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'''Information/contact for data request''': Can be acquired at the SEHOP [https://www.sehop.org/quienes-somos/ website].
'''Information/contact for data request''': Can be acquired at the SEHOP [https://www.sehop.org/quienes-somos/ website].
Sponsor: Ministerio de Sanidad
Purpose: sobre la salud de la población española y el estado del
Sistema Nacional de Salud (SNS) en el ámbito de la organización, provisión de los
servicios, gestión sanitaria y resultados.
Type of information: ofrece una visión general de la protección de la salud en España, centrada
en las enfermedades respiratorias y cardiovasculares, el cáncer y la salud mental, y acompañada
de datos e indicadores (search which indicators) de situación y funcionamiento general del Sistema Nacional de Salud.
Date range:
Source: datos de las consejerías de
sanidad de las comunidades autónomas y del Instituto Nacional de Gestión Sanitaria,
de las encuestas poblacionales estatal.


=== [Database: Annual Report of the National Health System] ===
=== [Database: Annual Report of the National Health System] ===

Revision as of 11:53, 31 January 2023

Cancer Centers

Healthcare System

Administrative or Claims Data

Registries

Database: Main indicators of The National Health System (INCLASNS)

[1]

Primary purpose: Facilitates access to information that is already individually presented by official statistical institutions. The database does so by reuniting important indicators to research healthcare functioning and general health quality.

Sponsor, manager or home institution: Ministerio de Sanidad.

Type of information: Cancer mortality tax (premature and non-premature adjusted by age, per 100 000 hab) and pertinence of conservative surgery in breast cancer in percentage. Full list of indicators can be checked here.

Source of information: El Sistema de Información del Sistema Nacional de Salud and other sources (Instituto Nacional de Estadística, Centro Nacional de Epidemiología, Agencia Española de Medicamentos y Productos Sanitarios, etc.)

Data level: Regional level.

Number of Records: Includes 247 indicators.

Date range: 1990 onwards.

Cancer Areas of Interest: Unknown.

Data access: Openly available here.

Information/contact for data request: Contact information.

Database: Spanish Registry of Pediatric Tumors (RETI-SEHOP)

[2]

Primary purpose: Collects data and produces epidemiology research about childhood cancer.

Sponsor, manager or home institution: La Sociedad Española de Hematología y Oncología Pediátricas (SEHOP) and la Universitat de València (UV).

Type of information: Survival (3 and 5 years after diagnosis), incidence, medical treatment coverage in percentage and cancer causes filtered by region, sex and year.

Source of information: Reports from all Spanish pediatric oncologic and hematologic hospital unities. The list of institutions can be checked here.

Data level: Regional level.

Number of Records: Covers more than 90% of national children cases. Between 1980-2021 there were 31.275 incidence cases registered.

Date range: Varies accordingly to selected indicators: survival (1980-2004), incidence (1983-2002), medical treatment coverage (1980-2012).

Cancer Areas of Interest: The list can be checked at the pages XXXII - XXXV of this document.

Data access: By the RETI annual report, available here.

Information/contact for data request: Can be acquired at the SEHOP website.

[Database: Annual Report of the National Health System]

Primary purpose: Provides information about the health of the Spanish population and details about the operation and results of the National Health System (SNS).

Sponsor, manager or home institution: Ministerio de Sanidad.

Type of information: Population information, health status

(well-being, morbidity, mortality), social determinants of health (socioeconomic determinant factors, lifestyles), sanitary system (health care, accessibility, experience, patient, physical resources, human resources, and expenses).

The 2020-2021 report also includes information on response of health services to COVID-19 (capacity of care, care activity related to COVID-19, impact on accessibility to the health system, impact on ordinary care activity, experience of the

population, covid vaccination, diagnostic capacity, and pharmaceutical service).

Source of information: Data from the Councils of

Health of the autonomous communities, the National Institute of Health Management and surveys.

Data level: Regional level.

Number of Records: Unknown.

Date range: 2003 onwards.

Cancer Areas of Interest: Unknown.

Data access: openly available here.

Information/contact for data request: Contact information.


Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

Cancer-related Patient Associations