [[availableVariable::age]], and [[availableVariable::causes of death]].


'''Number of records:''' Unknown.
'''Data source:''' Death certificates issued in the country.
 
'''Number of records:''' [[numberRecords::unknown]].
 
'''Cancer areas of interest:''' [[hasCancerAreasList::neoplasms (C00-D49)]].


'''Data source:''' Death certificates issued in the country.
'''Data level:''' [[dataLevel::patient level]].


'''Cancer areas of interest:''' Malignant tumor of the lip, malignant tumor oral cavity and pharynx; malignant tumor of the esophagus; of the stomach; malignant colon tumor; malignant tumor of the rectum and anus; malignant neoplasm of the liver and intrahepatic bile ducts; malignant tumor of the pancreas; malignant tumor of the larynx, trachea, bronchi, and lung; malignant melanoma of the skin; malignant breast tumor; malignant tumor of the cervix; malignant tumor of other parts of the uterus; malignant tumor of the ovary; malignant tumor of the prostate; kidney malignancy; malignant bladder tumor; malignant neoplasm of lymphatic and hematopoietic tissues; other malignant tumors; other tumors.
'''Available data level:''' [[availableDataLevel::regional level]].


'''Data access:''' Partially publicly available [http://cepidc-data.inserm.fr/cgi-bin/broker.exe]. Instructions to request data for restricted content [https://www.cepidc.inserm.fr/le-snds/les-conditions-dacces-aux-donnees-du-snds].
'''Data access:''' [[dataAvailability::partially publicly available]] [http://cepidc-data.inserm.fr/cgi-bin/broker.exe]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.cepidc.inserm.fr/le-snds/les-conditions-dacces-aux-donnees-du-snds]]].


'''Contact information:''' Information [https://www.cepidc.inserm.fr/node/add/f_contact].
'''Contact information:''' Information [https://www.cepidc.inserm.fr/node/add/f_contact].

Revision as of 15:36, 6 December 2023

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Primary purpose: A complete registry of medical causes of death in France.

Sponsor, manager, or home institution: Center for Epidemiology on the Medical Causes of Death (CépiDC) [1].

Type of information: Complete database: Patient name, address, date of birth, sex, date and time of death, medical component that includes the sequence of morbid events that led to death from the immediate cause to the underlying cause of death as well as the comorbidities, factors or physiological conditions that contributed to the death but not directly involved in the sequence of events described before.

Available type of information: sex, age, and causes of death.

Data source: Death certificates issued in the country.

Number of records: unknown.

Cancer areas of interest: neoplasms (C00-D49).

Data level: patient level.

Available data level: regional level.

Data access: partially publicly available [2]. Instructions to request data for restricted content [3].

Contact information: Information [4].