Database: ZfKD Cancer Registry (Germany): Difference between revisions
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'''Sponsor, manager or home institution:''' [[dataOwner::Zentrum für Krebsregisterdaten]]. | '''Sponsor, manager or home institution:''' [[dataOwner::Zentrum für Krebsregisterdaten]]. | ||
'''Type of information:''' [[databaseStructure::longitudinal]]. To see the full data dictionary [https://github.com/robert-koch-institut/Bundesweiter_klinischer_Krebsregisterdatensatz-Datenschema_und_Klassifikationen/blob/main/oBDS_v3.0.0.8a_RKI_Schema.xlsx click here to learn more]. | '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::sex]]; [[hasVariable::age]]; [[hasVariable::diagnosis]]; [[hasVariable::year]]; [[hasVariable::place of residence]]; [[hasVariable::medical procedures]]; [[hasVariable::tumor histology]]; [[hasVariable::tumor staging]]; [[hasVariable::primary tumor localization]]; [[hasVariable::check-up examinations]]. To see the full data dictionary [https://github.com/robert-koch-institut/Bundesweiter_klinischer_Krebsregisterdatensatz-Datenschema_und_Klassifikationen/blob/main/oBDS_v3.0.0.8a_RKI_Schema.xlsx click here to learn more]. | ||
'''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer prevalence]], [[availableVariable::causes of death]], [[availableVariable::cancer survival]], [[availableVariable::number of deaths]], case numbers, crude rate, and age-standardized rate, filtered by [[availableVariable::diagnosis]], [[availableVariable::age]], [[availableVariable::sex]], and [[availableVariable::year]]. | '''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer prevalence]], [[availableVariable::causes of death]], [[availableVariable::cancer survival]], [[availableVariable::number of deaths]], case numbers, crude rate, and age-standardized rate, filtered by [[availableVariable::diagnosis]], [[availableVariable::age]], [[availableVariable::sex]], and [[availableVariable::year]]. | ||
Revision as of 17:15, 6 June 2024
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Type of database: registry.
Primary purpose: Collect and compile epidemiological cancer data from state cancer registries at the federal level.
Sponsor, manager or home institution: Zentrum für Krebsregisterdaten.
Type of information: longitudinal. sex; age; diagnosis; year; place of residence; medical procedures; tumor histology; tumor staging; primary tumor localization; check-up examinations. To see the full data dictionary click here to learn more.
Available type of information: cancer incidence, cancer prevalence, causes of death, cancer survival, number of deaths, case numbers, crude rate, and age-standardized rate, filtered by diagnosis, age, sex, and year.
Source of Information: Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries. Click here to learn more.
Data level: patient level.
Available data level: national level.
Number of records: unknown.
Date range: 1999 onwards.
Cancer areas of interest: C00-C97: All cancer types. See the full list of cancer types: ZfKD Cancer Registry. Click here to learn more.
Data access: partially publicly available. Click here to access. Data can be downloaded in the formats XLS and CSV. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
