Germany: Difference between revisions

From Beacon
 
(201 intermediate revisions by 5 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">germanycountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


The Statutory Health Insurance (SHI) is a compulsory health insurance system that covers 90% of the population, consisting of 110 privately-run and not-for-profit sickness funds that act as third-party payers. The services provided by these sickness funds are decided by the Federal Joint Committee, which in turn is supervised by the Ministry of Health, and all sickness funds are represented by the National Association of Statutory Health Insurance Funds. Payment for the insurance is either discounted from the salary, or from the governmental benefits or allowances a person may receive. Their children and non-working spouses are also covered at no additional cost. You can opt for a Private Health Insurance (PHI) instead if your income is superior to 66,600 Euros (as of 2023), you’re self-employed or a civil servant. That does not include supplementary PHIs.
[[hasCancerCenter::National Cancer Center Dresden]]


The main body responsible for health monitoring in Germany is the Robert Koch Institute (RKI), whereas the Federal Statistics Office (Destatis) is the data holder for many health-related statistics, including hospital statistics and cause of death statistics.
[[hasCancerCenter::Charité Comprehensive Cancer Center]]


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::University Cancer Center Frankfurt]]
</div>


== [[Registries]] ==
== [[hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System]] ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
</div>


=== Database: Cause of Death Registry ===
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ)
=== [[hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey]] ===


'''Primary purpose:''' Cause of death statistics database is used to compile information about cause of death from german citizens.
=== [[hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics]] ===


'''Type of information:''' Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/de/10-21242-23211-2020-00-00-1-1-0 here].


'''Source of Information:''' The data are based on the death certificates issued as part of the coroner's inquest.
</div>


'''Data level:''' Patient level.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Number of Records:''' Unknown.
=== [[hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry]] ===


'''Date Range:''' 1992 to 2020.
=== [[hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry]] ===


'''Cancer Areas of Interest:''' Neologisms (C00 – D48)
=== [[hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)]] ===
</div>


'''Open data access:''' Data is not openly available. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/todesursachen here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here].
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:''' Contact information can be found in the bottom of the page or [https://www.forschungsdatenzentrum.de/en/contact here].
=== [[hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults]] ===


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
=== [[hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer]] ===
</div>


=== Database: Diagnosis Related Groups (DRG) Survey ===
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ)
=== [[hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation]] ===


'''Primary purpose:''' The Diagnosis Related Groups (DRG) statistic is a full annual census of all inpatient hospital cases within Germany that are billed according to case flat rates.
=== [[hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation]] ===


'''Type of information:''' Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/en/10-21242-23141-2020-00-00-1-2-0 here].
=== [[hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines]] ===


'''Source of Information:''' Hospitals send information to the Hospital Remuneration System (InEK)
=== [[hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer]] ===


'''Data level:''' Patient level.
</div>


'''Number of Records:''' 16.359.312 patients, of which 1.775.648 (10,85%)
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date Range:''' 2005 to 2020.
=== [[hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany]] ===


'''Cancer Areas of Interest:''' Neologisms (C00 – D48)
=== [[hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports]] ===


'''Open data access:''' Data is not openly available. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/drg here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here].
=== [[hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation]] ===


'''Information/Contact for data request:''' Contact information can be found in the bottom of the page or [https://www.forschungsdatenzentrum.de/en/contact here].
=== [[hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German]] ===


== [[Electronic Health Records]] ==
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023]] ===


== [[Clinical Practices Guidelines]] ==
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Germany)|Report: EU Country Cancer Profile 2025]] ===


== [[Latest Policymaking Initiatives]] ==
=== [[hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023]] ===


=== Report: National Association of Statutory Health Insurance Annual Reports ===
=== [[hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer]] ===
</div>


'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
== Cancer-related Patient Associations and Resources ==
Funds
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Primary purpose:'''' Provide an overview of plans created and actions taken during a year by the association.
=== [[hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation]] ===


'''Type of information:''' Discussions on policies, guidelines and plans relevant to the report's year. For the latest publication (2021), there are discussions on the participation of the association on the "Europe's Beating Cancer Plan", as well as an update on the results of the Cancer Registry Data Act.
=== [[hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid]] ===


''''Level:''' National level.
=== [[hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society]] ===


'''Access to information:''' [https://www.gkv-spitzenverband.de/media/dokumente/service_1/publikationen/geschaeftsberichte/GKV-SV_GB2021_Englisch.pdf Information can be found here.]
=== [[hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst]] ===


=== Compilation: Documents regarding Cancer Registry legislation ===
=== [[hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal]] ===
</div>


'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research]] ==
Funds
</div>


'''Primary purpose:'''' Offer information about Cancer Registry legislation and current status.
__NOTOC__
 
<span style="display:none">hasCancerCenter::National Cancer Center Dresden</span>
'''Type of information:''' Legislation, reports, expert opinions, and other documents regarding the current status of the efforts to create systematic and uniform cancer registries.
<span style="display:none">hasCancerCenter::Charité Comprehensive Cancer Center</span>
 
<span style="display:none">hasCancerCenter::University Cancer Center Frankfurt</span>
''''Level:''' National level.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey</span>
'''Access to information:''' [https://www.gkv-spitzenverband.de/krankenversicherung/qualitaetssicherung_2/klinisches_krebsregister.jsp Information can be found here.]
<span style="display:none">hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics</span>
 
<span style="display:none">hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry</span>
== [[Cancer-related Patient Associations]] ==
<span style="display:none">hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry</span>
<span style="display:none">hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)</span>
<span style="display:none">hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults</span>
<span style="display:none">hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines</span>
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
<span style="display:none">hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany</span>
<span style="display:none">hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports</span>
<span style="display:none">hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation</span>
<span style="display:none">hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023</span>
<span style="display:none">hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid</span>
<span style="display:none">hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society</span>
<span style="display:none">hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst</span>
<span style="display:none">hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation</span>
<span style="display:none">hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:54, 27 January 2026

forresearchers forpatients forproviders forpolicymakers germanycountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::National Cancer Center Dresden hasCancerCenter::Charité Comprehensive Cancer Center hasCancerCenter::University Cancer Center Frankfurt hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR) hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023 hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown