Germany: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">germanycountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
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The Statutory Health Insurance (SHI) is a compulsory health insurance system that covers 90% of the population, consisting of 110 privately-run and not-for-profit sickness funds that act as third-party payers. The services provided by these sickness funds are decided by the Federal Joint Committee, which in turn is supervised by the Ministry of Health, and all sickness funds are represented by the National Association of Statutory Health Insurance Funds. Payment for the insurance is either discounted from the salary, or from the governmental benefits or allowances a person may receive. Their children and non-working spouses are also covered at no additional cost. You can opt for a Private Health Insurance (PHI) instead if your income is superior to 66,600 Euros (as of 2023), you’re self-employed or a civil servant. That does not include supplementary PHIs.
[[hasCancerCenter::National Cancer Center Dresden]]


The main body responsible for health monitoring in Germany is the Robert Koch Institute (RKI), whereas the Federal Statistics Office (Destatis) is the data holder for many health-related statistics, including hospital statistics and cause of death statistics.
[[hasCancerCenter::Charité Comprehensive Cancer Center]]


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::University Cancer Center Frankfurt]]
</div>


== [[Registries]] ==
== [[hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System]] ==
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</div>


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
== Administrative or Claims Data ==
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=== Diagnosis Related Groups (DRG) Survey ===
=== [[hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey]] ===


'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ)
=== [[hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics]] ===


'''Primary purpose:''' The Diagnosis Related Groups (DRG) statistic is a full annual census of all inpatient hospital cases within Germany that are billed according to case flat rates.


'''Type of information:''' Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/en/10-21242-23141-2020-00-00-1-2-0 here].
</div>


'''Source of Information:''' Hospitals send information to the Hospital Remuneration System (InEK)
== Registries ==
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'''Data level:''' Patient level.
=== [[hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry]] ===


'''Number of Records:''' 16.359.312 patients, of which 1.775.648 (10,85%)
=== [[hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry]] ===


'''Date Range:''' 2005 to 2020.
=== [[hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)]] ===
</div>


'''Cancer Areas of Interest:''' Neologisms (C00 – D48)
== Databases for Clinical Trials, Surveys and Biobanks ==
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'''Open data access:''' Data is not openly available. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/drg here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here].
=== [[hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults]] ===


'''Information/Contact for data request:''' Contact information can be found [https://www.forschungsdatenzentrum.de/en/contact here].
=== [[hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer]] ===
</div>


== [[Electronic Health Records]] ==
== Clinical Practices Guidelines ==
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== [[Clinical Practices Guidelines]] ==
=== [[hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation]] ===


== [[Latest Policymaking Initiatives]] ==
=== [[hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation]] ===


=== Report: National Association of Statutory Health Insurance Annual Reports ===
=== [[hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines]] ===


'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
=== [[hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer]] ===
Funds


'''Primary purpose:'''' Provide an overview of plans created and actions taken during a year by the association.
</div>


'''Type of information:''' Discussions on policies, guidelines and plans relevant to the report's year. For the latest publication (2021), there are discussions on the participation of the association on the "Europe's Beating Cancer Plan", as well as an update on the results of the Cancer Registry Data Act.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


''''Level:''' National level.
=== [[hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany]] ===


'''Access to information:''' [https://www.gkv-spitzenverband.de/media/dokumente/service_1/publikationen/geschaeftsberichte/GKV-SV_GB2021_Englisch.pdf Information can be found here.]
=== [[hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports]] ===


=== Compilation: Documents regarding Cancer Registry legislation ===
=== [[hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation]] ===


'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
=== [[hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German]] ===
Funds


'''Primary purpose:'''' Offer information about Cancer Registry legislation and current status.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023]] ===


'''Type of information:''' Legislation, reports, expert opinions, and other documents regarding the current status of the efforts to create systematic and uniform cancer registries.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Germany)|Report: EU Country Cancer Profile 2025]] ===


''''Level:''' National level.
=== [[hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023]] ===


'''Access to information:''' [https://www.gkv-spitzenverband.de/krankenversicherung/qualitaetssicherung_2/klinisches_krebsregister.jsp Information can be found here.]
=== [[hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer]] ===
</div>


== [[Cancer-related Patient Associations]] ==
== Cancer-related Patient Associations and Resources ==
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=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation]] ===
 
=== [[hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation]] ===
 
=== [[hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid]] ===
 
=== [[hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society]] ===
 
=== [[hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst]] ===
 
=== [[hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal]] ===
</div>
 
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research]] ==
</div>
 
__NOTOC__
<span style="display:none">hasCancerCenter::National Cancer Center Dresden</span>
<span style="display:none">hasCancerCenter::Charité Comprehensive Cancer Center</span>
<span style="display:none">hasCancerCenter::University Cancer Center Frankfurt</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey</span>
<span style="display:none">hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics</span>
<span style="display:none">hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry</span>
<span style="display:none">hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)</span>
<span style="display:none">hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults</span>
<span style="display:none">hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines</span>
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
<span style="display:none">hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany</span>
<span style="display:none">hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports</span>
<span style="display:none">hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation</span>
<span style="display:none">hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023</span>
<span style="display:none">hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society</span>
<span style="display:none">hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst</span>
<span style="display:none">hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation</span>
<span style="display:none">hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:54, 27 January 2026

forresearchers forpatients forproviders forpolicymakers germanycountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

National Cancer Center Dresden

Charité Comprehensive Cancer Center

University Cancer Center Frankfurt

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Diagnosis Related Groups (DRG) Survey[edit | edit source]

Database: Hospital Statistics[edit | edit source]

Registries[edit | edit source]

Database: ZfKD Cancer Registry[edit | edit source]

Database: Cause of Death Registry[edit | edit source]

Database: German Childhood Cancer Registry (DKKR)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: German Health Interview and Examination Survey for Adults[edit | edit source]

Survey: National Decade against Cancer[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: DKG Guidelines Compilation[edit | edit source]

Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation[edit | edit source]

Guidelines: DEGRO Guidelines[edit | edit source]

Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Report: Cancer in Germany[edit | edit source]

Report: National Association of Statutory Health Insurance Annual Reports[edit | edit source]

Legislation: Documents regarding Cancer Registry Legislation Compilation[edit | edit source]

Reports: Occurrence of Cancer in German[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: Früherkennungsmonitor 2023[edit | edit source]

Initiative: National Decade against Cancer[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help groups: Self-help Groups and Initiatives Compilation[edit | edit source]

Patient Association: Deutsche Krebshilfe (DKH)[edit | edit source]

Patient Association: Berlin Cancer Society[edit | edit source]

Resource: Krebsinformationsdienst[edit | edit source]

Patient Guides: Onko Internet Portal[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::National Cancer Center Dresden hasCancerCenter::Charité Comprehensive Cancer Center hasCancerCenter::University Cancer Center Frankfurt hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR) hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023 hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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