Data dictionary - Netherlands Cancer Registry (NKR)

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There are different types of variables available according to type of tumor and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumor, visit the data source.

Patient Records

Date of birth

Age at diagnosis

Sex

Country of birth

Date of death

Vital status with date

Patient number in the institution

Menopausal status at diagnosis

Postcode figures

Tumor Data

Diagnosis date

Basis for diagnosis

Topography (incl. sublocalization/lateralization)

Morphology (incl. behavior/degree of differentiation)

Topography metastasis (incl. sublocalization)

Clinical TNM stage

Pathological TNM stage

Multifocality tumor

Pathological size of the tumor (mm)

Estrogen receptor status

Estrogen receptor value

Progesterone receptor status

Value of progesterone receptor

HER2 status

Technique used for HER2 determination

Number of regional lymph nodes examined

Number of positive regional lymph nodes

Presence of DCIS component next to invasive tumor

BI-RADS classification

Tumor palpability

Breast print rash

Result of oncotype DX

Treatment Details

Surgery

Date of surgery

Surgery discharge date

Tumor is an incidental finding during surgery for another indication

Hospital surgery

Direct reconstruction

Date of immediate reconstruction

Direct reconstruction technique

Hospital direct reconstruction

Axillary dissection performed

Date of axillary lymph node dissection

Hospital axillary dissection

Basic axillary dissection performed

Date of basal axillary lymph node dissection

Hospital of basal axillary dissection

Radiotherapy

Start/stop date of radiotherapy

Type of external radiotherapy

Hospital radiotherapy

Systemic chemotherapy

Start/stop date of systemic chemotherapy

Hospital systemic chemotherapy

Systemic hormonal therapy

Start date of systemic hormonal therapy

Hospital systemic hormonal therapy

Systemic target therapy

Start-stop date of systemic target therapy

Hospital systemic target therapy

Active surveillance

Radicality DCIS component surgery

Radicality invasive component surgery

No radiotherapy after breast-conserving treatment

Reason for no radiotherapy after breast-conserving treatment

Complication during/after surgery

Complication during/after systemic chemotherapy

Follow up Data

Recurrences within 5 years of diagnosis

Follow-up local recurrence

Date of follow-up local recurrence

Localization of follow-up local recurrence

Basis for diagnosis of follow-up local recurrence

Pathological tumor size (mm) follow-up local recurrence

Follow-up regional recurrence

Date of follow-up for regional recurrence

Localization of follow-up regional recurrence

Basis for diagnosis of follow-up regional recurrence

Number of regional lymph nodes examined for follow-up regional recurrence

Number of positive lymph nodes follow-up regionally

Follow-up metastasis

Date of follow-up metastasis

Basis for diagnosis follow-up metastasis

Topography (incl. sublocalization/lateralization) follow-up metastasis

Number of follow-up metastases

Treatment follow-up

Date of last contact follow-up

Relapses within 10 years of diagnosis

Follow-up local recurrence

Date of follow-up local recurrence

Follow-up regional recurrence

Date of follow-up for regional recurrence

Follow-up metastasis

Date of follow-up metastasis

Treatment follow-up

Relapses due to project

Follow-up local recurrence

Localization of local recurrence

Basis for diagnosis of local recurrence

Date of follow-up local recurrence

Pathological tumor size (mm) follow-up local recurrence

Follow-up regional recurrence

Localization of regional recurrence

Basis for diagnosis of regional recurrence

Date of follow-up for regional recurrence

Number of regional lymph nodes examined for follow-up regional recurrence

Number of positive lymph nodes follow-up regional recurrence

Follow-up metastasis

Localization of metastasis

Basis for diagnosis of metastasis

Date of follow-up metastasis

Number of follow-up metastases

ER, PR, Her2 recurrence or metastasis

Treatment follow-up

Risk Factors

Comorbidity

History of breast surgery

Smoking status

Pregnancy at diagnosis

Performance status

Weight

Length

Incidence year of previous/later malignancies

Tumor type previous/later malignancies

Process Data

Tumor detected after referral for population screening

Reason for diagnosis

Gene mutation research conducted

Date of gene mutation research

Hospital gene mutation research

MRI performed

MRI date

Hospital MRI

Ultrasound-guided puncture and/or biopsy performed in the armpit

Date of ultrasound-guided puncture and/or biopsy in the armpit

Result of ultrasound-guided puncture and/or biopsy in armpit

Hospital ultrasound-guided puncture and/or biopsy in the armpit

Post-therapeutic MDO performed

Date post-therapeutic MDO

Hospital post-therapeutic MDO

Pretherapeutic MDO performed

Date of pre-therapeutic MDO

Hospital pretherapeutic MDO

Sentinel lymph node procedure performed

Date of sentinel procedure

Result of sentinel procedure

Hospital sentinel procedure

Tumor localization procedure

MARI procedure performed

Date of MARI procedure

Result of MARI procedure

Hospital MARI procedure

Date of first consultation with plastic surgeon for ablation

Date of first consultation with radiotherapist for pre-surgical therapy

Hospital of first contact regarding malignancy

Date of first consultation in hospital

Date of first consultation with practitioner at second hospital

Participation in clinical scientific research

Operation with plastic surgeon