Database: Slovenian Cancer Registry (Slovenia): Difference between revisions

From Beacon
No edit summary
m (Update categories.)
 
(16 intermediate revisions by 5 users not shown)
Line 1: Line 1:
Go back to [[Slovenia]] page
Go back to [[Slovenia]] page
<span style="display:none">forresearchers</span>
<span style="display:none">sloveniacountry</span>


'''Type of database:''' [[databaseType::registry]].


'''Sponsor, manager or home institution:''' [[dataOwner::Institute of Oncology Ljubljana]] [https://www.onko-i.si/eng/].
'''Primary purpose:''' To provide comprehensive historical and ongoing data on cancer incidence, prevalence, mortality, and survival in Slovenia, serving as a critical resource for epidemiological and oncological research and evaluating the effectiveness of cancer prevention, diagnosis, treatment, and care, as well as for planning necessary resources for cancer control.


'''Primary purpose:''' To provide comprehensive historical and ongoing data on cancer incidence, prevalence, mortality, and survival in Slovenia, serving as a critical resource for epidemiological and oncological research and evaluating the effectiveness of cancer prevention, diagnosis, treatment, and care, as well as for planning necessary resources for cancer control.
'''Sponsor, manager or home institution:''' [[dataOwner::Institute of Oncology Ljubljana]].


'''Type of information:''' Definitions of routinely prepared cancer burden measures are on website [http://www.slora.si/en/definicije-kazalnikov-in-metod].
'''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]]; [[hasVariable::cancer survival]]; [[hasVariable::region]]; [[hasVariable::cancer prevalence]]; [[hasVariable::age]]; [[hasVariable::diagnosis]]; [[hasVariable::tumour staging]]; [[hasVariable::causes of death]]; [[hasVariable::tumour histology]]; [[hasVariable::sex]]; Cancer comparisons with Europe; [[hasVariable::number of deaths|Cancer mortality]]; [[hasVariable::number of patients]] that received cancer [[hasVariable::medical procedures|treatment]]. Data dictionary was not found. For more data information [https://www.onko-i.si/fileadmin/onko/datoteke/rrs/lp/letno_porocilo_2020.pdf click here to learn more].


'''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::cancer prevalence]]; [[availableVariable::age]]; [[availableVariable::diagnosis]]; [[availableVariable::cancer survival]]; [[availableVariable::sex]]; Cancer comparisons with Europe; [[availableVariable::number of deaths|Cancer mortality]]; [[availableVariable::number of patients]] that received cancer [[availableVariable::medical procedures|treatment]].  
'''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::cancer prevalence]]; [[availableVariable::age]]; [[availableVariable::diagnosis]]; [[availableVariable::cancer survival]]; [[availableVariable::sex]]; Cancer comparisons with Europe; [[availableVariable::number of deaths|Cancer mortality]]; [[availableVariable::number of patients]] that received cancer [[availableVariable::medical procedures|treatment]]. [http://www.slora.si/definicije-kazalnikov-in-metod Click here to learn more].


'''Source of Information:''' Source for incidence and prevalence is the Slovenian Cancer Registry (SCR) [https://www.onko-i.si/eng/crs]. Source for mortality is the National Institute of Public Health [http://www.nijz.si/].
'''Source of Information:''' The main sources of data are notifications of cancer, gathered from all hospitals and diagnostic centres in Slovenia. Source for mortality is the National Institute of Public Health.


'''Data level:''' [[dataLevel::patient level]].
'''Data level:''' [[dataLevel::patient level]].
Line 16: Line 19:
'''Available data level:''' [[availableDataLevel::national level]].
'''Available data level:''' [[availableDataLevel::national level]].


'''Number of Records:''' Reports with the number of cancers for each incidence year [https://www.onko-i.si/eng/crs].
'''Number of Records:''' Reports with the number of cancers for each incidence year, [https://www.onko-i.si/eng/crs click here to access].
 
'''Date range:''' From [[dataStart::1950]] [[dataEnd::onwards]].


'''Date Range:''' From [[dataStart::1950]] [[dataEnd::onwards]].
'''Cancer areas of interest:''' [[hasCancerType::C00-D48: All neoplasms]]. [https://www.onko-i.si/fileadmin/onko/datoteke/rrs/lp/letno_porocilo_2020.pdf Click here to learn more].


'''Cancer Areas of Interest:''' [[hasCancerAreasList::neoplasms (C00-D49)]].
'''Data access:''' [[dataAvailability::partially publicly available]]. [http://www.slora.si/en/ Click here to access]. For reports information [https://www.onko-i.si/eng/crs click here to access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. [[hasDataAccessCosts::Data has access costs]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.onko-i.si/rrs click here to access]]].


'''Data access:''' [[dataAvailability::publicly available]] on aggregated level [http://www.slora.si/en/]. Reports information [https://www.onko-i.si/eng/crs]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://www.onko-i.si/rrs]]].
'''Contact information:''' [https://www.onko-i.si/eng/crs Click here to access].


'''Contact information:''' Information [https://www.onko-i.si/eng/crs].
<span style="display:none">Mouth</span>
<span style="display:none">Throat</span>
<span style="display:none">Oropharynx</span>
<span style="display:none">Nasopharynx</span>
<span style="display:none">Hypopharynx</span>
<span style="display:none">Larynx</span>
<span style="display:none">Salivary glands</span>
<span style="display:none">Lips</span>
<span style="display:none">Tonsils</span>
<span style="display:none">base of tongue</span>
<span style="display:none">Voice box</span>
<span style="display:none">Esophagus</span>
<span style="display:none">Stomach</span>
<span style="display:none">Small intestine</span>
<span style="display:none">Large intestine</span>
<span style="display:none">Colon</span>
<span style="display:none">Rectum</span>
<span style="display:none">Anus</span>
<span style="display:none">Liver</span>
<span style="display:none">Gallbladder</span>
<span style="display:none">Bile ducts</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Lung</span>
<span style="display:none">Trachea</span>
<span style="display:none">Bronchi</span>
<span style="display:none">Pleura</span>
<span style="display:none">Mediastinum</span>
<span style="display:none">Bone</span>
<span style="display:none">Cartilage</span>
<span style="display:none">Osteosarcoma</span>
<span style="display:none">Ewings sarcoma</span>
<span style="display:none">Skin</span>
<span style="display:none">Melanoma</span>
<span style="display:none">Scalp</span>
<span style="display:none">Lips</span>
<span style="display:none">Hands</span>
<span style="display:none">Feet</span>
<span style="display:none">Muscle</span>
<span style="display:none">Fat</span>
<span style="display:none">Tendon</span>
<span style="display:none">Ligament</span>
<span style="display:none">Blood vessels</span>
<span style="display:none">Connective tissue</span>
<span style="display:none">Sarcoma</span>
<span style="display:none">Angiosarcoma</span>
<span style="display:none">Liposarcoma</span>
<span style="display:none">Lobular</span>
<span style="display:none">Breast</span>
<span style="display:none">Nipple</span>
<span style="display:none">Areola</span>
<span style="display:none">Ductal</span>
<span style="display:none">Vulva</span>
<span style="display:none">Vagina</span>
<span style="display:none">Cervix</span>
<span style="display:none">Uterus</span>
<span style="display:none">Ovary</span>
<span style="display:none">Fallopian tubes</span>
<span style="display:none">Endometrium</span>
<span style="display:none">Prostate</span>
<span style="display:none">Testicles</span>
<span style="display:none">Penis</span>
<span style="display:none">Kidney</span>
<span style="display:none">Ureter</span>
<span style="display:none">Bladder</span>
<span style="display:none">Urethra</span>
<span style="display:none">Eye</span>
<span style="display:none">Brain</span>
<span style="display:none">Spinal cord</span>
<span style="display:none">Thyroid gland</span>
<span style="display:none">Parathyroid</span>
<span style="display:none">Adrenal glands</span>
<span style="display:none">Pituitary gland</span>
<span style="display:none">Pancreas</span>
<span style="display:none">Thymus gland</span>
<span style="display:none">Peritoneum</span>
<span style="display:none">Pericardium</span>
<span style="display:none">Retroperitoneum</span>
<span style="display:none">Mesothelium</span>
<span style="display:none">Blood</span>
<span style="display:none">Bone marrow</span>
<span style="display:none">Lymph nodes</span>
<span style="display:none">Spleen</span>
<span style="display:none">Leukemia</span>
<span style="display:none">databaseType::registry</span>
<span style="display:none">dataOwner::Institute of Oncology Ljubljana</span>
<span style="display:none">databaseStructure::longitudinal</span>
<span style="display:none">hasVariable::cancer incidence</span>
<span style="display:none">hasVariable::cancer survival</span>
<span style="display:none">hasVariable::region</span>
<span style="display:none">hasVariable::cancer prevalence</span>
<span style="display:none">hasVariable::age</span>
<span style="display:none">hasVariable::diagnosis</span>
<span style="display:none">hasVariable::tumour staging</span>
<span style="display:none">hasVariable::causes of death</span>
<span style="display:none">hasVariable::tumour histology</span>
<span style="display:none">hasVariable::sex</span>
<span style="display:none">hasVariable::number of deaths|Cancer mortality</span>
<span style="display:none">hasVariable::number of patients</span>
<span style="display:none">hasVariable::medical procedures|treatment</span>
<span style="display:none">availableVariable::cancer incidence</span>
<span style="display:none">availableVariable::region</span>
<span style="display:none">availableVariable::cancer prevalence</span>
<span style="display:none">availableVariable::age</span>
<span style="display:none">availableVariable::diagnosis</span>
<span style="display:none">availableVariable::cancer survival</span>
<span style="display:none">availableVariable::sex</span>
<span style="display:none">availableVariable::number of deaths|Cancer mortality</span>
<span style="display:none">availableVariable::number of patients</span>
<span style="display:none">availableVariable::medical procedures|treatment</span>
<span style="display:none">dataLevel::patient level</span>
<span style="display:none">availableDataLevel::national level</span>
<span style="display:none">dataStart::1950</span>
<span style="display:none">dataEnd::onwards</span>
<span style="display:none">dataAvailability::partially publicly available</span>
<span style="display:none">hasDownloadableData::PDF</span>
<span style="display:none">hasDataAccessCosts::Data has access costs</span>
<span style="display:none">hasDataAccessInstructions::[https://www.onko-i.si/rrs click here to access</span>
<span style="display:none">isDatabase</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>
<span style="display:none">Head</span>
<span style="display:none">Neck</span>
<span style="display:none">Oral</span>
<span style="display:none">Oral cavity</span>
<span style="display:none">Pharynx</span>
<span style="display:none">Pharyngeal</span>
<span style="display:none">Tongue</span>
<span style="display:none">Lingual</span>
<span style="display:none">Nasal cavity</span>
<span style="display:none">Nasal</span>
<span style="display:none">Sinonasal</span>
<span style="display:none">Sinus</span>
<span style="display:none">Sinuses</span>
<span style="display:none">Paranasal sinuses</span>
<span style="display:none">Ear</span>
<span style="display:none">Mandible</span>
<span style="display:none">Maxilla</span>
<span style="display:none">Jaw</span>
<span style="display:none">Esophageal</span>
<span style="display:none">Gastric</span>
<span style="display:none">Intestinal</span>
<span style="display:none">Bowel</span>
<span style="display:none">Colorectal</span>
<span style="display:none">Appendix</span>
<span style="display:none">Appendiceal</span>
<span style="display:none">Duodenum</span>
<span style="display:none">Jejunum</span>
<span style="display:none">Ileum</span>
<span style="display:none">Anal</span>
<span style="display:none">Perianal</span>
<span style="display:none">Hepatic</span>
<span style="display:none">Biliary</span>
<span style="display:none">Hepatobiliary</span>
<span style="display:none">Pulmonary</span>
<span style="display:none">Thorax</span>
<span style="display:none">Thoracic</span>
<span style="display:none">Chest</span>
<span style="display:none">Mediastinal</span>
<span style="display:none">Pleural</span>
<span style="display:none">Cutaneous</span>
<span style="display:none">Dermal</span>
<span style="display:none">Epidermal</span>
<span style="display:none">Subcutaneous</span>
<span style="display:none">Skeletal</span>
<span style="display:none">Osseous</span>
<span style="display:none">Chondral</span>
<span style="display:none">Extremity</span>
<span style="display:none">Axilla</span>
<span style="display:none">Axillary</span>
<span style="display:none">Mammary</span>
<span style="display:none">Cervical</span>
<span style="display:none">Uterine</span>
<span style="display:none">Endometrial</span>
<span style="display:none">Ovarian</span>
<span style="display:none">Tubal</span>
<span style="display:none">Fallopian</span>
<span style="display:none">Vaginal</span>
<span style="display:none">Vulvar</span>
<span style="display:none">Adnexal</span>
<span style="display:none">Renal</span>
<span style="display:none">Urothelial</span>
<span style="display:none">Ureteral</span>
<span style="display:none">Urethral</span>
<span style="display:none">Prostatic</span>
<span style="display:none">Testicular</span>
<span style="display:none">Penile</span>
<span style="display:none">Ocular</span>
<span style="display:none">Orbital</span>
<span style="display:none">Retinal</span>
<span style="display:none">Optic nerve</span>
<span style="display:none">Meninges</span>
<span style="display:none">Meningeal</span>
<span style="display:none">Cerebral</span>
<span style="display:none">Cerebellar</span>
<span style="display:none">Brainstem</span>
<span style="display:none">Lymphatic</span>
<span style="display:none">Lymphoid</span>
<span style="display:none">Lymphoma</span>
<span style="display:none">Hematologic</span>
<span style="display:none">Hematopoietic</span>
<span style="display:none">Myeloma</span>
<span style="display:none">Plasma cell</span>
<span style="display:none">Diaphragm</span>
<span style="display:none">Peripheral nerve</span>
<span style="display:none">Heart</span>
<span style="display:none">Cardiac</span>
<span style="display:none">Endocrine</span>

Latest revision as of 11:58, 14 December 2025

Go back to Slovenia page forresearchers sloveniacountry

Type of database: registry.

Primary purpose: To provide comprehensive historical and ongoing data on cancer incidence, prevalence, mortality, and survival in Slovenia, serving as a critical resource for epidemiological and oncological research and evaluating the effectiveness of cancer prevention, diagnosis, treatment, and care, as well as for planning necessary resources for cancer control.

Sponsor, manager or home institution: Institute of Oncology Ljubljana.

Type of information: longitudinal. cancer incidence; cancer survival; region; cancer prevalence; age; diagnosis; tumour staging; causes of death; tumour histology; sex; Cancer comparisons with Europe; Cancer mortality; number of patients that received cancer treatment. Data dictionary was not found. For more data information click here to learn more.

Available type of information: cancer incidence; region; cancer prevalence; age; diagnosis; cancer survival; sex; Cancer comparisons with Europe; Cancer mortality; number of patients that received cancer treatment. Click here to learn more.

Source of Information: The main sources of data are notifications of cancer, gathered from all hospitals and diagnostic centres in Slovenia. Source for mortality is the National Institute of Public Health.

Data level: patient level.

Available data level: national level.

Number of Records: Reports with the number of cancers for each incidence year, click here to access.

Date range: From 1950 onwards.

Cancer areas of interest: C00-D48: All neoplasms. Click here to learn more.

Data access: partially publicly available. Click here to access. For reports information click here to access. Data can be downloaded in the PDF format. Data has access costs. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Mouth Throat Oropharynx Nasopharynx Hypopharynx Larynx Salivary glands Lips Tonsils base of tongue Voice box Esophagus Stomach Small intestine Large intestine Colon Rectum Anus Liver Gallbladder Bile ducts Pancreas Lung Trachea Bronchi Pleura Mediastinum Bone Cartilage Osteosarcoma Ewings sarcoma Skin Melanoma Scalp Lips Hands Feet Muscle Fat Tendon Ligament Blood vessels Connective tissue Sarcoma Angiosarcoma Liposarcoma Lobular Breast Nipple Areola Ductal Vulva Vagina Cervix Uterus Ovary Fallopian tubes Endometrium Prostate Testicles Penis Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Peritoneum Pericardium Retroperitoneum Mesothelium Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry dataOwner::Institute of Oncology Ljubljana databaseStructure::longitudinal hasVariable::cancer incidence hasVariable::cancer survival hasVariable::region hasVariable::cancer prevalence hasVariable::age hasVariable::diagnosis hasVariable::tumour staging hasVariable::causes of death hasVariable::tumour histology hasVariable::sex hasVariable::number of deaths|Cancer mortality hasVariable::number of patients hasVariable::medical procedures|treatment availableVariable::cancer incidence availableVariable::region availableVariable::cancer prevalence availableVariable::age availableVariable::diagnosis availableVariable::cancer survival availableVariable::sex availableVariable::number of deaths|Cancer mortality availableVariable::number of patients availableVariable::medical procedures|treatment dataLevel::patient level availableDataLevel::national level dataStart::1950 dataEnd::onwards dataAvailability::partially publicly available hasDownloadableData::PDF hasDataAccessCosts::Data has access costs hasDataAccessInstructions::[https://www.onko-i.si/rrs click here to access isDatabase hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown Head Neck Oral Oral cavity Pharynx Pharyngeal Tongue Lingual Nasal cavity Nasal Sinonasal Sinus Sinuses Paranasal sinuses Ear Mandible Maxilla Jaw Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Pulmonary Thorax Thoracic Chest Mediastinal Pleural Cutaneous Dermal Epidermal Subcutaneous Skeletal Osseous Chondral Extremity Axilla Axillary Mammary Cervical Uterine Endometrial Ovarian Tubal Fallopian Vaginal Vulvar Adnexal Renal Urothelial Ureteral Urethral Prostatic Testicular Penile Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Diaphragm Peripheral nerve Heart Cardiac Endocrine