Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
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<span style="display:none">germanycountry</span> | |||
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'''Type of database:''' [[databaseType::registry]]. | |||
'''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | '''Primary purpose:''' Collect epidemiological cancer data for children under 18 diagnosed with cancer. | ||
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'''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. | '''Sponsor, manager or home institution:''' [[dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz]]. | ||
'''Type of information:''' | '''Type of information:''' [[databaseStructure::longitudinal]]. [[hasVariable::cancer incidence]], [[hasVariable::cancer survival]], and [[hasVariable::number of deaths|mortality]] of children with cancer by [[hasVariable::year]], [[hasVariable::age]], [[hasVariable::sex]] and [[hasVariable::diagnosis|cancer type]]. A data dictionary was not found. | ||
'''Available type of information:''' [[availableVariable::cancer incidence]], [[availableVariable::cancer survival]], and [[availableVariable::number of deaths|mortality]] of children with cancer by [[availableVariable::year]], [[availableVariable::age]], [[availableVariable::sex]] and [[availableVariable::diagnosis|cancer type]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | |||
'''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | '''Source of Information:''' Information about GPOH study patients is sent to the DKKR. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/gpoh-studien-und-gpoh-register.html#c113131 Click here to learn more]. | ||
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'''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | '''Cancer areas of interest:''' [[hasCancerType::C15-C26: Digestive system cancers]]; [[hasCancerType::C30-C39: Lung/chest cancers]]; [[hasCancerType::C45-C49: Soft tissue cancer]]; [[hasCancerType::C50: Breast cancer]]; [[hasCancerType::C60-C63: Male genitalia cancer]]; [[hasCancerType::C69-C72: Eye and brain cancer]] [[hasCancerType::C81-C96: Cancers of the blood and immune system]]. [https://www.kinderkrebsregister.de/typo3temp/secure_downloads/42507/0/1c5976c2ab8af5b6b388149df7182582a4cd6a39/Buch_DKKR_Jahresbericht_2019_komplett.pdf Click here to learn more]. | ||
'''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. | '''Data access:''' [[dataAvailability::partially publicly available]]. [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html Click here to access]. [https://www.kinderkrebsregister.de/dkkr/dokumentare/faq/arbeitsweise-des-dkkr.html Click here to learn more about the restricted data access]. Data can be downloaded in the [[hasDownloadableData::PDF]] format. [[hasGrantRequirement::Data requires a grant proposal to be accessed]]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access]]]. | ||
'''Contact information:''' [https://wims.imbei.uni-mainz.de/kontakt.jsf Click here to access]. | |||
<span style="display:none">Esophagus</span> | |||
<span style="display:none">Stomach</span> | |||
<span style="display:none">Small intestine</span> | |||
<span style="display:none">Large intestine</span> | |||
<span style="display:none">Rectum</span> | |||
<span style="display:none">Anus</span> | |||
<span style="display:none">Liver</span> | |||
<span style="display:none">Gallbladder</span> | |||
<span style="display:none">Bile ducts</span> | |||
<span style="display:none">Pancreas</span> | |||
<span style="display:none">Colon</span> | |||
<span style="display:none">Lung</span> | |||
<span style="display:none">Trachea</span> | |||
<span style="display:none">Bronchi</span> | |||
<span style="display:none">Pleura</span> | |||
<span style="display:none">Mediastinum</span> | |||
<span style="display:none">Muscle</span> | |||
<span style="display:none">Fat</span> | |||
<span style="display:none">Tendon</span> | |||
<span style="display:none">Ligament</span> | |||
<span style="display:none">Blood vessels</span> | |||
<span style="display:none">Connective tissue</span> | |||
<span style="display:none">Sarcoma</span> | |||
<span style="display:none">Angiosarcoma</span> | |||
<span style="display:none">Liposarcoma</span> | |||
<span style="display:none">Lobular</span> | |||
<span style="display:none">Breast</span> | |||
<span style="display:none">Nipple</span> | |||
<span style="display:none">Areola</span> | |||
<span style="display:none">Ductal</span> | |||
<span style="display:none">Prostate</span> | |||
<span style="display:none">Testicles</span> | |||
<span style="display:none">Penis</span> | |||
<span style="display:none">Eye</span> | |||
<span style="display:none">Brain</span> | |||
<span style="display:none">Spinal cord</span> | |||
<span style="display:none">Blood</span> | |||
<span style="display:none">Bone marrow</span> | |||
<span style="display:none">Lymph nodes</span> | |||
<span style="display:none">Spleen</span> | |||
<span style="display:none">Leukemia</span> | |||
<span style="display:none">databaseType::registry</span> | |||
<span style="display:none">dataOwner::Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz</span> | |||
<span style="display:none">databaseStructure::longitudinal</span> | |||
<span style="display:none">hasVariable::cancer incidence</span> | |||
<span style="display:none">hasVariable::cancer survival</span> | |||
<span style="display:none">hasVariable::number of deaths|mortality</span> | |||
<span style="display:none">hasVariable::year</span> | |||
<span style="display:none">hasVariable::age</span> | |||
<span style="display:none">hasVariable::sex</span> | |||
<span style="display:none">hasVariable::diagnosis|cancer type</span> | |||
<span style="display:none">availableVariable::cancer incidence</span> | |||
<span style="display:none">availableVariable::cancer survival</span> | |||
<span style="display:none">availableVariable::number of deaths|mortality</span> | |||
<span style="display:none">availableVariable::year</span> | |||
<span style="display:none">availableVariable::age</span> | |||
<span style="display:none">availableVariable::sex</span> | |||
<span style="display:none">availableVariable::diagnosis|cancer type</span> | |||
<span style="display:none">dataLevel::national level</span> | |||
<span style="display:none">dataStart::1980</span> | |||
<span style="display:none">dataEnd::onwards</span> | |||
<span style="display:none">dataAvailability::partially publicly available</span> | |||
<span style="display:none">hasDownloadableData::PDF</span> | |||
<span style="display:none">hasGrantRequirement::Data requires a grant proposal to be accessed</span> | |||
<span style="display:none">hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf click here to access</span> | |||
<span style="display:none">isDatabase</span> | |||
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> | |||
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> | |||
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> | |||
<span style="display:none">hasCancerType::C50: Breast cancer</span> | |||
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> | |||
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> | |||
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> | |||
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span> | |||
<span style="display:none">hasCancerType::C00-C97: All cancer types</span> | |||
<span style="display:none">Esophageal</span> | |||
<span style="display:none">Gastric</span> | |||
<span style="display:none">Intestinal</span> | |||
<span style="display:none">Bowel</span> | |||
<span style="display:none">Colorectal</span> | |||
<span style="display:none">Appendix</span> | |||
<span style="display:none">Appendiceal</span> | |||
<span style="display:none">Duodenum</span> | |||
<span style="display:none">Jejunum</span> | |||
<span style="display:none">Ileum</span> | |||
<span style="display:none">Anal</span> | |||
<span style="display:none">Perianal</span> | |||
<span style="display:none">Hepatic</span> | |||
<span style="display:none">Biliary</span> | |||
<span style="display:none">Hepatobiliary</span> | |||
<span style="display:none">Subcutaneous</span> | |||
<span style="display:none">Extremity</span> | |||
<span style="display:none">Peripheral nerve</span> | |||
<span style="display:none">Axilla</span> | |||
<span style="display:none">Axillary</span> | |||
<span style="display:none">Mammary</span> | |||
<span style="display:none">Prostatic</span> | |||
<span style="display:none">Testicular</span> | |||
<span style="display:none">Penile</span> | |||
<span style="display:none">Ocular</span> | |||
<span style="display:none">Orbital</span> | |||
<span style="display:none">Retinal</span> | |||
<span style="display:none">Optic nerve</span> | |||
<span style="display:none">Meninges</span> | |||
<span style="display:none">Meningeal</span> | |||
<span style="display:none">Cerebral</span> | |||
<span style="display:none">Cerebellar</span> | |||
<span style="display:none">Brainstem</span> | |||
<span style="display:none">Lymphatic</span> | |||
<span style="display:none">Lymphoid</span> | |||
<span style="display:none">Lymphoma</span> | |||
<span style="display:none">Hematologic</span> | |||
<span style="display:none">Hematopoietic</span> | |||
<span style="display:none">Myeloma</span> | |||
<span style="display:none">Plasma cell</span> | |||
Latest revision as of 11:57, 14 December 2025
Go back to Germany page
Type of database: registry.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Type of information: longitudinal. cancer incidence, cancer survival, and mortality of children with cancer by year, age, sex and cancer type. A data dictionary was not found.
Available type of information: cancer incidence, cancer survival, and mortality of children with cancer by year, age, sex and cancer type. Click here to learn more.
Source of Information: Information about GPOH study patients is sent to the DKKR. Click here to learn more.
Data level: national level.
Number of records: Covers more than 95% of the population.
Date range: 1980 onwards.
Cancer areas of interest: C15-C26: Digestive system cancers; C30-C39: Lung/chest cancers; C45-C49: Soft tissue cancer; C50: Breast cancer; C60-C63: Male genitalia cancer; C69-C72: Eye and brain cancer C81-C96: Cancers of the blood and immune system. Click here to learn more.
Data access: partially publicly available. Click here to access. Click here to learn more about the restricted data access. Data can be downloaded in the PDF format. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.
Contact information: Click here to access.
