Data dictionary: Lung cancer - DLCA: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">thenetherlandscountry</span>
Go back to [[Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)]] page.
Go back to [[Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)]] page.


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==== Surgery - DLCA-S ====
==== Surgery - DLCA-S ====


'''Healthcare Institution Information'''
'''Table 1:''' Healthcare Institution Information
* Healthcare Institution (Zorginstelling)
{| class="wikitable"
* Unique Patient Number (Uniek Patiëntnummer)
! Variables !! Description
* Date of Birth (Geboortedatum)
|-
* Gender (Geslacht)
| Zorginstelling || Healthcare Institution  
* Date of Death (if applicable) (Datum overlijden)
|-
| Uniek Patiëntnummer || Unique Patient Number  
|-
| Geboortedatum || Date of Birth  
|-
| Geslacht || Gender
|-
| Datum overlijden || Date of Death (if applicable)
|}


'''Table 2:''' Patient Health and Comorbidities
{| class="wikitable"
! Variables !! Description
|-
| Datum comorbiditeiten || Comorbidities Date
|-
| Chronische longziekte || Chronic Lung Disease
|-
| COPD/ CARA/ emfyseem/ chron. bronch. || COPD/ CARA/ Emphysema/ Chronic Bronchitis
|-
| Longfibrose || Lung Fibrosis
|-
| Status na longtransplantatie || Status After Lung Transplantation
|-
| Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging || Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement
|-
| Atriumfibrilleren/-flutter, Hartritmestoornis || Atrial Fibrillation/Flutter, Heart Rhythm Disorder
|-
| Decompensatio cordis, Congestief hartfalen || Heart Failure
|-
| Perifeer vaatlijden/aneurysma aorta || Peripheral Vascular Disease/Aortic Aneurysm
|-
| Hypertensie || Hypertension
|-
| Carotis stenose || Carotid Stenosis
|-
| DVT/trombosebeen, Longembolie || DVT/Thrombophlebitis, Pulmonary Embolism
|}


'''Patient Health and Comorbidities'''
'''Table 3:''' Cancer and Tumour Information
* Comorbidities Date (Datum comorbiditeiten)
* Chronic Lung Disease (Chronische longziekte)
* COPD/ CARA/ Emphysema/ Chronic Bronchitis (COPD/ CARA/ emfyseem/ chron. bronch.)
* Lung Fibrosis (Longfibrose)
* Status After Lung Transplantation (Status na longtransplantatie)
* Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement (Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging)
* Atrial Fibrillation/Flutter, Heart Rhythm Disorder (Atriumfibrilleren/-flutter, Hartritmestoornis)
* Heart Failure (Decompensatio cordis, Congestief hartfalen)
* Peripheral Vascular Disease/Aortic Aneurysm (Perifeer vaatlijden/aneurysma aorta)
* Hypertension (Hypertensie)
* Carotid Stenosis (Carotis stenose)
* DVT/Thrombophlebitis, Pulmonary Embolism (DVT/trombosebeen, Longembolie)


{| class="wikitable"
! Variables !! Description
|-
| Type tumor, Locatie tumor, Diameter tumor || Type of Tumour, Location of Tumour, Tumour Diameter
|-
| Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli || Presence of Separate Tumour Nodules
|-
| Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium || Pathological T-stage, N-stage, M-stage
|}


'''Cancer and Tumor Information'''
'''Table 4:''' Surgical Details
* Type of Tumor, Location of Tumor, Tumor Diameter (Type tumor, Locatie tumor, Diameter tumor)
{| class="wikitable"
* Presence of Separate Tumor Nodules (Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli)
! Variables !! Description
* Pathological T-stage, N-stage, M-stage (Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium)
|-
| Datum van verrichting, Kies verrichting, Zijde || Surgery Date, Type of Procedure, Side of Operation
|-
| Eerdere longresectie(s) middels een thoraxoperatie? || Previous Lung Resections via Thoracic Surgery
|-
| ECOG performance status || ECOG Performance Status
|-
| Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min || Predicted FEV1 %, DLCO SB %, VO2 max
|}


'''Table 5:''' Diagnostic Imaging and Biopsy
{| class="wikitable"
! Variables !! Description
|-
| Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan || CT Scan, PET Scan Dates and Findings
|-
| Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht? || EUS, EBUS, Mediastinoscopy
|}


'''Surgical Details'''
'''Table 6:''' Treatment and Complications
* Surgery Date, Type of Procedure, Side of Operation (Datum van verrichting, Kies verrichting, Zijde)
{| class="wikitable"
* Previous Lung Resections via Thoracic Surgery (Eerdere longresectie(s) middels een thoraxoperatie?)
! Variables !! Description
* ECOG Performance Status (ECOG performance status)
|-
* Predicted FEV1 %, DLCO SB %, VO2 max (Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min)
| Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie || Treatment Prior to Surgery, Treatment Post-Surgery
 
|-
 
| Toegang thorax, Reden voor conversie || Surgical Approach and Conversion Reason
'''Diagnostic Imaging and Biopsy'''
|-
* CT Scan, PET Scan Dates and Findings (Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan)
| Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie || Postoperative Complications, Their Severity
* EUS, EBUS, Mediastinoscopy (Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht?)
|}
 
 
'''Treatment and Complications'''
* Treatment Prior to Surgery, Treatment Post-Surgery (Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie)
* Surgical Approach and Conversion Reason (Toegang thorax, Reden voor conversie)
* Postoperative Complications, Their Severity (Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie)
 


==== Carcinoma DLCA-L ====
==== Carcinoma DLCA-L ====


'''Patient and Care Center Information'''
'''Table 7:'''Patient and Care Center Information.
* Organisation Name (Zorginstelling)
{| class="wikitable"
* Unique Patient Number (Uniek Patiëntnummer)
! Variables !! Description
* Date of Birth (Geboortedatum)
|-
* Gender (Geslacht)
| Zorginstelling || Organisation Name
* Date of Death (if applicable) (Datum overlijden)
|-
 
| Uniek Patiëntnummer || Unique Patient Number
 
|-
'''Disease Nature and Diagnosis'''
| Geboortedatum || Date of Birth
* Suspected Nature of Disease (Wat is de vermeende aard van de ziekte?)
|-
* Date of First Clinic Visit to Pulmonologist (Datum eerste polikliniekbezoek bij de longarts)
| Geslacht || Gender
* Outcome of First Clinic Visit (Uitkomst eerste polikliniekbezoek)
|-
* Date Pathological Diagnosis Established (Datum waarop pathologische diagnose gesteld is)
| Datum overlijden || Date of Death (if applicable)
* Type of Mesothelioma (Soort mesothelioom)
|}
 
 
'''Treatment and Pathology'''
* Number of Palliative Systemic Therapies Given (Hoeveel lijnen palliatieve systemische therapieën)
* First-line Treatment (Welke eerstelijns behandeling)
* Second-line Treatment (Welke tweedelijns behandeling)
* Pathology Details (PA Details) for Various Cancers (PA details NSCLC, PA details adenocarcinoom, etc.)
* Molecular Diagnostics Conducted (Is er moleculaire diagnostiek verricht?)
* PD-L1 Expression on Tumor (Wat is de PD-L1 expressie op de tumor)
 


'''Clinical Staging and Metastasis'''
* Clinical T-Stage (Klinisch T-stadium)
* Clinical N-Stage (Klinisch N-stadium)
* Clinical M-Stage (Klinisch M-stadium)
* Number of Metastases (Aantal metastasen)
* Metastasis Locations (Bijnier, Bot, Lever, Hersenen, Anders)


'''Table 8:''' Disease Nature and Diagnosis.
{| class="wikitable"
! Variables !! Description
|-
| Wat is de vermeende aard van de ziekte? || Suspected Nature of Disease
|-
| Datum eerste polikliniekbezoek bij de longarts || Date of First Clinic Visit to Pulmonologist
|-
| Uitkomst eerste polikliniekbezoek || Outcome of First Clinic Visit
|-
| Datum waarop pathologische diagnose gesteld is || Date Pathological Diagnosis Established
|-
| Soort mesothelioom || Type of Mesothelioma
|}


'''Treatment Modalities'''
'''Table 9:''' Treatment and Pathology.
* Surgery (Chirurgie)
{| class="wikitable"
* Chemoradiotherapy (Chemoradiotherapie)
! Variables !! Description
* Radiotherapy (Radiotherapie)
|-
* Chemotherapy (Chemotherapie)
| Hoeveel lijnen palliatieve systemische therapieën || Number of Palliative Systemic Therapies Given
* Targeted Therapy (Doelgerichte therapie)
|-
* Immunotherapy (Immunotherapie)
| Welke eerstelijns behandeling || First-line Treatment
|-
| Welke tweedelijns behandeling || Second-line Treatment
|-
| PA details NSCLC, PA details adenocarcinoom, etc. || Pathology Details for Various Cancers
|-
| Is er moleculaire diagnostiek verricht? || Molecular Diagnostics Conducted
|-
| Wat is de PD-L1 expressie op de tumor || PD-L1 Expression on Tumour
|}


'''Table 10:''' Clinical Staging and Metastasis.
{| class="wikitable"
! Variables !! Description
|-
| Klinisch T-stadium || Clinical T-Stage
|-
| Klinisch N-stadium || Clinical N-Stage
|-
| Klinisch M-stadium || Clinical M-Stage
|-
| Aantal metastasen || Number of Metastases
|-
| Bijnier, Bot, Lever, Hersenen, Anders || Metastasis Locations
|}


'''Follow-Up and Recurrence'''
'''Table 11:''' Treatment Modalities.
* Date of Follow-Up (Datum follow-up)
{| class="wikitable"
* Patient Status at Follow-Up (Is de patient overleden?)
! Variables !! Description
* Date of Recurrence or Progression Detected (Op welke datum werd recidief / progressie vastgesteld)
|-
| Chirurgie || Surgery
|-
| Chemoradiotherapie || Chemoradiotherapy
|-
| Radiotherapie || Radiotherapy
|-
| Chemotherapie || Chemotherapy
|-
| Doelgerichte therapie || Targeted Therapy
|-
| Immunotherapie || Immunotherapy
|}


'''Table 12:''' Follow-Up and Recurrence.
{| class="wikitable"
! Variables !! Description
|-
| Datum follow-up || Date of Follow-Up
|-
| Is de patient overleden? || Patient Status at Follow-Up
|-
| Op welke datum werd recidief / progressie vastgesteld || Date of Recurrence or Progression Detected
|}


'''SARS-CoV-2 Infection Variables'''
'''Table 13:''' SARS-CoV-2 Infection Variables.
* Date of First Suspicion of SARS-CoV-2 Infection (Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting)
{| class="wikitable"
* Date of First Positive Lab Test for SARS-CoV-2 (Wat was de datum van de eerste positieve labtest op SARS-CoV-2)
! Variables !! Description
|-
| Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting || Date of First Suspicion of SARS-CoV-2 Infection
|-
| Wat was de datum van de eerste positieve labtest op SARS-CoV-2 || Date of First Positive Lab Test for SARS-CoV-2
|}

Latest revision as of 17:43, 4 December 2025

forresearchers thenetherlandscountry Go back to Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands) page.

This is a summary of the variables available in the database. You can download the complete data dictionary. Click here to learn more.

Surgery - DLCA-S[edit | edit source]

Table 1: Healthcare Institution Information

Variables Description
Zorginstelling Healthcare Institution
Uniek Patiëntnummer Unique Patient Number
Geboortedatum Date of Birth
Geslacht Gender
Datum overlijden Date of Death (if applicable)

Table 2: Patient Health and Comorbidities

Variables Description
Datum comorbiditeiten Comorbidities Date
Chronische longziekte Chronic Lung Disease
COPD/ CARA/ emfyseem/ chron. bronch. COPD/ CARA/ Emphysema/ Chronic Bronchitis
Longfibrose Lung Fibrosis
Status na longtransplantatie Status After Lung Transplantation
Angina pectoris, Myocardinfarct, PTCA, CABG, Kleplijden, Klepvervanging Angina Pectoris, Myocardial Infarction, PTCA, CABG, Valve Disease, Valve Replacement
Atriumfibrilleren/-flutter, Hartritmestoornis Atrial Fibrillation/Flutter, Heart Rhythm Disorder
Decompensatio cordis, Congestief hartfalen Heart Failure
Perifeer vaatlijden/aneurysma aorta Peripheral Vascular Disease/Aortic Aneurysm
Hypertensie Hypertension
Carotis stenose Carotid Stenosis
DVT/trombosebeen, Longembolie DVT/Thrombophlebitis, Pulmonary Embolism

Table 3: Cancer and Tumour Information

Variables Description
Type tumor, Locatie tumor, Diameter tumor Type of Tumour, Location of Tumour, Tumour Diameter
Is er naast de primaire tumor sprake van (een) separate tumornodus/noduli Presence of Separate Tumour Nodules
Geaggregeerd pathologisch T-stadium, N-stadium, M-stadium Pathological T-stage, N-stage, M-stage

Table 4: Surgical Details

Variables Description
Datum van verrichting, Kies verrichting, Zijde Surgery Date, Type of Procedure, Side of Operation
Eerdere longresectie(s) middels een thoraxoperatie? Previous Lung Resections via Thoracic Surgery
ECOG performance status ECOG Performance Status
Predicted FEV1 %, DLCO SB %, VO2 max ml/kg/min Predicted FEV1 %, DLCO SB %, VO2 max

Table 5: Diagnostic Imaging and Biopsy

Variables Description
Is er een CT-scan verricht?, Is er een PET-scan verricht?, Datum laatste CT-scan of PET-CT-scan CT Scan, PET Scan Dates and Findings
Is er een EUS verricht?, Is er een EBUS verricht?, Is er een mediastinoscopie/-tomie verricht? EUS, EBUS, Mediastinoscopy

Table 6: Treatment and Complications

Variables Description
Werd de patiënt voor de operatie systemisch of radiotherapeutisch behandeld?, Chemotherapie, Radiotherapie Treatment Prior to Surgery, Treatment Post-Surgery
Toegang thorax, Reden voor conversie Surgical Approach and Conversion Reason
Complicaties binnen 30 dagen na resectie?, Ernst van de complicatie Postoperative Complications, Their Severity

Carcinoma DLCA-L[edit | edit source]

Table 7:Patient and Care Center Information.

Variables Description
Zorginstelling Organisation Name
Uniek Patiëntnummer Unique Patient Number
Geboortedatum Date of Birth
Geslacht Gender
Datum overlijden Date of Death (if applicable)


Table 8: Disease Nature and Diagnosis.

Variables Description
Wat is de vermeende aard van de ziekte? Suspected Nature of Disease
Datum eerste polikliniekbezoek bij de longarts Date of First Clinic Visit to Pulmonologist
Uitkomst eerste polikliniekbezoek Outcome of First Clinic Visit
Datum waarop pathologische diagnose gesteld is Date Pathological Diagnosis Established
Soort mesothelioom Type of Mesothelioma

Table 9: Treatment and Pathology.

Variables Description
Hoeveel lijnen palliatieve systemische therapieën Number of Palliative Systemic Therapies Given
Welke eerstelijns behandeling First-line Treatment
Welke tweedelijns behandeling Second-line Treatment
PA details NSCLC, PA details adenocarcinoom, etc. Pathology Details for Various Cancers
Is er moleculaire diagnostiek verricht? Molecular Diagnostics Conducted
Wat is de PD-L1 expressie op de tumor PD-L1 Expression on Tumour

Table 10: Clinical Staging and Metastasis.

Variables Description
Klinisch T-stadium Clinical T-Stage
Klinisch N-stadium Clinical N-Stage
Klinisch M-stadium Clinical M-Stage
Aantal metastasen Number of Metastases
Bijnier, Bot, Lever, Hersenen, Anders Metastasis Locations

Table 11: Treatment Modalities.

Variables Description
Chirurgie Surgery
Chemoradiotherapie Chemoradiotherapy
Radiotherapie Radiotherapy
Chemotherapie Chemotherapy
Doelgerichte therapie Targeted Therapy
Immunotherapie Immunotherapy

Table 12: Follow-Up and Recurrence.

Variables Description
Datum follow-up Date of Follow-Up
Is de patient overleden? Patient Status at Follow-Up
Op welke datum werd recidief / progressie vastgesteld Date of Recurrence or Progression Detected

Table 13: SARS-CoV-2 Infection Variables.

Variables Description
Wat was de datum van de eerste verdenking op SARS-CoV-2 besmetting Date of First Suspicion of SARS-CoV-2 Infection
Wat was de datum van de eerste positieve labtest op SARS-CoV-2 Date of First Positive Lab Test for SARS-CoV-2
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