Data Dictionary: ZfkD Cancer Registry (Germany): Difference between revisions

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Source: [https://www.krebsdaten.de/Krebs/DE/Content/Forschungsdaten/Informationen_datensatz/info_datensatz_node.html].


{| class="wikitable"
{| class="wikitable"
! Split !! Explanation
! Variable (English) !! Description !! Value range
|-
|-
| variables || Elements in the XML scheme that do not branch further and thus contain values
| Date of birth || Patient's date of birth represented in international format YYYY-MM-DD.  || Date YYYY-MM-DD
|-
|-
| Belongs to || Overarching element in the XML scheme. For reasons of clarity, however, not all levels are shown in the tree
| Date of death or last known alive date || Date of death (imputed) or last known alive date. For DCO cases, date of death = incidence date. || Date YYYY-MM-DD
|-
|-
| OBDS module || Provides the reference to the oncological basic data set (OBDS) or the corresponding diagnosis -specific module
| Other cause of death, ICD-10 code || Other cause(s) of death as reported to the registry, ICD-10 code || ICD-10 code
|-
|-
| Cardinality || "Here in ""1 - is listed exactly once"" and ""n - can occur several times"" within the overriding element"
| Other cause of death, ICD-10 version || ICD-10 version used to encode other cause(s) of death || ICD-10 version
|-
|-
| Optional || "Variables with the ""N"" value are mandatory in the transmission. It is not taken into account here whether the variables each have a form like ""unknown"" or similar. exhibit"
| Diagnosis date || Date of incidence represented in international format YYYY-MM-DD. For DCO cases, incidence date = date of death. || Date YYYY-MM-DD
|-
|-
| Value range || A reference to the value area is mentioned if deviating from OBDS
| Year of incidence || Year of incidence. For DCO cases, year of incidence is equal to year of death. || Date YYYY
|-
|-
| agreement || Agreements on this context can be found on the website
| Age at diagnosis || Number of years between date of birth and date of diagnosis || Age (years)
|-
|-
| annotation || "The data record consists of the elements ""person"", ""tumor"" and ""primary diagnosis"", each of which is present in each individual data set, whereby several tumors can be assigned to one person. In contrast, the elements ""operation"", ""systemic therapy"", ""radiation therapy"" and ""consequential event"" are optionally available in the data set. These elements can also be used several times for the same disease case, which enables also to map complex therapy and illness courses. The actual variables containing the evaluable information (column B) are each assigned to one of these elements (column C)."
| Place of residence at diagnosis || "Place of residence at diagnosis, represented by 5-digit area code (""Kreiskennziffer"")" || 5-digit area code
|}
 
{| class="wikitable"
! No !! variable !! Surname !! Belongs to !! OBDS/module !! Cardinality !! Optional !! Value range !! agreement
|-
|-
| 1 || Gender ||  || person || 3.9 || 1 || n ||  ||  
| Place of residence at diagnosis || "Place of residence at diagnosis, represented by 2-digit area code (""Bundesland"")" || 2-digit area code
|-
|-
| 2 || birth date || || person || 3.10 || 1 || n || moon ||
| Tumour diagnosis, ICD-10 code || ICD-10 diagnostic code of tumour || ICD-10, 4-digit code
|-
|-
| 3 || Died (vital status) || || person || new || 1 || n || Died yes/no || #Vitalstatus
| Tumour diagnosis, ICD-10 version || ICD-10 version used to encode tumour diagnosis || ICD-10 version
|-
|-
| 4 || Date vital status ||  || person || new || 1 || n || moon ||  
| Topography of tumour, ICD-O-3 code || Tumour site represented by ICD-O-3 topography code || ICD-O-3 (topography section) 4-digit code
|-
|-
| 5 || The cause of death (official basic disorders) n. ICD code || || person || 20.3 || 1 || J ||  || #TODESULE
| Morphology of tumour, ICD-O-3 code || Morphology and behavior of tumour represented by 5-digit ICD-O-3 code. The fifth digit indicates tumour behavior (/0 benign; /1 uncertain; /2 carcinoma in situ; /3 malignant). || ICD-O-3 (morphology section), 5-digit code
|-
|-
| 6 || The cause of death (official basic disorders) n. ICD edition ||  || person || 20.4 || 1 || J ||  ||
| Number of lymph nodes examined || Number of lymph nodes that were examined for the presence of cancer cells || (n) = number of lymph nodes
|-
|-
| 7 || Further causes of death n. ICD code ||  || person || new || n || J ||  ||
| Number of lymph nodes affected || Number of lymph nodes that contain cancer cells || (n) = number of lymph nodes
|-
|-
| 8th || Further causes of death n. ICD version ||  || person || new || n || J ||  ||  
| cTNM: T || Describes the size of the primary tumour. Staging according to tumour-specific TNM. || T stage, tumour-specific
|-
|-
| 9 || Diagnostic datum ||  || Primary diagnosis || 5.6 || 1 || n || moon ||  
| cTNM: N || Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. || N stage, tumour-specific
|-
|-
| 10 || Place of residence (district) b. diagnosis ||  || Primary diagnosis || 3.15 || 1 || n || District index (5 digits) ||  
| cTNM: UICC Stage || UICC Stage according to TNM. Describes the anatomical extent of disease. || UICC stage, tumour-specific
|-
|-
| 11 || Diagnosis according to ICD code ||  || Primary diagnosis || 5.1 || 1 || n || four -digit ||
| pTNM: T || Describes the size of the primary tumour. Staging according to tumour-specific TNM. || T stage, tumour-specific
|-
|-
| 12 || Diagnosis according to ICD version ||  || Primary diagnosis || 5.2 || 1 || n ||  ||  
| pTNM: N || Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. || N stage, tumour-specific
|-
|-
| 13 || Localization (ICD-O) code ||  || Primary diagnosis || 5.4 || 1 || n ||  ||  
| pTNM: UICC stage || UICC Stage according to TNM. Describes the anatomical extent of disease. || UICC stage, tumour-specific
|-
|-
| 14 || Localization (ICD-O) version || || Primary diagnosis || 5.5 || 1 || J ||  ||
| Other classification system: name || Name and/or type of other classification(s) used || e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
|-
|-
| 15 || Morphology (ICD-O) code || || Primary diagnosis || 6.3 || 1 || n ||  || #Morphology [InlineCard]
| Other classification system: stage || Stage assigned based on other classification system || Stage
|-
|-
| 16 || Morphology (ICD-O) version (or Blue Book) ||  || Primary diagnosis || 6.4 || 1 || J ||  ||
| Survival time || Time interval between incidence date and death || (n) = number of days
|-
|-
| 17 || Grading ||  || Primary diagnosis || 6.6 || 1 || J ||  ||  
| Tumour size || Maximum diameter of invasive carcinoma (in mm) || (n) = tumour size in mm
|-
|-
| 18 || Number of lymph nodes examined ||  || Primary diagnosis || 6.7 || 1 || J ||  ||  
| DCIS size || Maximum diameter of ductal carcinoma in situ (in mm) || (n) = DCIS size in mm
|-
|-
| 19 || Number of affected lymph nodes ||  || Primary diagnosis || 6.8 || 1 || J ||  ||  
| PSA level || PSA level (ng/mL) || (n) = level in ng/mL
|-
|-
| 20 || CTNM version || || Primary diagnosis || 8.2 || 1 || J ||  || #Tnm- [inlineCard]
| PSA level date || Date of PSA blood test || Date YYYY-MM-DD
|-
|-
| 21 || CTNM-Y symbol ||  || Primary diagnosis || 8.3 || 1 || J ||  ||
| Gleason: primary grade || Primary Gleason grade || 1, 2, 3, 4 or 5
|-
|-
| 22 || CTNM-R-icon || || Primary diagnosis || 8.4 || 1 || J ||  ||
| Gleason: secondary grade || Secondary Gleason grade || 1, 2, 3, 4 or 5
|-
|-
| 23 || CTNM-A symbol ||  || Primary diagnosis || 8.5 || 1 || J ||  ||
| Gleason score || Gleason score || 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10
|-
|-
| 24 || CTNM-T ||  || Primary diagnosis || 8.9 || 1 || J ||  ||  
| Tumour thickness || Thickness of tumour (mm) || (n) = thickness in mm
|-
|-
| 25 || CTNM-N ||  || Primary diagnosis || 8.11 || 1 || J ||  ||  
| LDH level || LDH level (units per liter) || (n) = level in U/L
|-
|-
| 26 || CTNM-M ||  || Primary diagnosis || 8.12 || 1 || J ||  ||  
| Surgery date || Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. || Date YYYY-MM-DD
|-
|-
| 27 || CTNM-prefix t ||  || Primary diagnosis || 8.6 || 1 || J ||  ||  
| Surgery type || OPS code of surgery || OPS code
|-
|-
| 28 || CTNM-Prefix-N ||  || Primary diagnosis || 8.7 || 1 || J ||  ||  
| OPS version || OPS version used to encode surgery type || OPS version number
|-
|-
| 29 || CTNM-Prefix-M ||  || Primary diagnosis || 8.8 || 1 || J ||  ||
| Time to surgery || Number of days between diagnosis and surgery || (n) = number of days
|-
|-
| 30 || CTNM: M symbol ||  || Primary diagnosis || 8.10 || 1 || J ||  ||  
| Radiotherapy start date || Radiotherapy start date || Date YYYY-MM-DD
|-
|-
| 31 || CTNM: L-category ||  || Primary diagnosis || 8.13 || 1 || J ||  ||  
| Percutaneous radiotherapy - Stereotactic || Indicates if percutaneous radiotherapy (external beam radiotherapy) was applied using stereotactic techniques. || ST = stereotactic
|-
|-
| 32 || CTNM: V-category ||  || Primary diagnosis || 8.14 || 1 || J ||  ||  
| Percutaneous radiotherapy - Respiratory-gated || Indicates if percutaneous radiotherapy (external beam radiotherapy) was respiratory-gated. || 4D = respiratory-gated
|-
|-
| 33 || CTNM: PN category ||  || Primary diagnosis || 8.15 || 1 || J ||  ||
| Radiotherapy duration || Number of days between diagnosis and surgery || (n) = number of days
|-
|-
| 34 || CTNM: S category ||  || Primary diagnosis || 8.16 || 1 || J ||  ||  
| Time to radiotherapy || Time interval between incidence date and radiotherapy start date (days) || (n) = number of days
|-
|-
| 35 || C-TNM-Uicc ||  || Primary diagnosis || 8.17 || 1 || J ||  ||  
| Systemic therapy drug || Medication(s) used for systemic therapy. Multiple medications require separate entries. || Name or: ATC code + ATC version
|-
|-
| 36 || PTNM version ||  || Primary diagnosis || 8.2 || 1 || J ||  ||  
| Systemic therapy protocol type || Systemic therapy protocol name or code. || "Name or: protocol code
|-
|-
| 37 || Ptnm-Y symbol ||  || Primary diagnosis || 8.3 || 1 || J ||  ||
| Systemic therapy protocol || Systemic therapy protocol code. || Suggested guidance: https://plattform65c.atlassian.net/wiki/spaces/UMK/pages/15532519/Protokolle
|-
|-
| 38 || PTNM-R-icon ||  || Primary diagnosis || 8.4 || 1 || J ||  ||  
| Systemic therapy protocol || Systemic therapy protocol name || (name) = protocol name
|-
|-
| 39 || PTNM-A symbol ||  || Primary diagnosis || 8.5 || 1 || J ||  ||  
| Systemic therapy protocol || Systemic therapy protocol version || (version) = protocol version
|-
|-
| 40 || PTNM-T ||  || Primary diagnosis || 8.9 || 1 || J ||  ||  
| Systemic therapy start date || Systemic therapy start date || Date YYYY-MM-DD
|-
|-
| 41 || Ptnm-n ||  || Primary diagnosis || 8.11 || 1 || J ||  ||  
| Systemic therapy duration || Systemic therapy duration (days) || (n) = number of days
|-
|-
| 42 || PTNM-M ||  || Primary diagnosis || 8.12 || 1 || J ||  ||  
| Time to systemic therapy || Time interval between incidence date and systemic therapy start date (days) || (n) = number of days
|-
|-
| 43 || PTNM-Prefix-T ||  || Primary diagnosis || 8.6 || 1 || J ||  ||  
| Follow-up date || Date of most recent follow-up evaluation of tumour status || Date YYYY-MM-DD
|-
|-
| 44 || Ptnm-Prefix-N ||  || Primary diagnosis || 8.7 || 1 || J ||  ||  
| TNM: T || Describes the size of the primary tumour. Staging according to tumour-specific TNM. || T stage, tumour-specific
|-
|-
| 45 || PTNM-Prefix-M ||  || Primary diagnosis || 8.8 || 1 || J ||  ||  
| TNM: N || Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. || N stage, tumour-specific
|-
|-
| 46 || PTNM: M symbol || || Primary diagnosis || 8.10 || 1 || J ||  ||  
| TNM: UICC stage || UICC Stage at follow-up according to TNM. Describes the anatomical extent of disease. || UICC stage, tumour-specific
|-
|-
| 47 || PTNM: L-category || || Primary diagnosis || 8.13 || 1 || J ||  ||
| Other classification system: name || Name and/or type of other classification(s) used || e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
|-
|-
| 48 || PTNM: V-category ||  || Primary diagnosis || 8.14 || 1 || J ||  ||
| Other classification system: stage || Stage assigned based on other classification system || Stage
|-
{| class="wikitable"
| 49 || PTNM: PN category ||  || Primary diagnosis || 8.15 || 1 || J ||  ||
! Basis of diagnosis !! Describes how the tumour was identified !! "0 = death certificate only (DCO);
|-
| 50 || PTNM: S category ||  || Primary diagnosis || 8.16 || 1 || J ||  ||
|-
| 51 || ptnm-uicc ||  || Primary diagnosis || 8.17 || 1 || J ||  || #Uicc- [inlineCard]
|-
| 52 || Mestastases seat ||  || Primary diagnosis || 11.1 || n || J ||  || #Seat-the remote metastasis- (Age-primary diagnostic diagnosis [inlinecard])
|-
| 53 || Further classification: name ||  || Primary diagnosis || 9.2 || n || J ||  ||
|-
| 54 || Further classification: stage (expression) ||  || Primary diagnosis || 9.3 || n || J ||  ||  
|-
| 55 || Diagnostic protection ||  || Primary diagnosis || 5.7 || 1 || n || Like OBDS, additionally DCO and unknown || #Diagnosis protection
|-
| 56 || Side locals in paired organs ||  || Primary diagnosis || 5.8 || 1 || J ||  ||
|-
| 57 || Dcn ||  || Primary diagnosis || new || 1 || n || Yes No || #DCN- (Death Certificate Notified)
|-
| 58 || Survival time (distance diagnostic death) ||  || Primary diagnosis || new ||  || J || Number of days ||
|-
| 59 || Tumor size in mm (invasive) ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 60 || Tumor size in mm (DCIS) ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 61 || Prate therapeutic menopause status ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 62 || Hormone receptor status :: estrogen ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 63 || Hormone receptor status: progesterone ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 64 || Her2neu status ||  || Primary diagnosis || Chest module || 1 || J ||  ||
|-
| 65 || PSA value ||  || Primary diagnosis || Prostate module || 1 || J ||  ||
|-
|-
| 66 || Date PSA || || Primary diagnosis || Prostate module || 1 || J ||  ||  
| 1 = clinical, ie physical exam only (no tumour-specific diagnostics); ||  ||  
|-
|-
| 67 || Gleason score primary value || || Primary diagnosis || Prostate module || 1 || J ||  ||  
| 2 = clinical investigation using diagnostic techniques such as imaging, endoscopy, laparatomy, autopsy (no histopathology); ||  ||  
|-
|-
| 68 || Gleason score of secondary value || || Primary diagnosis || Prostate module || 1 || J ||  ||  
| 4 = specific tumour markers; ||  ||  
|-
|-
| 69 || Gleason score overall score || || Primary diagnosis || Prostate module || 1 || J ||  ||  
| 5 = cytology; ||  ||  
|-
|-
| 70 || Gleason score occasion || || Primary diagnosis || Prostate module || 1 || J ||  ||  
| 6 = histopathology, metastasis; ||  ||  
|-
|-
| 71 || Tumor thickness in mm || || Primary diagnosis || Melanoma module || 1 || J ||  ||  
| 7 = histopathology, primary tumour; ||  ||  
|-
|-
| 72 || Ulceration || || Primary diagnosis || Melanoma module || 1 || J ||  ||  
| 9 = unknown" ||  ||  
|-
|-
| 73 || LDH ||  || Primary diagnosis || Melanoma module || 1 || J ||  ||  
| Tumour laterality || Describes which side of a paired organ is affected || "L = left;
|-
|-
| 74 || Rectum: distance of the tumor underride to the anocutan line || || Primary diagnosis || Module Darm || 1 || J ||  ||  
| R = right; ||  ||  
|-
|-
| 75 || Mutation K-ras-Onkogen || || Primary diagnosis || Module Darm || 1 || J ||  ||  
| B = bilateral; ||  ||  
|-
|-
| 76 || Operating date || || surgery || 13.2 || 1 || n ||  ||  
| M = center; ||  ||  
|-
|-
| 77 || Type of operation according to OPS code ||  || surgery || 13.3 || n || n || Ops ||  
| U = unknown;  ||  ||  
|-
|-
| 78 || Type of operation according to OPS version || || surgery || 13.4 || 1 || n ||  ||  
| T = not applicable (e.g., systemic disease)" ||  ||  
|-
|-
| 79 || Intention of the operation ||  || surgery || 13.1 || 1 || n ||  ||  
| Death certificate notified (DCN) || Indicates whether or not the case was first notified by death certificate (official cause of death). || "J = Yes;
|-
|-
| 80 || Local assessment residual status || || surgery || 10.1 || 1 || J ||  || #Total assessment residual status (for-surgery [inlineCard])-not-transmitted
| N = No" ||  ||  
|-
|-
| 81 || Distance primary diagnosis to surgery || || surgery || recalculated) || 1 || J || Number of days ||
| Survival time || Time interval between incidence date and death || (n) = number of days  
|-
|-
| 82 || Start radiation therapy ||  || radiotherapy || 14.5 || 1 || n ||  ||
| Tumour size || Maximum diameter of invasive carcinoma (in mm) || (n) = tumour size in mm
|-
|-
| 83 || intention ||  || radiotherapy || 14.1 || 1 || J ||  ||  
| DCIS size || Maximum diameter of ductal carcinoma in situ (in mm) || (n) = DCIS size in mm
|-
|-
| 84 || Position for the operation ||  || radiotherapy || 14.2 || 1 || J ||  ||
| Menopausal status || Menopausal status before initiation of treatment. Postmenopausal = time since last menstruation > 1 year OR E2 and FSH within postmenopausal range. || "1 = premenopausal (includes perimenopausal);
|-
|-
| 85 || Application type || || radiotherapy || 14.7 || 1 || J ||  || #Applications-unspoken-
| 3 = postmenopausal; ||  ||  
|-
|-
| 86 || Target area || || radiotherapy || 14.3 || 1 || ? ||  ||  
| U = unknown" ||  ||  
|-
|-
| 87 || Page target area ||  || radiotherapy || 14.4 || 1 || ? ||  ||
| Estrogen receptor status || Estrogen receptor status according to immunoreactivity score (IRS) || "P = positive (IRS >= 1);
|-
|-
| 88 || Duration of radiation therapy || || radiotherapy || new (calculated from 14.5 and 14.6) || 1 || J ||  || #Permanent ray therapy
| N = negative; ||  ||  
|-
|-
| 89 || Distance primary diagnosis until the beginning of radiation therapy || || radiotherapy || recalculated) || 1 || J ||  ||  
| U = unknown" ||  ||  
|-
|-
| 90 || Intention of systemic therapy || || Systemic therapy || 16.1 || 1 || n ||  ||
| Progesterone receptor status || Progesterone receptor status according to immunoreactivity score (IRS) || "P = positive (IRS >= 1);
|-
|-
| 91 || Position systemic therapy for the operation || || Systemic therapy || 16.2 || 1 || n ||  ||  
| N = negative; ||  ||  
|-
|-
| 92 || Art d. Systemic therapy || || Systemic therapy || 16.3 || 1 || n ||  || #Art-Systemische-Therapy- (Oder-Awartenden) therapy
| U = unknown" ||  ||  
|-
|-
| 93 || substance || || Systemic therapy || 16.6 || n || J || Description or ATC code || #Building substance [InlineCard]
| HER2 status || HER2 (ERBB2) status || "P = positive (ICH+++ or: ICH++ and positive ISH);
|-
|-
| 94 || protocol || || Systemic therapy || 16.4 || 1 || J ||  || #Settup protocol [inlineCard]
| N = negative; ||  ||  
|-
|-
| 95 || Start systemic therapy || || Systemic therapy || 16.5 || 1 || n ||  ||  
| U = unknown" ||  ||  
|-
|-
| 96 || Duration of systemic therapy ||  || Systemic therapy || recalculated) || 1 || J ||  ||
| PSA level || PSA level (ng/mL) || (n) = level in ng/mL
|-
|-
| 97 || Distance primary diagnosis until the beginning of systemic therapy ||  || Systemic therapy || recalculated) || 1 || J ||  ||
| PSA level date - accuracy || Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. || "M = year is accurate, month is estimated;
|-
|-
| 98 || Date of follow -up event || || Consequence event || 17.1 || 1 || n ||  ||  
| T = year and month are accurate; ||  ||  
|-
|-
| 99 || TNM version || || Consequence event || 8.2 || 1 || J ||  ||  
| V = year and month are estimated" ||  ||  
|-
|-
| 100 || TNM-Y symbol ||  || Consequence event || 8.3 || 1 || J ||  ||  
| PSA level date || Date of PSA blood test || Date YYYY-MM-DD
|-
|-
| 101 || TNM-R-icon || || Consequence event || 8.4 || 1 || J ||  ||
| Gleason: primary grade || Primary Gleason grade || 1, 2, 3, 4 or 5
|-
|-
| 102 || TNM-A symbol || || Consequence event || 8.5 || 1 || J ||  ||
| Gleason: secondary grade || Secondary Gleason grade || 1, 2, 3, 4 or 5  
|-
|-
| 103 || TNM-T ||  || Consequence event || 8.9 || 1 || J ||  ||
| Gleason score || Gleason score || 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10
|-
|-
| 104 || TNM-N ||  || Consequence event || 8.11 || 1 || J ||  ||  
| Gleason score: sampling method || Describes tissue sampling method/origin of tissue sample used to determine Gleason score. || "O = prostatectomy;
|-
|-
| 105 || TNM-M || || Consequence event || 8.12 || 1 || J ||  ||  
| S = punch biopsy; ||  ||  
|-
|-
| 106 || TNM-prefix t || || Consequence event || 8.6 || 1 || J ||  ||  
| U = unknown" ||  ||  
|-
|-
| 107 || TNM Prefix-N ||  || Consequence event || 8.7 || 1 || J ||  ||  
| Tumour thickness || Thickness of tumour (mm) || (n) = thickness in mm
|-
|-
| 108 || TNM-Prefix-M ||  || Consequence event || 8.8 || 1 || J ||  ||
| Ulceration || Indicates whether or not ulceration is present. || "J = Yes;
|-
|-
| 109 || TNM: M symbol || || Consequence event || 8.10 || 1 || J ||  ||  
| N = No" ||  ||  
|-
|-
| 110 || TNM: L-category ||  || Consequence event || 8.13 || 1 || J ||  ||  
| LDH level || LDH level (units per liter) || (n) = level in U/L
|-
|-
| 111 || TNM: V-category ||  || Consequence event || 8.14 || 1 || J ||  ||  
| Position || Rectal carcinoma: Distance between anocutaneous line and aboral tumour margin (in cm) || "(n) = distance from anocutaneous line in cm;
|-
|-
| 112 || TNM: PN category || || Consequence event || 8.15 || 1 || J ||  ||  
| U = unknown" ||  ||  
|-
|-
| 113 || TNM: S category ||  || Consequence event || 8.16 || 1 || J ||  ||  
| KRAS mutation || Indicates presence of KRAS proto-oncogene mutations || "W = wild type;
|-
|-
| 114 || TNM-Uicc || || Consequence event || 8.17 || 1 || J ||  ||  
| M = mutation; ||  ||  
|-
|-
| 115 || Further classification: name || || Consequence event || 9.2 || 1 || J ||  ||  
| U = unknown; ||  ||  
|-
|-
| 116 || Further classification: stage (expression) || || Consequence event || 9.3 || 1 || J ||  ||  
| N = not assessed" ||  ||  
|-
|-
| 117 || Total settlement tumor status ||  || Consequence event || 17.2 || 1 || n ||  ||  
| Surgery date - accuracy || Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. || "M = year is accurate, month is estimated;
|-
|-
| 118 || Course of local tumor status || || Consequence event || 17.3 || 1 || J ||  ||  
| T = year and month are accurate; ||  ||  
|-
|-
| 119 || Course tumor status lymph nodes || || Consequence event || 17.4 || 1 || J ||  ||  
| V = year and month are estimated" ||  ||  
|-
|-
| 120 || Course tumor status distant metastases ||  || Consequence event || 17.5 || 1 || J ||  ||  
| Surgery date || Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. || Date YYYY-MM-DD
|-
|-
| 121 || Mestastases seat || || Consequence event || 11.1 || n || J
| Surgery type || OPS code of surgery || OPS code
|}
|}

Latest revision as of 03:33, 3 December 2025

forresearchers germanycountry Go back to Database: ZfKD Cancer Registry (Germany) page.


Variable (English) Description Value range
Date of birth Patient's date of birth represented in international format YYYY-MM-DD. Date YYYY-MM-DD
Date of death or last known alive date Date of death (imputed) or last known alive date. For DCO cases, date of death = incidence date. Date YYYY-MM-DD
Other cause of death, ICD-10 code Other cause(s) of death as reported to the registry, ICD-10 code ICD-10 code
Other cause of death, ICD-10 version ICD-10 version used to encode other cause(s) of death ICD-10 version
Diagnosis date Date of incidence represented in international format YYYY-MM-DD. For DCO cases, incidence date = date of death. Date YYYY-MM-DD
Year of incidence Year of incidence. For DCO cases, year of incidence is equal to year of death. Date YYYY
Age at diagnosis Number of years between date of birth and date of diagnosis Age (years)
Place of residence at diagnosis "Place of residence at diagnosis, represented by 5-digit area code (""Kreiskennziffer"")" 5-digit area code
Place of residence at diagnosis "Place of residence at diagnosis, represented by 2-digit area code (""Bundesland"")" 2-digit area code
Tumour diagnosis, ICD-10 code ICD-10 diagnostic code of tumour ICD-10, 4-digit code
Tumour diagnosis, ICD-10 version ICD-10 version used to encode tumour diagnosis ICD-10 version
Topography of tumour, ICD-O-3 code Tumour site represented by ICD-O-3 topography code ICD-O-3 (topography section) 4-digit code
Morphology of tumour, ICD-O-3 code Morphology and behavior of tumour represented by 5-digit ICD-O-3 code. The fifth digit indicates tumour behavior (/0 benign; /1 uncertain; /2 carcinoma in situ; /3 malignant). ICD-O-3 (morphology section), 5-digit code
Number of lymph nodes examined Number of lymph nodes that were examined for the presence of cancer cells (n) = number of lymph nodes
Number of lymph nodes affected Number of lymph nodes that contain cancer cells (n) = number of lymph nodes
cTNM: T Describes the size of the primary tumour. Staging according to tumour-specific TNM. T stage, tumour-specific
cTNM: N Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. N stage, tumour-specific
cTNM: UICC Stage UICC Stage according to TNM. Describes the anatomical extent of disease. UICC stage, tumour-specific
pTNM: T Describes the size of the primary tumour. Staging according to tumour-specific TNM. T stage, tumour-specific
pTNM: N Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. N stage, tumour-specific
pTNM: UICC stage UICC Stage according to TNM. Describes the anatomical extent of disease. UICC stage, tumour-specific
Other classification system: name Name and/or type of other classification(s) used e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
Other classification system: stage Stage assigned based on other classification system Stage
Survival time Time interval between incidence date and death (n) = number of days
Tumour size Maximum diameter of invasive carcinoma (in mm) (n) = tumour size in mm
DCIS size Maximum diameter of ductal carcinoma in situ (in mm) (n) = DCIS size in mm
PSA level PSA level (ng/mL) (n) = level in ng/mL
PSA level date Date of PSA blood test Date YYYY-MM-DD
Gleason: primary grade Primary Gleason grade 1, 2, 3, 4 or 5
Gleason: secondary grade Secondary Gleason grade 1, 2, 3, 4 or 5
Gleason score Gleason score 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10
Tumour thickness Thickness of tumour (mm) (n) = thickness in mm
LDH level LDH level (units per liter) (n) = level in U/L
Surgery date Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. Date YYYY-MM-DD
Surgery type OPS code of surgery OPS code
OPS version OPS version used to encode surgery type OPS version number
Time to surgery Number of days between diagnosis and surgery (n) = number of days
Radiotherapy start date Radiotherapy start date Date YYYY-MM-DD
Percutaneous radiotherapy - Stereotactic Indicates if percutaneous radiotherapy (external beam radiotherapy) was applied using stereotactic techniques. ST = stereotactic
Percutaneous radiotherapy - Respiratory-gated Indicates if percutaneous radiotherapy (external beam radiotherapy) was respiratory-gated. 4D = respiratory-gated
Radiotherapy duration Number of days between diagnosis and surgery (n) = number of days
Time to radiotherapy Time interval between incidence date and radiotherapy start date (days) (n) = number of days
Systemic therapy drug Medication(s) used for systemic therapy. Multiple medications require separate entries. Name or: ATC code + ATC version
Systemic therapy protocol type Systemic therapy protocol name or code. "Name or: protocol code
Systemic therapy protocol Systemic therapy protocol code. Suggested guidance: https://plattform65c.atlassian.net/wiki/spaces/UMK/pages/15532519/Protokolle
Systemic therapy protocol Systemic therapy protocol name (name) = protocol name
Systemic therapy protocol Systemic therapy protocol version (version) = protocol version
Systemic therapy start date Systemic therapy start date Date YYYY-MM-DD
Systemic therapy duration Systemic therapy duration (days) (n) = number of days
Time to systemic therapy Time interval between incidence date and systemic therapy start date (days) (n) = number of days
Follow-up date Date of most recent follow-up evaluation of tumour status Date YYYY-MM-DD
TNM: T Describes the size of the primary tumour. Staging according to tumour-specific TNM. T stage, tumour-specific
TNM: N Describes the degree of spread to regional lymph nodes. Staging according to tumour-specific TNM. N stage, tumour-specific
TNM: UICC stage UICC Stage at follow-up according to TNM. Describes the anatomical extent of disease. UICC stage, tumour-specific
Other classification system: name Name and/or type of other classification(s) used e.g. Ann Arbor staging, WHO Classification of CNS Tumours, AJCC
Other classification system: stage Stage assigned based on other classification system Stage
Basis of diagnosis Describes how the tumour was identified "0 = death certificate only (DCO);
1 = clinical, ie physical exam only (no tumour-specific diagnostics);
2 = clinical investigation using diagnostic techniques such as imaging, endoscopy, laparatomy, autopsy (no histopathology);
4 = specific tumour markers;
5 = cytology;
6 = histopathology, metastasis;
7 = histopathology, primary tumour;
9 = unknown"
Tumour laterality Describes which side of a paired organ is affected "L = left;
R = right;
B = bilateral;
M = center;
U = unknown;
T = not applicable (e.g., systemic disease)"
Death certificate notified (DCN) Indicates whether or not the case was first notified by death certificate (official cause of death). "J = Yes;
N = No"
Survival time Time interval between incidence date and death (n) = number of days
Tumour size Maximum diameter of invasive carcinoma (in mm) (n) = tumour size in mm
DCIS size Maximum diameter of ductal carcinoma in situ (in mm) (n) = DCIS size in mm
Menopausal status Menopausal status before initiation of treatment. Postmenopausal = time since last menstruation > 1 year OR E2 and FSH within postmenopausal range. "1 = premenopausal (includes perimenopausal);
3 = postmenopausal;
U = unknown"
Estrogen receptor status Estrogen receptor status according to immunoreactivity score (IRS) "P = positive (IRS >= 1);
N = negative;
U = unknown"
Progesterone receptor status Progesterone receptor status according to immunoreactivity score (IRS) "P = positive (IRS >= 1);
N = negative;
U = unknown"
HER2 status HER2 (ERBB2) status "P = positive (ICH+++ or: ICH++ and positive ISH);
N = negative;
U = unknown"
PSA level PSA level (ng/mL) (n) = level in ng/mL
PSA level date - accuracy Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. "M = year is accurate, month is estimated;
T = year and month are accurate;
V = year and month are estimated"
PSA level date Date of PSA blood test Date YYYY-MM-DD
Gleason: primary grade Primary Gleason grade 1, 2, 3, 4 or 5
Gleason: secondary grade Secondary Gleason grade 1, 2, 3, 4 or 5
Gleason score Gleason score 2, 3, 4, 5, 6, 7, 7a, 7b, 8, 9 or 10
Gleason score: sampling method Describes tissue sampling method/origin of tissue sample used to determine Gleason score. "O = prostatectomy;
S = punch biopsy;
U = unknown"
Tumour thickness Thickness of tumour (mm) (n) = thickness in mm
Ulceration Indicates whether or not ulceration is present. "J = Yes;
N = No"
LDH level LDH level (units per liter) (n) = level in U/L
Position Rectal carcinoma: Distance between anocutaneous line and aboral tumour margin (in cm) "(n) = distance from anocutaneous line in cm;
U = unknown"
KRAS mutation Indicates presence of KRAS proto-oncogene mutations "W = wild type;
M = mutation;
U = unknown;
N = not assessed"
Surgery date - accuracy Indicates if only year is accurate (M), if year and month are accurate (T), or if year and month are estimated (V). Please note: Day is not collected from registries and assigned an arbitrary value (usu. 15) by ZfKD. "M = year is accurate, month is estimated;
T = year and month are accurate;
V = year and month are estimated"
Surgery date Surgery date represented in ISO 8601 format YYYY-MM-DD. Year and month of surgery are collected from registries, day of surgery is assigned an arbitrary value. Date YYYY-MM-DD
Surgery type OPS code of surgery OPS code
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