Data dictionary - Netherlands Cancer Registry (NKR): Difference between revisions

From Beacon
No edit summary
No edit summary
 
(16 intermediate revisions by 3 users not shown)
Line 1: Line 1:
Go back to [[The Netherlands]] page.
<span style="display:none">forresearchers</span>
<span style="display:none">thenetherlandscountry</span>
Go back to [[Database: Netherlands Cancer Registry (NKR) (The Netherlands)]] page.


Source: [https://iknl.nl/nkr/registratie/itemsets].
Source: [https://iknl.nl/nkr/registratie/itemsets Click here to learn more].
 
There are different types of variables available according to type of tumour and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumour, visit the data source.
 
=== Patient Records ===


{| class="wikitable"
{| class="wikitable"
! Patient records
|-
|-
| Date of birth
| Date of birth
|-
| Age at diagnosis
|-
|-
| Sex
| Sex
|-
|-
| Place/country of birth
| Country of birth
|-
|-
| Date of death
| Date of death
|-
| Vital status with date
|-
|-
| Patient number in the institution
| Patient number in the institution
|-
| Menopausal status at diagnosis
|-
| Postcode figures
|}
|}


=== Tumour Data ===
{| class="wikitable"
{| class="wikitable"
! Tumor data
| Diagnosis date
|-
| Basis for diagnosis
|-
| Topography (incl. sublocalization/lateralization)
|-
| Morphology (incl. behavior/degree of differentiation)
|-
| Topography metastasis (incl. sublocalization)
|-
| Clinical TNM stage
|-
| Pathological TNM stage
|-
| Multifocality tumour
|-
| Pathological size of the tumour (mm)
|-
| Estrogen receptor status
|-
| Estrogen receptor value
|-
| Progesterone receptor status
|-
| Value of progesterone receptor
|-
| HER2 status
|-
| Technique used for HER2 determination
|-
| Number of regional lymph nodes examined
|-
| Number of positive regional lymph nodes
|-
| Presence of DCIS component next to invasive tumour
|-
| BI-RADS classification
|-
| Tumour palpability
|-
| Breast print rash
|-
| Result of oncotype DX
|}
 
=== Treatment Details ===
 
{| class="wikitable"
|-
| Surgery
|-
| Date of surgery
|-
| Surgery discharge date
|-
| Tumour is an incidental finding during surgery for another indication
|-
| Hospital surgery
|-
| Direct reconstruction
|-
| Date of immediate reconstruction
|-
| Direct reconstruction technique
|-
| Hospital direct reconstruction
|-
| Axillary dissection performed
|-
| Date of axillary lymph node dissection
|-
| Hospital axillary dissection
|-
| Basic axillary dissection performed
|-
|-
| Date of diagnosis
| Date of basal axillary lymph node dissection
|-
|-
| Basis for diagnosis
| Hospital of basal axillary dissection
|-
| Radiotherapy
|-
| Start/stop date of radiotherapy
|-
| Type of external radiotherapy
|-
| Hospital radiotherapy
|-
| Systemic chemotherapy
|-
| Start/stop date of systemic chemotherapy
|-
| Hospital systemic chemotherapy
|-
| Systemic hormonal therapy
|-
| Start date of systemic hormonal therapy
|-
| Hospital systemic hormonal therapy
|-
| Systemic target therapy
|-
| Start-stop date of systemic target therapy
|-
| Hospital systemic target therapy
|-
| Active surveillance
|-
| Radicality DCIS component surgery
|-
| Radicality invasive component surgery
|-
| No radiotherapy after breast-conserving treatment
|-
| Reason for no radiotherapy after breast-conserving treatment
|-
| Complication during/after surgery
|-
| Complication during/after systemic chemotherapy
|}
 
=== Follow up Data ===
 
{| class="wikitable"
|-
| Recurrences within 5 years of diagnosis
|-
| Follow-up local recurrence
|-
| Date of follow-up local recurrence
|-
| Localization of follow-up local recurrence
|-
| Basis for diagnosis of follow-up local recurrence
|-
| Pathological tumour size (mm) follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Date of follow-up for regional recurrence
|-
| Localization of follow-up regional recurrence
|-
| Basis for diagnosis of follow-up regional recurrence
|-
| Number of regional lymph nodes examined for follow-up regional recurrence
|-
| Number of positive lymph nodes follow-up regionally
|-
| Follow-up metastasis
|-
| Date of follow-up metastasis
|-
| Basis for diagnosis follow-up metastasis
|-
| Topography (incl. sublocalization/lateralization) follow-up metastasis
|-
| Number of follow-up metastases
|-
| Treatment follow-up
|-
| Date of last contact follow-up
|-
| Relapses within 10 years of diagnosis
|-
| Follow-up local recurrence
|-
| Date of follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Date of follow-up for regional recurrence
|-
| Follow-up metastasis
|-
| Date of follow-up metastasis
|-
| Treatment follow-up
|-
| Relapses due to project
|-
| Follow-up local recurrence
|-
| Localization of local recurrence
|-
| Basis for diagnosis of local recurrence
|-
| Date of follow-up local recurrence
|-
| Pathological tumour size (mm) follow-up local recurrence
|-
| Follow-up regional recurrence
|-
| Localization of regional recurrence
|-
| Basis for diagnosis of regional recurrence
|-
|-
| Topography
| Date of follow-up for regional recurrence
|-
|-
| Morphology (WHO classification and FNCLCC grade)
| Number of regional lymph nodes examined for follow-up regional recurrence
|-
|-
| TNM stage (clinical and post-surgical)
| Number of positive lymph nodes follow-up regional recurrence
|-
|-
| Additional tumor features (Behaviour, Localization, Size, Multifocality, Palpability)
| Follow-up metastasis
|-
|-
| Topography synchronous metastases
| Localization of metastasis
|-
|-
| Molecular abnormalities in the tumor
| Basis for diagnosis of metastasis
|-
|-
| Lymph nodes examination (Number and status)
| Date of follow-up metastasis
|-
|-
| Receptors status
| Number of follow-up metastases
|-
|-
| Images for diagnosis
| ER, PR, Her2 recurrence or metastasis
|-
|-
| Degree of differentiation
| Treatment follow-up
|}
 
=== Risk Factors ===
 
{| class="wikitable"
|-
|-
| Laboratory studies
| Comorbidity
|-
|-
| Pathologic data biopsy
| History of breast surgery
|-
| Smoking status
|-
| Pregnancy at diagnosis
|-
| Performance status
|-
| Weight
|-
| Length
|-
| Incidence year of previous/later malignancies
|-
| Tumour type previous/later malignancies
|}
|}
=== Process Data ===


{| class="wikitable"
{| class="wikitable"
! Treatment details
|-
|-
| Surgical procedure (type, date of occurrence, date of discharge)
| Tumour detected after referral for population screening
|-
| Reason for diagnosis
|-
| Gene mutation research conducted
|-
| Date of gene mutation research
|-
| Hospital gene mutation research
|-
| MRI performed
|-
| MRI date
|-
| Hospital MRI
|-
| Ultrasound-guided puncture and/or biopsy performed in the armpit
|-
| Date of ultrasound-guided puncture and/or biopsy in the armpit
|-
| Result of ultrasound-guided puncture and/or biopsy in armpit
|-
| Hospital ultrasound-guided puncture and/or biopsy in the armpit
|-
| Post-therapeutic MDO performed
|-
| Date post-therapeutic MDO
|-
| Hospital post-therapeutic MDO
|-
| Pretherapeutic MDO performed
|-
| Date of pre-therapeutic MDO
|-
| Hospital pretherapeutic MDO
|-
| Sentinel lymph node procedure performed
|-
| Date of sentinel procedure
|-
| Result of sentinel procedure
|-
| Hospital sentinel procedure
|-
|-
| Lymph node dissection (type, date of occurrence, date of discharge)
| Tumour localization procedure
|-
|-
| Reconstructive surgery (type, date of occurrence, date of discharge)
| MARI procedure performed
|-
|-
| Radiotherapy (type, start date, stop date, dosage)
| Date of MARI procedure
|-
|-
| Chemotherapy (type, start date, stop date, scheme)
| Result of MARI procedure
|-
|-
| Hormonal therapy (type, start date, stop date)
| Hospital MARI procedure
|-
|-
| Target therapy (type, start date, stop date)
| Date of first consultation with plastic surgeon for ablation
|-
|-
| Immunotherapy (type, start date, stop date)
| Date of first consultation with radiotherapist for pre-surgical therapy
|-
|-
| Complication during/after treatments (type, reintervention)
| Hospital of first contact regarding malignancy
|-
|-
| Metastasectomy (yes/no)
| Date of first consultation in hospital
|-
|-
| Reason for not performing an specific treatment
| Date of first consultation with practitioner at second hospital
|-
|-
| Resection margins
| Participation in clinical scientific research
|-
|-
| Other treatments (type, start date, stop date)
| Operation with plastic surgeon
|}
|}

Latest revision as of 17:40, 4 December 2025

forresearchers thenetherlandscountry Go back to Database: Netherlands Cancer Registry (NKR) (The Netherlands) page.

Source: Click here to learn more.

There are different types of variables available according to type of tumour and date range. But here we present a general overview of the variables. For more detailed information about the variables available for each type of tumour, visit the data source.

Patient Records[edit | edit source]

Date of birth
Age at diagnosis
Sex
Country of birth
Date of death
Vital status with date
Patient number in the institution
Menopausal status at diagnosis
Postcode figures

Tumour Data[edit | edit source]

Diagnosis date
Basis for diagnosis
Topography (incl. sublocalization/lateralization)
Morphology (incl. behavior/degree of differentiation)
Topography metastasis (incl. sublocalization)
Clinical TNM stage
Pathological TNM stage
Multifocality tumour
Pathological size of the tumour (mm)
Estrogen receptor status
Estrogen receptor value
Progesterone receptor status
Value of progesterone receptor
HER2 status
Technique used for HER2 determination
Number of regional lymph nodes examined
Number of positive regional lymph nodes
Presence of DCIS component next to invasive tumour
BI-RADS classification
Tumour palpability
Breast print rash
Result of oncotype DX

Treatment Details[edit | edit source]

Surgery
Date of surgery
Surgery discharge date
Tumour is an incidental finding during surgery for another indication
Hospital surgery
Direct reconstruction
Date of immediate reconstruction
Direct reconstruction technique
Hospital direct reconstruction
Axillary dissection performed
Date of axillary lymph node dissection
Hospital axillary dissection
Basic axillary dissection performed
Date of basal axillary lymph node dissection
Hospital of basal axillary dissection
Radiotherapy
Start/stop date of radiotherapy
Type of external radiotherapy
Hospital radiotherapy
Systemic chemotherapy
Start/stop date of systemic chemotherapy
Hospital systemic chemotherapy
Systemic hormonal therapy
Start date of systemic hormonal therapy
Hospital systemic hormonal therapy
Systemic target therapy
Start-stop date of systemic target therapy
Hospital systemic target therapy
Active surveillance
Radicality DCIS component surgery
Radicality invasive component surgery
No radiotherapy after breast-conserving treatment
Reason for no radiotherapy after breast-conserving treatment
Complication during/after surgery
Complication during/after systemic chemotherapy

Follow up Data[edit | edit source]

Recurrences within 5 years of diagnosis
Follow-up local recurrence
Date of follow-up local recurrence
Localization of follow-up local recurrence
Basis for diagnosis of follow-up local recurrence
Pathological tumour size (mm) follow-up local recurrence
Follow-up regional recurrence
Date of follow-up for regional recurrence
Localization of follow-up regional recurrence
Basis for diagnosis of follow-up regional recurrence
Number of regional lymph nodes examined for follow-up regional recurrence
Number of positive lymph nodes follow-up regionally
Follow-up metastasis
Date of follow-up metastasis
Basis for diagnosis follow-up metastasis
Topography (incl. sublocalization/lateralization) follow-up metastasis
Number of follow-up metastases
Treatment follow-up
Date of last contact follow-up
Relapses within 10 years of diagnosis
Follow-up local recurrence
Date of follow-up local recurrence
Follow-up regional recurrence
Date of follow-up for regional recurrence
Follow-up metastasis
Date of follow-up metastasis
Treatment follow-up
Relapses due to project
Follow-up local recurrence
Localization of local recurrence
Basis for diagnosis of local recurrence
Date of follow-up local recurrence
Pathological tumour size (mm) follow-up local recurrence
Follow-up regional recurrence
Localization of regional recurrence
Basis for diagnosis of regional recurrence
Date of follow-up for regional recurrence
Number of regional lymph nodes examined for follow-up regional recurrence
Number of positive lymph nodes follow-up regional recurrence
Follow-up metastasis
Localization of metastasis
Basis for diagnosis of metastasis
Date of follow-up metastasis
Number of follow-up metastases
ER, PR, Her2 recurrence or metastasis
Treatment follow-up

Risk Factors[edit | edit source]

Comorbidity
History of breast surgery
Smoking status
Pregnancy at diagnosis
Performance status
Weight
Length
Incidence year of previous/later malignancies
Tumour type previous/later malignancies

Process Data[edit | edit source]

Tumour detected after referral for population screening
Reason for diagnosis
Gene mutation research conducted
Date of gene mutation research
Hospital gene mutation research
MRI performed
MRI date
Hospital MRI
Ultrasound-guided puncture and/or biopsy performed in the armpit
Date of ultrasound-guided puncture and/or biopsy in the armpit
Result of ultrasound-guided puncture and/or biopsy in armpit
Hospital ultrasound-guided puncture and/or biopsy in the armpit
Post-therapeutic MDO performed
Date post-therapeutic MDO
Hospital post-therapeutic MDO
Pretherapeutic MDO performed
Date of pre-therapeutic MDO
Hospital pretherapeutic MDO
Sentinel lymph node procedure performed
Date of sentinel procedure
Result of sentinel procedure
Hospital sentinel procedure
Tumour localization procedure
MARI procedure performed
Date of MARI procedure
Result of MARI procedure
Hospital MARI procedure
Date of first consultation with plastic surgeon for ablation
Date of first consultation with radiotherapist for pre-surgical therapy
Hospital of first contact regarding malignancy
Date of first consultation in hospital
Date of first consultation with practitioner at second hospital
Participation in clinical scientific research
Operation with plastic surgeon
Retrieved from "https://wiki.beaconcancer.org/index.php?title=Data_dictionary_-_Netherlands_Cancer_Registry_(NKR)&oldid=30439"
Powered by MediaWiki
Powered by Semantic MediaWiki