Luxembourg

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Registries

Database: National Register of Cancer (RNC)

Database: Mortality by cause of death

Clinical Practices Guidelines

Intitut National du Cancer Guidelines

Latest Policymaking Initiatives

Reports: National Cancer Registry

Sponsor, manager or home institution: Registre National du Cancer; Institut National du Cancer.

Primary purpose: To establish and maintain the National Cancer Registry in Luxembourg, which serves various objectives such as epidemiological surveillance, evaluating public health actions, assessing the quality of cancer care, monitoring the Cancer Plan, and supporting research.

Type of information: Incidence and mortality for the main tumor locations; Evolution of the annual incidence of cancer tumors; Distribution of the stage of extension at the time of diagnosis; Number of screening mammograms performed; Screenings participation rate; Breast cancers (C50) detected through organized screening; Number of people having performed colonoscopies; Number of lesions detected; Results of cytological examinations of the cervix; Cervical specimen staging; Evolution of the 10 main causes of hospitalization of palliative care patients; Evolution of dependent people benefiting from a palliative care agreement; Number of Multidisciplinary Consultation Meetings (treatments); Evolution of Multidisciplinary Consultation Meetings.

Data level: National level.

Access to information: Access Information [1].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [2].

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology.

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Cancer Treatment During the COVID-19 Pandemic; Immunotherapy Side Effects and Their Management; Personalized Medicine; Survival; Colorectal Cancer; Endometrial Cancer; Stomach Cancer; Gliomas; AML; CML; Follicular Lymphoma; Bone Sarcomas; Non-Small Cell Lung Cancer (NSCLC); Head and Neck Cancer; Soft Tissue Sarcomas.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [3].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [4].