Germany: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">germanycountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


The Statutory Health Insurance (SHI) is a compulsory health insurance system that covers 90% of the population, consisting of 110 privately-run and not-for-profit sickness funds that act as third-party payers. The services provided by these sickness funds are decided by the Federal Joint Committee, which in turn is supervised by the Ministry of Health, and all sickness funds are represented by the National Association of Statutory Health Insurance Funds. Payment for the insurance is either discounted from the salary, or from the governmental benefits or allowances a person may receive. Their children and non-working spouses are also covered at no additional cost. You can opt for a Private Health Insurance (PHI) instead if your income is superior to 66,600 Euros (as of 2023), you’re self-employed or a civil servant. That does not include supplementary PHIs.
[[hasCancerCenter::National Cancer Center Dresden]]


The main body responsible for health monitoring in Germany is the Robert Koch Institute (RKI), whereas the Federal Statistics Office (Destatis) is the data holder for many health-related statistics, including hospital statistics and cause of death statistics.
[[hasCancerCenter::Charité Comprehensive Cancer Center]]


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::University Cancer Center Frankfurt]]
</div>


=== Database: Diagnosis Related Groups (DRG) Survey ===
== [[hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System]] ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
</div>


'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ); Robert Koch Institute (RKI)
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Primary purpose:''' The Diagnosis Related Groups (DRG) statistic is a full annual census of all inpatient hospital cases within Germany that are billed according to case flat rates.
=== [[hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey]] ===


'''Type of information:''' Patient information including hospital of stay, cause of admission, diagnosis, operating procedures, as well as other information. Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/en/10-21242-23141-2020-00-00-1-2-0 here].
=== [[hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics]] ===


'''Available type of information:''' Number of secondary diagnoses and operations of inpatients.


'''Source of Information:''' Hospitals send information to the Hospital Remuneration System (InEK) which is then sent to the FDZ.
</div>


'''Data level:''' Patient level.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Number of Records:''' 16.359.312 patients, of which 1.775.648 (10,85%)
=== [[hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry]] ===


'''Date Range:''' 2005 to 2020.
=== [[hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry]] ===


'''Cancer Areas of Interest:''' Neologisms (C00 – D48)
=== [[hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)]] ===
</div>


'''Open data access:''' Data is partially openly available. Publicly available data can be found [https://www-genesis.destatis.de/genesis/online?operation=previous&levelindex=2&step=1&titel=Statistik+%28Tabellen%29&levelid=1676629585169&levelid=1676629486924#abreadcrumb here]. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/drg here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here].
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/Contact for data request:''' Contact information can be found in the bottom of the page or [https://www.forschungsdatenzentrum.de/en/contact here].
=== [[hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults]] ===


== [[Registries]] ==
=== [[hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer]] ===
</div>


=== Database: ZfKD Cancer Registry ===
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' Zentrum für Krebsregisterdaten; Robert Koch Institute (RKI)
=== [[hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation]] ===


'''Primary purpose:''' Collect and compile epidemiological cancer data from state cancer registries at the federal level.
=== [[hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation]] ===


'''Type of information:''' Patient location, cancer type, cancer location, primary therapies used, cause of death information (in cases of death), among other information. Data dictionary including all the variables can be found [https://www.krebsdaten.de/Krebs/DE/Content/Scientific_Use_File/Info_datensatz/info_datensatz_node.html here].
=== [[hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines]] ===


'''Available type of information:''' Incidence, prevalence, mortality and survivorship of cancer, case numbers, crude rade and age-standardized rate, filtered by cancer type, age, gender and year.
=== [[hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer]] ===


'''Source of Information:''' Information is gathered from multiple state cancer registries in Germany. Information about individual state cancer registries can be found [https://www.gekid.de/uebersicht here].
</div>


'''Data level:''' Patient Level.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available data level:''' National level.
=== [[hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany]] ===


'''Number of Records:''' Unknown.
=== [[hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports]] ===


'''Date Range:''' 1999 onwards.
=== [[hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation]] ===


'''Cancer Areas of Interest:''' Cancer total (C00-C97 without C44); oral cavity and pharynx (C00-C14); lip (C00); base of tongue (C01); otherwise/unspec. parts d. tongue (C02); gums (C03); floor of mouth (C04); Palate (C05); otherwise/unspec. parts d. mouth (C06); Parotid (C07); otherwise/unspec. major salivary glands (C08); tonsil (C09)
=== [[hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German]] ===
Oropharynx (C10); Nasopharynx (C11); Recessus piriformis (C12); Hypopharynx (C13); otherwise/unspec. locations d. lip, d. Oral cavity and pharynx (C14); digestive organs (C15-C26); esophagus (C15); Stomach (C16); small intestine (C17); gut (C18-C20); colon (C18); Rectosigmoid (C19); rectum (C20); Anus and anal canal (C21); Liver (C22); Gallbladder and bile ducts (C23-C24); gallbladder (C23); extrahepatic bile ducts (C24); Pancreas (C25); otherwise/unspec. digestive organs (C26); respiratory and thoracic organs (C30-C39); Nasal cavity and middle ear (C30); paranasal sinus (C31); larynx (C32); lungs (C33-C34); trachea (C33); lungs and bronchi (C34); Thymus (C37); heart, mediastinum and pleura (C38); otherwise thoracic organs (C39); Bone and articular cartilage (C40-C41); bones and articular cartilage d. Extremities (C40); otherwise Bone and articular cartilage (C41); Malignant melanoma of the skin (C43); Soft and mesothelial tissues (C45-C49); Mesothelioma (C45); Kaposi's sarcoma (C46); peripheral nerves and autonomic nervous system (C47); Retroperitoneum and Peritoneum (C48); otherwise Connective tissue including soft tissue (C49); mammary gland (C50); female reproductive organs (C51-C58); Vulva (C51); Vagina (C52); cervix (C53); Body of the uterus (C54-C55); uterine body (C54); otherwise/unspec. parts d. uterus (C55); ovaries (C56); otherwise/unspec. female sex organs (C57); placenta (C58); male reproductive organs (C60-C63); Penis (C60); prostate (C61); testicles (C62); otherwise/unspec. male sex organs (C63); Urinary organs (C64-C68); kidney (C64); renal pelvis (C65); ureter (C66); urinary bladder (C67); otherwise/unspec. urinary organs (C68); Eye, Brain & Central Nervous System (C69-C72); eye (C69); Central Nervous System (C70-C72); Meninges (C70); brain (C71); Spinal cord, cranial nerves and other central nervous system (C72); Endocrine glands (C73-C75); Thyroid (C73); adrenal gland (C74); otherwise endocrine glands and related Structures (C75); other, imprecise unspecified localizations (C76-C80); otherwise and inaccurate localization (C76); Malignant neoplasm o. indication d. Localization (C80); Hodgkin's disease (C81); Non-Hodgkin lymphomas (C82-C88); Follicular non-Hodgkin lymphoma (C82); Diffuse non-Hodgkin lymphoma (C83); Peripheral and cutaneous T-cell lymphoma (C84); otherwise/unspec. types d. Non-Hodgkin lymphoma (C85); Other specified T/NK cell lymphomas (C86); Malignant immunoproliferative diseases (C88); Multiple myeloma (C90); Leukemias (C91-C95); Lymphocytic leukemia (C91); Myeloid leukemia (C92); Monocytic leukemia (C93); otherwise leukemias cell type (C94); leukemias cell type (C95); otherwise/unspec. malignant neoplasms d. lymphatic/hematopoietic tissue (C96)


'''Open data access:''' Data is partially openly available. Publicly available data can be found [https://www.krebsdaten.de/Krebs/SiteGlobals/Forms/Datenbankabfrage/datenbankabfrage_stufe1_form.html here]. More information about the database can be found [https://www.krebsdaten.de/Krebs/DE/Content/Scientific_Use_File/Info_datensatz/info_datensatz_node.html here].
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023]] ===


'''Information/Contact for data request:''' Contact information can be found [https://www.krebsdaten.de/Krebs/DE/Content/ZfKD/Kontakt/kontakt_node.html here].
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Germany)|Report: EU Country Cancer Profile 2025]] ===


=== Database: Cause of Death Registry ===
=== [[hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023]] ===


'''Sponsor, manager or home institution:''' Forschungsdatenzentren der Statistischen Ämter des Bundes und der Länder (FDZ); Robert Koch Institute (RKI)
=== [[hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer]] ===
</div>


'''Primary purpose:''' Cause of death statistics database is used to compile information about cause of death from german citizens.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Type of information:''' Includes cause of death, location of death, and patient information such as residence, marital status, among other information. Data dictionary, methodology, and other information about the contents of the survey database can be found [https://www.forschungsdatenzentrum.de/de/10-21242-23211-2020-00-00-1-1-0 here].
=== [[hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation]] ===


'''Source of Information:''' The data are based on the death certificates issued as part of the coroner's inquest.
=== [[hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid]] ===


'''Data level:''' Patient level.
=== [[hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society]] ===


'''Number of Records:''' Unknown.
=== [[hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst]] ===


'''Date Range:''' 1992 to 2020.
=== [[hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal]] ===
</div>


'''Cancer Areas of Interest:''' Neologisms (C00 – D48)
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research]] ==
</div>


'''Open data access:''' Data is not openly available. More information about the database can be found [https://www.forschungsdatenzentrum.de/de/gesundheit/todesursachen here]. Information on how to access the data can be found [https://www.forschungsdatenzentrum.de/en/request here] and [https://www.forschungsdatenzentrum.de/en/access here].
__NOTOC__
 
<span style="display:none">hasCancerCenter::National Cancer Center Dresden</span>
'''Information/Contact for data request:''' Contact information can be found in the bottom of the page or [https://www.forschungsdatenzentrum.de/en/contact here].
<span style="display:none">hasCancerCenter::Charité Comprehensive Cancer Center</span>
 
<span style="display:none">hasCancerCenter::University Cancer Center Frankfurt</span>
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey</span>
=== Survey: German Health Interview and Examination Survey for Adults ===
<span style="display:none">hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics</span>
 
<span style="display:none">hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry</span>
'''Sponsor, manager or home institution:''' Robert Koch Institute (RKI)
<span style="display:none">hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry</span>
 
<span style="display:none">hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR)</span>
'''Primary purpose:''' Describes the current health status of various subgroups of the general adult population of Germany aged 18-79.
<span style="display:none">hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults</span>
 
<span style="display:none">hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer</span>
'''Type of information:''' A data dictionary containing all variables can be found [https://www.degs-studie.de/deutsch/ergebnisse/degs1.html here], which includes self-reported cancer cases and cancer screening.
<span style="display:none">hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines</span>
'''Source of Information:''' Personal interviews, physical examinations and analyses of blood and urine samples.
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
'''Data level:''' Patient level.
<span style="display:none">hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany</span>
 
<span style="display:none">hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports</span>
'''Number of Records:''' 8,151 adults (4,283 women; 3,868 men) [https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-015-2016-7#:~:text=Overall%2C%208%2C151%20adults%20(4%2C283%20women,sampling%20(response%20rate%2042%20%25).[1]]
<span style="display:none">hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation</span>
 
<span style="display:none">hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German</span>
'''Date Range:''' 2008.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023</span>
'''Cancer Areas of Interest:''' Unknown.
<span style="display:none">hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer</span>
 
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides</span>
'''Open data access:''' Data is not publicly available. Reports based on the data can be found [https://www.degs-studie.de/deutsch/ergebnisse/degs1/degs1-basispublikation.html here]. Information on how to access the data can be found [https://www.rki.de/DE/Content/Forsch/FDZ/Zugang/SUF.html here].
<span style="display:none">hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid</span>
'''Information/Contact for data request:''' Contact information can be found [https://www.degs-studie.de/deutsch/ergebnisse/degs1.html here].
<span style="display:none">hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society</span>
 
<span style="display:none">hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research</span>
== [[Clinical Practices Guidelines]] ==
<span style="display:none">hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer</span>
=== Compilation: DKG Guidelines ===
<span style="display:none">hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation</span>
 
<span style="display:none">hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation</span>
'''Sponsor, manager or home institution:''' Deutsche Krebsgesellschaft
<span style="display:none">hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation</span>
 
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation</span>
'''Primary purpose:'''' Offer medical treatment guidelines based on the best available medical knowledge.
<span style="display:none">hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Type of information:''' Treatment guidelines for a variety of cancer types, as well as other guidelines such as for psycho-oncological diagnostics.
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Access to information:''' Information can be found [https://www.krebsgesellschaft.de/deutsche-krebsgesellschaft/leitlinien/leitlinienprogramm-onkologie.html here].
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
=== Compilation: Leitlinienprogramm Onkologie Treatment Guidelines ===
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
'''Sponsor, manager or home institution:''' Leitlinienprogramm Onkologie
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
'''Primary purpose:'''' Offer medical treatment guidelines based on the best available medical knowledge.
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Type of information:''' Information about early detection, diagnosis, treatment, and aftercare. Treatment guidelines for a variety of cancer types, as well as other guidelines such as for psycho-oncological diagnostics.
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
'''Access to information:'''  Information can be found [https://www.leitlinienprogramm-onkologie.de/leitlinien/ here].
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
=== Report: Cancer in Germany ===
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Sponsor, manager or home institution:''' A collaboration between the Gesellschaft der epidemiologischen Krebsregister e.V. (GEKID) and the Zentrums für Krebsregisterdaten (ZfKD) by the Robert Koch Institute.
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Primary purpose:'''' Provides epidemiological indicators and current trends for a total of 30 different types of cancer.
 
'''Type of information:''' Incidence of disease and mortality, regional and international comparisons, as well as representations of the distribution of tumor stages and the prospects of survival
 
''''Level:''' National and regional level.
 
'''Access to information:''' Publications can be found [https://www.krebsdaten.de/Krebs/DE/Content/Publikationen/Krebs_in_Deutschland/krebs_in_deutschland_node.html here].
 
=== Report: National Association of Statutory Health Insurance Annual Reports ===
 
'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
Funds
 
'''Primary purpose:'''' Provide an overview of plans created and actions taken during a year by the association.
 
'''Type of information:''' Discussions on policies, guidelines and plans relevant to the report's year. For the latest publication (2021), there are discussions on the participation of the association on the "Europe's Beating Cancer Plan", as well as an update on the results of the Cancer Registry Data Act.
 
''''Level:''' National level.
 
'''Access to information:''' [https://www.gkv-spitzenverband.de/media/dokumente/service_1/publikationen/geschaeftsberichte/GKV-SV_GB2021_Englisch.pdf Information can be found here.]
 
=== Compilation: Documents regarding Cancer Registry legislation ===
 
'''Sponsor, manager or home institution:''' The National Association of Statutory Health Insurance
Funds
 
'''Primary purpose:'''' Offer information about Cancer Registry legislation and current status.
 
'''Type of information:''' Legislation, reports, expert opinions, and other documents regarding the current status of the efforts to create systematic and uniform cancer registries.
 
''''Level:''' National level.
 
'''Access to information:''' [https://www.gkv-spitzenverband.de/krankenversicherung/qualitaetssicherung_2/klinisches_krebsregister.jsp Information can be found here.]
 
== [[Cancer-related Patient Associations and Resources]] ==
 
<!-- https://www.krebsinformationsdienst.de/ -->
 
=== Compilation: Patient Guidelines ===
 
'''Sponsor, manager or home institution:''' Leitlinienprogramm Onkologie
 
'''Primary purpose:'''' Inform cancer patients about their condition using the results of the latest medical research.
 
'''Type of information:''' Information about cancer, diagnosis, treatment, supportive care, advice, and literature on the subject. There are guidelines about multiple cancer types as well as other information such as supportive care guidelines.
 
'''Access to information:'''  Information can be found [https://www.leitlinienprogramm-onkologie.de/patientenleitlinien/ here].

Latest revision as of 13:54, 27 January 2026

forresearchers forpatients forproviders forpolicymakers germanycountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

National Cancer Center Dresden

Charité Comprehensive Cancer Center

University Cancer Center Frankfurt

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Diagnosis Related Groups (DRG) Survey[edit | edit source]

Database: Hospital Statistics[edit | edit source]

Registries[edit | edit source]

Database: ZfKD Cancer Registry[edit | edit source]

Database: Cause of Death Registry[edit | edit source]

Database: German Childhood Cancer Registry (DKKR)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: German Health Interview and Examination Survey for Adults[edit | edit source]

Survey: National Decade against Cancer[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: DKG Guidelines Compilation[edit | edit source]

Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation[edit | edit source]

Guidelines: DEGRO Guidelines[edit | edit source]

Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Report: Cancer in Germany[edit | edit source]

Report: National Association of Statutory Health Insurance Annual Reports[edit | edit source]

Legislation: Documents regarding Cancer Registry Legislation Compilation[edit | edit source]

Reports: Occurrence of Cancer in German[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: Früherkennungsmonitor 2023[edit | edit source]

Initiative: National Decade against Cancer[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help groups: Self-help Groups and Initiatives Compilation[edit | edit source]

Patient Association: Deutsche Krebshilfe (DKH)[edit | edit source]

Patient Association: Berlin Cancer Society[edit | edit source]

Resource: Krebsinformationsdienst[edit | edit source]

Patient Guides: Onko Internet Portal[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::National Cancer Center Dresden hasCancerCenter::Charité Comprehensive Cancer Center hasCancerCenter::University Cancer Center Frankfurt hasHealthcareSystem::Healthcare_System_(Germany)|Healthcare System hasDatabase::Database:_Diagnosis_Related_Groups_(DRG)_Survey_(Germany)|Database: Diagnosis Related Groups (DRG) Survey hasDatabase::Database: Hospital Statistics (Germany)|Database: Hospital Statistics hasDatabase::Database:_ZfKD_Cancer_Registry_(Germany)|Database: ZfKD Cancer Registry hasDatabase::Database:_Cause_of_Death_Registry_(Germany)|Database: Cause of Death Registry hasDatabase::Database:_German_Childhood_Cancer_Registry_(DKKR)_(Germany)|Database: German Childhood Cancer Registry (DKKR) hasDatabase::Survey:_German_Health_Interview_and_Examination_Survey_for_Adults_(Germany)|Survey: German Health Interview and Examination Survey for Adults hasDatabase::Survey:_National_Decade_against_Cancer_(Germany)|Survey: National Decade against Cancer hasClinicalGuidelines::Compilation:_DKG_Guidelines_(Germany)|Compilation: DKG Guidelines hasClinicalGuidelines::Compilation:_Leitlinienprogramm_Onkologie_Treatment_Guidelines_(Germany)|Compilation: Leitlinienprogramm Onkologie Treatment Guidelines hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasReport::Report:_Cancer_in_Germany_(Germany)|Report: Cancer in Germany hasReport::Report:_National_Association_of_Statutory_Health_Insurance_Annual_Reports_(Germany)|Report: National Association of Statutory Health Insurance Annual Reports hasPolicy::Compilation:_Documents_regarding_Cancer_Registry_legislation_(Germany)|Compilation: Documents regarding Cancer Registry legislation hasReport::Reports:_Occurrence_of_Cancer_in_German_(Germany)|Reports: Occurrence of Cancer in German hasReport::Report:_EU_Country_Cancer_Profile_2023_(Germany)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Früherkennungsmonitor_2023_(Germany)|Report: Früherkennungsmonitor 2023 hasInitiative::Initiative:_National_Decade_against_Cancer_(Germany)|Initiative: National Decade against Cancer hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Germany)|Compilation: ESMO Patient Guides hasPatientResource::Compilation:_Self-help_Groups_and_Initiatives_(Germany)|Compilation: Self-help Groups and Initiatives hasPatientAssociation::Patient_Association:_Deutsche_Krebshilfe_(DKH)|Patient Association: Deutsche Krebshilfe (DKH) | German Cancer Aid hasPatientAssociation::Patient_Association:_Berlin_Cancer_Society_(Germany)|Patient Association: Berlin Cancer Society hasPatientResource::Resource:_Krebsinformationsdienst_(Germany)|Resource: Krebsinformationsdienst hasPatientGuides::Patient_Guides:_Onko_Internet_Portal_(Germany)|Patient Guides: Onko Internet Portal hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Germany)|Quality of Life and Palliative Care Research hasClinicalGuidelines::DEGRO_Guidelines_(Germany)|Guidelines: DEGRO Guidelines hasClinicalGuidelines::Interdisciplinary_Screening,_Diagnosis,_Therapy_and_Follow-up_of_Breast_Cancer_(Germany)|Guidelines: Interdisciplinary Screening, Diagnosis, Therapy and Follow-up of Breast Cancer hasClinicalGuidelines::Guidelines: DKG Guidelines Compilation (Germany)|Guidelines: DKG Guidelines Compilation hasClinicalGuidelines::Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation (Germany)|Guidelines: Leitlinienprogramm Onkologie Treatment Guidelines Compilation hasPolicy::Legislation: Documents regarding Cancer Registry Legislation Compilation (Germany)|Legislation: Documents regarding Cancer Registry Legislation Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Germany)|Patient Guides: ESMO Patient Guides Compilation hasPatientResource::Self-help groups: Self-help Groups and Initiatives Compilation (Germany)|Self-help groups: Self-help Groups and Initiatives Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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