Survey: National Decade against Cancer (Germany): Difference between revisions
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'''Primary purpose:''' To engage the population and relevant stakeholders in cancer research, gathering their needs and perspectives to facilitate the successful translation of research findings into medical practice. | '''Primary purpose:''' To engage the population and relevant stakeholders in cancer research, gathering their needs and perspectives to facilitate the successful translation of research findings into medical practice. | ||
'''Type of information:''' Sex; Age class; Questions about place of residence; Cancers interests; insights into the public's awareness, interest, and involvement in cancer research; Participants' backgrounds; Perceptions of cancer research, information sources, and media coverage; The willingness of participants to contribute anonymized health data for research purposes and their past or potential involvement in cancer research projects. | '''Type of information:''' Public survey: Sex; Age class; Questions about place of residence; Cancers interests; insights into the public's awareness, interest, and involvement in cancer research; Participants' backgrounds; Perceptions of cancer research, information sources, and media coverage; The willingness of participants to contribute anonymized health data for research purposes and their past or potential involvement in cancer research projects. Science and care survey: Sex; their research or healthcare institution; Field of work; Roles and positions within the research or healthcare sector; The top five challenges facing patient-oriented and translational cancer research in Germany; Experiences and perspectives on involving patient representatives in cancer research projects, the phases of research where such involvement is deemed crucial; Types of projects where patient involvement is most important; Experiences with engaging community oncologists in cancer research; Challenges and potential improvements; Research findings to the public and opinions on media coverage of cancer research from a public and patient perspective. | ||
'''Data level:''' Respondent level. | '''Data level:''' Respondent level. | ||
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'''Cancer Areas of Interest:''' Unknown. | '''Cancer Areas of Interest:''' Unknown. | ||
'''Open data access:''' Public survey [https://www.datenportal.bmbf.de/portal/opendata/PG_NDK_Umfrage_Oeffentlichkeit_OnlineDialog.xlsx] and science and care survey [https://www.datenportal.bmbf.de/portal/opendata/PG_NDK_Umfrage_Wissenschaft_und_Versorgung_OnlineDialog.xlsx]. | '''Open data access:''' Public survey (general public) [https://www.datenportal.bmbf.de/portal/opendata/PG_NDK_Umfrage_Oeffentlichkeit_OnlineDialog.xlsx] and science and care survey (professionals working in cancer research and healthcare)[https://www.datenportal.bmbf.de/portal/opendata/PG_NDK_Umfrage_Wissenschaft_und_Versorgung_OnlineDialog.xlsx]. | ||
'''Information/Contact for data request:''' Contact information [https://www.govdata.de/web/guest/kontakt]. | '''Information/Contact for data request:''' Contact information [https://www.govdata.de/web/guest/kontakt]. | ||
Revision as of 16:44, 11 October 2023
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Sponsor, manager or home institution: Federal Ministry of Education and Research; Federal Ministry of Health and many others partners.
Primary purpose: To engage the population and relevant stakeholders in cancer research, gathering their needs and perspectives to facilitate the successful translation of research findings into medical practice.
Type of information: Public survey: Sex; Age class; Questions about place of residence; Cancers interests; insights into the public's awareness, interest, and involvement in cancer research; Participants' backgrounds; Perceptions of cancer research, information sources, and media coverage; The willingness of participants to contribute anonymized health data for research purposes and their past or potential involvement in cancer research projects. Science and care survey: Sex; their research or healthcare institution; Field of work; Roles and positions within the research or healthcare sector; The top five challenges facing patient-oriented and translational cancer research in Germany; Experiences and perspectives on involving patient representatives in cancer research projects, the phases of research where such involvement is deemed crucial; Types of projects where patient involvement is most important; Experiences with engaging community oncologists in cancer research; Challenges and potential improvements; Research findings to the public and opinions on media coverage of cancer research from a public and patient perspective.
Data level: Respondent level.
Number of Records: 3.047 respondents.
Date Range: 2019.
Cancer Areas of Interest: Unknown.
Open data access: Public survey (general public) [1] and science and care survey (professionals working in cancer research and healthcare)[2].
Information/Contact for data request: Contact information [3].