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| | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">sloveniacountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == Cancer Centers == | | == Cancer Centers == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| == Healthcare System ==
| | [[hasCancerCenter::Institute of Oncology Ljubljana]] |
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| Slovenia uses a universal healthcare system, which is primarily funded through the Health Insurance Institute of Slovenia (Zavod za zdravstveno zavarovanje Slovenije or ZZZS). The system provides comprehensive and compulsory health insurance coverage to all citizens and residents, with opting out not allowed.
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| The healthcare system is managed at the national level by the Ministry of Health, while the Health Insurance Institute of Slovenia (ZZZS) is responsible for administering the health insurance fund. There are also regional healthcare providers and institutions that operate under the guidance of the national framework. Municipalities have a role in overseeing the organization and provision of primary care, albeit limited in decision-making.
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| The population receives a wide range of healthcare benefits through the system, including primary care, specialist care, hospital care, dental care, maternity care, mental health services, preventive care, and prescription medications. Some services may require co-payments, but the majority of the costs are covered by the national health insurance fund. About 95% of the population purchases complementary Voluntary Health Insurance (VHI) mainly to cover co-payments.
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| To access the benefits of the healthcare system, individuals must be insured under the ZZZS. This insurance is mandatory for all citizens and residents, and it is typically provided through employment. Unemployed individuals, students, retirees, and other vulnerable groups are also insured through various social programs or via their family members' insurance.
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| In Slovenia, claims data, registries, and electronic health records are maintained and recorded using a combination of digital systems and traditional methods. The National Institute of Public Health (NIJZ) manages the national health registries, which include data on births, deaths, diseases, and treatments. Electronic health records are increasingly being adopted, with the eHealth project aiming to improve and integrate health information systems to facilitate better care coordination and information sharing among healthcare providers. GPs act as gatekeepers for accessing specialized care, and long waiting times for some specialist services persist.
| | == [[hasHealthcareSystem::Healthcare_System_(Slovenia)|Healthcare System]] == |
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| == Administrative or Claims Data == | | == Administrative or Claims Data == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| === Database: SiStat Death === | | === [[hasDatabase::Database:_SiStat_Death_(Slovenia)|Database: SiStat Death]] === |
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| '''Sponsor, manager or home institution:''' Statistični urad RS; Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' To provide data on deaths and natural population trends for the formulation of appropriate demographic, social, health and other policies at national and subnational levels.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://www.stat.si/statweb/File/DocSysFile/9513].
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| '''Available type of information:''' Number of deaths; Sex; Age; Number of deaths per 1,000 population; Average age of deaths; Cause of deaths, Life expectancy, and infant deaths per 1,000 live births.
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| '''Source of Information:''' Surveys. More information can be found in the methodological document [https://www.stat.si/statweb/File/DocSysFile/9513].
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| '''Data level:''' Patient level.
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| '''Available data level:''' Regional and national level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' Unknown.
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| '''Available date range:''' 2002 onwards.
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| '''Cancer Areas of Interest:''' Neoplasms (C00-D48).
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| '''Open data access:''' Partially publicly available [https://pxweb.stat.si/SiStat/sl/Podrocja/Index/100/prebivalstvo] under "Population" > "Mortality" > "Cause of Death". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://pxweb.stat.si/SiStatData/pxweb/sl/Data/-/05L3013S.px].
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| === Database: NIJZ Sick Leave ===
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' To monitor and analyze the causes and other characteristics of temporary absenteeism.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://podatki.nijz.si/docs/3_3f_BS_2018.pdf].
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| '''Available type of information:''' Indicators of the patient population; Year; Gender; Age; Disease groups; Reason for withholding patient population; Economic activities; Health regions and statistical regions.
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| '''Source of Information:''' Public and private healthcare providers at the primary level (outpatient clinics of selected - personal physicians) report to the regional units of the NIJZ.
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| '''Data level:''' Patient level.
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| '''Available data level:''' National level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1983 onwards.
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| '''Available date range:''' 2000 onwards.
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| '''Cancer Areas of Interest:''' Neoplasms (C00-D48).
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Health status of the population" > "Sick Leave". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/docs/3_3f_BS_2018.pdf].
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| === Database: NIJZ Outpatient Health (ZUBSTAT) ===
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' The purpose of the out-of-hospital health statistics database (ZUBSTAT) is to monitor, evaluate and
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| plan curative and preventive health care at the primary and secondary levels.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://podatki.nijz.si/docs/MP_Zubstat.pdf].
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| '''Available type of information:''' Number and rate of visits at the primary level; Year; Types of visits; Number and rate of preventive visits; Age group; Gender; Number and rate of curative; Home visits and counseling; Statistical region; Number of corrective visits; Number and rate of diagnosed diseases; Conditions at the primary level; ICD-10; Main diagnoses chapters; Number and rate of visits to specialist outpatient services; Type of medical activity; Number of curative visits in specialist outpatient services and conditions in specialist outpatient services.
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| '''Source of Information:''' Reported by public and private healthcare providers.
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| '''Data level:''' Patient level.
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| '''Available data level:''' National level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1996 onwards [https://podatki.nijz.si/docs/MP_Zubstat.pdf].
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| '''Cancer Areas of Interest:''' Neoplasms (C88-D48).
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Healthcare" > "Treatments at primary care level" and "Healthcare" > "Specialized outpatient treatments". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/docs/MP_Zubstat.pdf].
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| === Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB) ===
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' Monitoring and studying the incidence of diseases, injuries and poisonings that require hospital treatment.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://podatki.nijz.si/docs/6_6b_SBO_2016.pdf].
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| '''Available type of information:''' Number of hospitalizations due to illness; Gender; Year; Statistical region; Age group; Main diagnoses; ICD-10; Number of first and re-admissions to hospitals; Number of hospitalizations due to injuries and poisoning; Reason for hospital treatment; External cause; Number of deaths; Number of hospitalizations due to accidental injuries and poisoning; Number of hospitalizations due to intentional injuries and poisoning; Number of hospitalizations due to transport accidents with motor vehicles; Type of injury and poisoning; Number of episodes of hospital treatment due to illness, injury and poisoning; Type of treatment; Number of daily hospital treatments due to illnesses, injuries and poisoning; Number of episodes of prolonged hospital treatment due to diseases, injuries and poisoning; Number of episodes of extended hospital treatment due to illness, injury and poisoning; Rate of hospitalizations due to illness (per 1,000 inhabitants); Average duration of hospitalizations due to illness; Average duration of hospitalizations due to illness in days; Percentage of first and re-admissions to hospitals due to illness; Admission type; Proportion of hospitalizations due to illness; Average duration of hospitalization (in days) due to the most common diseases; Rate of hospitalizations (per 1,000 inhabitants) due to injuries and poisoning; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to injuries and poisonings; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to (un)intentional injuries and poisonings; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to transport accidents with motor vehicles, suicide and assault and legal intervention; Average duration of hospitalizations (in days) due to injuries and poisonings.
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| '''Source of Information:''' Reporters are all institutions that perform hospital activities in the Republic of Slovenia.
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| '''Data level:''' Patient level.
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| ''' Available data level:''' Regional and national level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1965 onwards.
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| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)]].
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Healthcare" > "Hospital treatments". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/docs/6_6b_SBO_2016.pdf].
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| === Database: NIJZ Healthcare Providers ===
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' To serve as a comprehensive national resource for planning, monitoring, and implementing healthcare and health insurance systems, as well as a register for various groups of medical personnel.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf].
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| '''Available type of information:''' Year; Age group; Gender; Employees; Professional groups; Statistical regions; Employees according to the list of occupations in the health sector; Type of contractor and legal status; MOH profession; Type of specialization; Specialization status; Indicators of employees in healthcare.
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| '''Source of Information:''' Providers are registered on the NIJZ, and private providers are managed by the Ministry of Health [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf].
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| '''Data level:''' Patient level.
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| '''Available data level:''' Regional and national level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1997 onwards.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Resources in Healthcare" > "Healthcare Providers". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf].
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| === Database: NIJZ Hospital Beds ===
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' Provide information on hospital beds for the purposes of research and policymaking.
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| '''Type of information:''' Data dictionary was not found.
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| '''Available type of data:''' Number of hospital beds, Hospital activity; Year; Region; Statistical region of hospitals.
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| '''Source of Information:''' Report on the work of the inpatient institution.
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| '''Data level:''' Patient level.
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| '''Available data level:''' National level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 2003 onwards.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Resources in Healthcare" > "Hospital Beds". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__5%20Viri%20v%20zdravstvu__3%20Bolni%C5%A1ke%20postelje/Postelje1.px/].
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| === Database: NIJZ Medical Devices === | |
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| '''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
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| '''Primary purpose:''' To provide information about medical devices for the purposes of research and policymaking.
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| '''Type of information:''' Data dictionary was not found. More metadata information [https://podatki.nijz.si/docs/6i_MET_POJASNILA_NAPRAVE.pdf].
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| '''Available type of information:''' Year; Devices in healthcare; Number and rate; Contractor type.
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| '''Source of Information:''' Administration of the Republic of Slovenia for Radiation Protection; Ministry of Health in cooperation with the Institute for Health Insurance of Slovenia.
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| '''Data level:''' Hospital level.
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| '''Available data level:''' National level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 2004 onwards.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Resources in Healthcare" > "Devices in Healthcare". Instructions to request data for restricted content [https://nijz.si/izvajalci/].
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| '''Information/Contact for data request:''' Contact information [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__5%20Viri%20v%20zdravstvu__2%20Naprave%20v%20zdravstvu/Naprave.px/].
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| === Database: ZZZS Number of treatments by healthcare provider ===
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| '''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
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| '''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on treatments provided by healthcare providers for healthcare management, policy decisions, and to facilitate better citizen access to health services.
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| '''Type of information:''' Days; Months; Year; Contractor; Health worker; Type of medical activity; Subtype of health activity; Number of treatments.
| | === [[hasDatabase::Database:_NIJZ_Sick_Leave_(Slovenia)|Database: NIJZ Sick Leave]] === |
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| '''Source of Information:''' Unknown.
| | === [[hasDatabase::Database:_NIJZ_Outpatient_Health_(ZUBSTAT)_(Slovenia)|Database: NIJZ Outpatient Health (ZUBSTAT)]] === |
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| '''Data level:''' Provider and hospital level.
| | === [[hasDatabase::Database:_NIJZ_Records_on_Diseases,_Poisonings_and_Injuries_on_Hospitals_(BOLOB)_(Slovenia)|Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)]] === |
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| '''Number of Records:''' Number of records can be counted in each spreadsheet.
| | === [[hasDatabase::Database:_NIJZ_Healthcare_Providers_(Slovenia)|Database: NIJZ Healthcare Providers]] === |
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| '''Date Range:''' October, 2022 onwards.
| | === [[hasDatabase::Database:_NIJZ_Hospital_Beds_(Slovenia)|Database: NIJZ Hospital Beds]] === |
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| '''Cancer Areas of Interest:''' All.
| | === [[hasDatabase::Database:_NIJZ_Medical_Devices_(Slovenia)|Database: NIJZ Medical Devices]] === |
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| '''Open data access:''' Publicly available [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/podatki_o_izvedenih_obravnavah_po_zdravstvenem_delavcu/seznam_datotek_4136].
| | === [[hasDatabase::Database:_ZZZS_Number_of_treatments_by_healthcare_provider_(Slovenia)|Database: ZZZS Number of treatments by healthcare provider]] === |
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| '''Information/Contact for data request:''' Contact information [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/].
| | === [[hasDatabase::Database:_ZZZS_Planned_Number_of_Teams_(Slovenia)|Database: ZZZS Planned Number of Teams]] === |
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| === Database: ZZZS Planned Number of Teams === | | === [[hasDatabase::Database:_ZZZS_Planned_and_Implemented_Health_Services_(Slovenia)|Database: ZZZS Planned and Implemented Health Services]] === |
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| '''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
| | === [[hasDatabase::Database:_ZZZS_Planned_and_Implemented_Imaging_Diagnostics_for_the_Detection_or_Treatment_of_Cancer_(Slovenia)|Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer]] === |
| | | </div> |
| '''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the planned number of teams by individual providers and medical activities (VZD) for healthcare management, policy decisions, and to facilitate better citizen access to health services.
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| '''Type of information:''' Year; Name of the activity; Number of teams; Type of ownership; Regional contracting unit; ZZZS no. contractor; IVZ no. contractor; Name of the contractor; Type of medical activity; Subtype of health activity; Service code; 4th level of contractual activity; Description of the 4th level of contractual activity; NO. TIMOV.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' Hospital level.
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| '''Number of Records:''' Number of records can be counted in each spreadsheet.
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| '''Date Range:''' 2013-2020.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Publicly available [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/podatki_o_dostopnosti_do_zdravstvenih_storitev/planirano_stevilo_timov/!ut/p/z1/04_Sj9CPykssy0xPLMnMz0vMAfIjo8zivf19DAz9DQwNA3yczA3MLILNPZy9gwzcDc31C7IdFQF0gdKM/].
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| '''Information/Contact for data request:''' Contact information [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/].
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| === Database: ZZZS Planned and Implemented Health Services ===
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| '''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
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| '''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the planned and implemented health services for healthcare management, policy decisions, and to facilitate better citizen access to health services.
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| '''Type of information:''' Activity; Regional contracting unit; Type of ownership; Type of medical activity; Subtype of health activity; Service code; Name of the activity; Plan; Rea; Index; Plan O,P; Rea O,P; Index O,P; ZZZS no. contractor; IVZ no. contractor; Name of the contractor.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' Hospital and regional level.
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| '''Number of Records:''' Number of records can be counted in each spreadsheet.
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| '''Date Range:''' 2018 onwards.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Publicly available, for data before 2022 [https://api.zzzs.si/zzzs/pao/izvajalci.nsf/ZbirniPlanRealizacija?openview&count=1000] and [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/plan_in_realizacija/podatki_o_planu_in_realizaciji_zdrav_storitve/seznam_datotek#Z7_KOL01O011PO860QNVUM8V00IU0] for data after 2022.
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| '''Information/Contact for data request:''' Contact information [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/].
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| === Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer ===
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| '''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
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| '''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the imaging diagnostics for the detection or treatment of cancer for healthcare management, policy decisions, and to facilitate better citizen access to health services.
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| '''Type of information:''' Plan; Rea; Rea for Rak; Index; ZZZS no. contractor; IVZ no. contractor; Name of the contractor; Contractor nº.; Regional contracting unit; Type; Subtype; Service.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' Hospital level.
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| '''Number of Records:''' Number of records can be counted in each spreadsheet.
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| '''Date Range:''' 2018 and 2019.
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| '''Cancer Areas of Interest:''' All.
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| '''Open data access:''' Publicly available [https://api.zzzs.si/zzzs/pao/izvajalci.nsf/slike?openview&count=1000].
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| '''Information/Contact for data request:''' Contact information [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/].
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| == Registries == | | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| === Database: Slovenian Cancer Registry === | | === [[hasDatabase::Database:_Slovenian_Cancer_Registry_(Slovenia)|Database: Slovenian Cancer Registry]] === |
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| '''Sponsor, manager or home institution:''' Institute of Oncology Ljubljana [https://www.onko-i.si/eng/].
| | === [[hasDatabase::Database:_The_Svit_Programme_-_Colorectal_Cancer_Screening_Programme_(Slovenia)|Database: The Svit Programme - Colorectal Cancer Screening Programme]] === |
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| '''Primary purpose:''' To provide comprehensive historical and ongoing data on cancer incidence, prevalence, mortality, and survival in Slovenia, serving as a critical resource for evaluating the effectiveness of cancer prevention, diagnosis, treatment, and care, as well as for planning necessary resources for cancer control.
| | === [[hasDatabase::Database:_DORA_Breast_Cancer_Screening_Registry_(Slovenia)|Database: DORA Breast Cancer Screening Registry]] === |
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| '''Type of information:''' Definitions of available cancer burden measures in the website [http://www.slora.si/en/definicije-kazalnikov-in-metod].
| | === [[hasDatabase::Database:_Cervical_Cancer_Screening_Registry_ZORA_(Slovenia)|Database: Cervical Cancer Screening Registry ZORA]] === |
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| '''Source of Information:''' Source for incidence and prevalence is the Slovenian Cancer Registry (SCR) [https://www.onko-i.si/eng/crs]. Source for Mortality is the Nacionalni inštitut za javno zdravje (NIJZ) [http://www.nijz.si/].
| | </div> |
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| '''Data level:''' Aggregated level.
| | == Clinical Practices Guidelines == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Available data level:''' Regional and national level.
| | === [[hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Guidelines: Onko Guidelines]] === |
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| '''Number of Records:''' N/A.
| | === [[hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Guideline: Zora Professional recommendations and guidelines]] === |
| | </div> |
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| '''Date Range:''' 1961 onwards.
| | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Cancer Areas of Interest:''' All malignant neoplasms and some additional benign and in situ entities.
| | === [[hasReport::Reports:_Slovenian_Cancer_Registry_(Slovenia)|Reports: Slovenian Cancer Registry]] === |
|
| |
|
| '''Open data access:''' Partially publicly available [http://www.slora.si/en/]. Reports information [https://www.onko-i.si/eng/crs]. Instructions to request data for restricted content [https://www.onko-i.si/rrs].
| | === [[hasReport::Reports:_ZORA_Program_(Slovenia)|Reports: ZORA Program]] === |
|
| |
|
| '''Information/Contact for data request:''' Contact information [https://www.onko-i.si/eng/crs].
| | === [[hasReport::Reports:_DORA_Program_(Slovenia)|Reports: DORA Program]] === |
|
| |
|
| === Database: Programme Svit Colorectal Cancer Screening === | | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Slovenia)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' Svit Programme; Nacionalni inštitut za javno zdravje.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Slovenia)|Report: EU Country Cancer Profile 2025]] === |
|
| |
|
| '''Primary purpose:''' To provide information on the colonoscopy screenings performed by the Svit Programme in order to support research and policymaking.
| | === [[hasReport::Report:_National_Cancer_Control_Program_2022-2026_(Slovenia)|Report: National Cancer Control Program 2022-2026]] === |
| | </div> |
|
| |
|
| '''Type of information:''' Data dictionary was not found.
| | == Cancer-related Patient Associations and Resources == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| '''Available type of information:''' Response in the Svit Programme; Gender; Region; Municipalities; Year.
| | === [[hasPatientAssociation::Patient_Association:_The_Association_of_Oncology_Patients_of_Slovenia_(Slovenia)|Patient Association: The Association of Oncology Patients of Slovenia]] === |
|
| |
|
| '''Source of Information:''' Information collected by the Svit Programme.
| | === [[hasPatientAssociation::Patient_Assocaition:_ONKO_NET_(Slovenia)|Patient Association: ONKO NET]] === |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' Regional and national level.
| |
| | |
| '''Number of Records:''' Reports with the number of participants for each year [https://www.program-svit.si/za-uporabnike/o-nas/#porocila-o-izvajanju-programa].
| |
| | |
| '''Date Range:''' 2010 onwards [https://podatki.nijz.si/docs/Metodolo%C5%A1ka_pojasnila_SVIT.pdf].
| |
| | |
| '''Cancer Areas of Interest:''' Malignant neoplasm of the colon (C18); Malignant neoplasm of the rectosigmoid junction (C19); Malignant neoplasm of the rectum (C20); Benign neoplasm of colon, rectum, anus and anal canal (D12).
| |
| | |
| '''Open data access:''' Partially publicly available [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/] under "Preventive Programs" > "National program for screening and early detection of precancerous changes and colon and rectal cancer (Svit)". Reports information [https://www.program-svit.si/za-uporabnike/o-nas/#porocila-o-izvajanju-programa]. Instructions to request data for restricted content [https://podatki.nijz.si/docs/Navodila_za_uporabnike_2022.pdf] in the "Contact section".
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://www.program-svit.si/] at the end of the page.
| |
| | |
| === Database: DORA Breast Cancer Screening === | |
| | |
| '''Sponsor, manager or home institution:''' DORA Program; Ljubljana Oncology Institute.
| |
| | |
| '''Primary purpose:''' To provide information on the breast screenings performed by the DORA Program in order to support research and policymaking.
| |
| | |
| '''Type of information:''' Data dictionary was not found.
| |
| | |
| '''Available type of information:''' Regional unit; Year; Age group; Screening round number; Number of women pictured; Number of women invited to mammography; Participation in the DORA program; Conference consensus; Number of women on additional treatments; Number of breast cancers detected; Number of screening centers in operation; Proportion of invited women who attended screening mammography; Proportion of women attending follow-up; Proportion of invasive cancers; Breast cancer detection rate (per 1,000 women screened); Screening-detected invasive cancers with negative lymph nodes; Proportion in screening of detected cancers that are stage II or higher; Proportion of detected invasive cancers that are <= 10 mm in the first round of screening; Proportion of invasive cancers < 15 mm detected in screening; Time interval between screening imaging and screening mammography result time; Interval between preoperative conference and date for surgery.
| |
| | |
| '''Source of Information:''' Information collected by the DORA Program.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' Regional and national level.
| |
| | |
| '''Number of Records:''' Reports with the number of participants for each year [https://dora.onko-i.si/dokumenti].
| |
| | |
| '''Date Range:''' 2008 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Malignant neoplasm of breast (C50).
| |
| | |
| '''Open data access:''' Partially publicly available [https://dora.onko-i.si/dokumenti]. Instructions to request data for restricted content [https://dora.onko-i.si/dokumenti] in "More Information".
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://dora.onko-i.si/dokumenti] at the end of the page.
| |
| | |
| === Database: ZORA Cervical Cancer Screening ===
| |
| | |
| '''Sponsor, manager or home institution:''' ZORA Program; Ljubljana Oncology Institute.
| |
| | |
| '''Primary purpose:''' To reduce morbidity and mortality from cervical cancer in Slovenia.
| |
| | |
| '''Type of information:''' Data dictionary was not found.
| |
| | |
| '''Available type of information:''' Year; Age group; Territorial unit; No. of examined women; No. of women with permanent residence; Transparency.
| |
| | |
| '''Source of Information:''' Information collected by the ZORA Program.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' Regional and national level.
| |
| | |
| '''Number of Records:''' Reports with the number of participants for each year [https://zora.onko-i.si/publikacije/letna-porocila].
| |
| | |
| '''Date Range:''' 2003 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Malignant neoplasm of cervix uteri (C53); Carcinoma in situ of cervix uteri (D06).
| |
| | |
| '''Open data access:''' Partially publicly available [https://zora.onko-i.si/publikacije/kazalniki]. Reports information [https://zora.onko-i.si/publikacije/letna-porocila]. Instructions to request data for restricted content [https://zora.onko-i.si/program-zora/register-zora].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://zora.onko-i.si/pomozne-strani/kontakt].
| |
| <!--
| |
| More data that I didn't have time to look into: https://podatki.gov.si/data/search?open_data=True&all_podrocje=Zdravje
| |
| | |
| == Databases for Clinical Trials, Surveys and Biobanks ==
| |
| | |
| === Database: European Health Interview Survey ===
| |
| | |
| https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__1%20Zdravstveno%20stanje%20prebivalstva__10%20Samoocena%20kroni%C4%8Dnih%20obolenj__2%20Bolezni%20in%20bolezenska%20stanja%20(EHIS_CD)/01EHIS14%20bolezni.px/
| |
| | |
| == Electronic Health Records ==
| |
| | |
| == Clinical Practices Guidelines ==
| |
| Guidelines from the Dora Program: https://dora.onko-i.si/dokumenti
| |
| Publications on cervical cancer screening: https://zora.onko-i.si/publikacije/drugo
| |
| https://zora.onko-i.si/za-stroko/strokovna-priporocila-in-smernice
| |
| | |
| | |
| == Latest Policymaking Initiatives ==
| |
| | |
| https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/splosni_dogovori_in_aneksi/splosni_dogovori_in_aneksi
| |
| -->
| |
| | |
| == Cancer-related Patient Associations and Resources ==
| |
|
| |
|
| === ESMO Patient Guides === | | === [[hasPatientAssociation::Patient_Association:_Europa_Donna_-_Slovenian_association_for_the_fight_against_breast_cancer_(Slovenia)|Patient Association: Europa Donna - Slovenian association for the fight against breast cancer]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' European Society for Medical Oncology (ESMO).
| | === [[hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|Patient Guides: ESMO Patient Guides]] === |
|
| |
|
| '''Primary purpose:''' Provide patients, their relatives and caregivers guides to better understand complex medical information about different types of cancer.
| | === [[hasPatientResource::Self-help_Group:_Cancer_Patient_to_Patient_Community_(Slovenia)|Self-help Group: Cancer Patient to Patient Community]] === |
|
| |
|
| '''Available guides:''' Cancer Treatment During the COVID-19 Pandemic; Side Effects Associated with Immunotherapy and Their Management; Personalized Medicine in Oncology; Life with Cancer; Breast Cancer; Ovarian Cancer; Cervical Cancer.
| | </div> |
|
| |
|
| '''Type of information:''' Laymen-directed descriptions of specific cancers, their causes, diagnoses, treatment, screening, and side effects, among other relevant information for patients, their relatives and caregivers.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Slovenia)|Quality of Life and Palliative Care Research]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
|
| |
|
| '''Access to information:''' Patient Guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-croatian].
| | __NOTOC__ |
| | <span style="display:none">hasCancerCenter::Institute of Oncology Ljubljana</span> |
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Slovenia)|Healthcare System</span> |
| | <span style="display:none">hasDatabase::Database:_SiStat_Death_(Slovenia)|Database: SiStat Death</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Sick_Leave_(Slovenia)|Database: NIJZ Sick Leave</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Outpatient_Health_(ZUBSTAT)_(Slovenia)|Database: NIJZ Outpatient Health (ZUBSTAT)</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Records_on_Diseases,_Poisonings_and_Injuries_on_Hospitals_(BOLOB)_(Slovenia)|Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Healthcare_Providers_(Slovenia)|Database: NIJZ Healthcare Providers</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Hospital_Beds_(Slovenia)|Database: NIJZ Hospital Beds</span> |
| | <span style="display:none">hasDatabase::Database:_NIJZ_Medical_Devices_(Slovenia)|Database: NIJZ Medical Devices</span> |
| | <span style="display:none">hasDatabase::Database:_ZZZS_Number_of_treatments_by_healthcare_provider_(Slovenia)|Database: ZZZS Number of treatments by healthcare provider</span> |
| | <span style="display:none">hasDatabase::Database:_ZZZS_Planned_Number_of_Teams_(Slovenia)|Database: ZZZS Planned Number of Teams</span> |
| | <span style="display:none">hasDatabase::Database:_ZZZS_Planned_and_Implemented_Health_Services_(Slovenia)|Database: ZZZS Planned and Implemented Health Services</span> |
| | <span style="display:none">hasDatabase::Database:_ZZZS_Planned_and_Implemented_Imaging_Diagnostics_for_the_Detection_or_Treatment_of_Cancer_(Slovenia)|Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer</span> |
| | <span style="display:none">hasDatabase::Database:_Slovenian_Cancer_Registry_(Slovenia)|Database: Slovenian Cancer Registry</span> |
| | <span style="display:none">hasDatabase::Database:_The_Svit_Programme_-_Colorectal_Cancer_Screening_Programme_(Slovenia)|Database: The Svit Programme - Colorectal Cancer Screening Programme</span> |
| | <span style="display:none">hasDatabase::Database:_DORA_Breast_Cancer_Screening_Registry_(Slovenia)|Database: DORA Breast Cancer Screening Registry</span> |
| | <span style="display:none">hasDatabase::Database:_Cervical_Cancer_Screening_Registry_ZORA_(Slovenia)|Database: Cervical Cancer Screening Registry ZORA</span> |
| | <span style="display:none">hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Onko Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Zora: Professional recommendations and guidelines</span> |
| | <span style="display:none">hasReport::Reports:_Slovenian_Cancer_Registry_(Slovenia)|Reports: Slovenian Cancer Registry</span> |
| | <span style="display:none">hasReport::Reports:_ZORA_Program_(Slovenia)|Reports: ZORA Program</span> |
| | <span style="display:none">hasReport::Reports:_DORA_Program_(Slovenia)|Reports: DORA Program</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Slovenia)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::Report:_National_Cancer_Control_Program_2022-2026_(Slovenia)|Report: National Cancer Control Program 2022-2026</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_The_Association_of_Oncology_Patients_of_Slovenia_(Slovenia)|Patient Association: The Association of Oncology Patients of Slovenia</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Assocaition:_ONKO_NET_(Slovenia)|Patient Association: ONKO NET</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Europa_Donna_-_Slovenian_association_for_the_fight_against_breast_cancer_(Slovenia)|Patient Association: Europa Donna - Slovenian association for the fight against breast cancer</span> |
| | <span style="display:none">hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|ESMO Patient Guides</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Slovenia)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Guideline: Zora Professional recommendations and guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Guidelines: Onko Guidelines</span> |
| | <span style="display:none">hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|Patient Guides: ESMO Patient Guides</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |
