Luxembourg: Difference between revisions

From Beacon
Line 14: Line 14:
'''Primary purpose:''' Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance.
'''Primary purpose:''' Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance.


'''Type of information:''' [[Type of information - RNC Luxembourg]]
'''Type of information:''' [[Type of information RNC - Luxembourg]]


'''Available type of information:'''  
'''Available type of information:'''  

Revision as of 19:07, 18 May 2023

Cancer Centers

Healthcare System

Administrative or Claims Data

Registries

Database: National Register of Cancer (RNC)

[1]

Sponsor, manager or home institution: The National Minister of Health and the Center of Expertise in Public Health (Department of Population Health of the Luxembourg Institute of Health).

Primary purpose: Collects information from all the new cases of cancer that have been diagnosed and/or treated in the Luxembourg territory (includes information about residents and non-residents of the country). With this data, it is possible to monitor and enhance the quality of care and epidemiological surveillance.

Type of information: Type of information RNC - Luxembourg

Available type of information:

Source of Information: Main sources - Hospital Cancer Registries, and the National Health Laboratory; Auxiliary sources - National cancer screening programs (breast cancer, colorectal, other national cancer screening programs), Social Security Medical Control, the National Health Fund, the Common Health Insurance Scheme of the European Communities (JSIS), the Directorate of Health: Death certificates, Civil Registry, Private medical analysis laboratories.

Data level: Patient-level.

Available data level:

Number of Records:

Date Range: 2013 onwards.

Cancer Areas of Interest: Cancer areas of interest - RNC Luxembourg All primary in situ and invasive tumors are recorded, except for non-melanoma skin cancers; For benign tumors or tumors with uncertain evolution, only the following tumors are recorded (benign tumors with uncertain evolution of central nervous system (C70, C71 et C72) and intracerebral endocrine glands (C75.1 à C75.5); thymomas (C37.9); ovarians borderline tumors (C56.9); invasive hydatidiform mole (placenta tumor) (C58.9); pTa non-invasive papillary carcinoma of bladder (C67.*), urethra (C68.0), ureters (C66.9) and renal pelvis (C65.9); low-grade mucinous neoplasia limited to the appendix (LAMN); gastro-intestinal stroma tumors). High-grade intraepithelial neoplasia of the cervix, vulva, vagina, penis, prostate, and anus are also recorded.

Data access: To request access to restricted data, it is necessary to follow the procedures indicated in "Annex 2" of the document "Procedures for disclosure of results", available on this website.

Open data access:

Information/Contact for data request: Contact information

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Cancer-related Patient Associations and Resources