Data Dictionary: Socialstyrelsen Cancer Registry: Difference between revisions

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<span style="display:none">swedencountry</span>
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Source: [https://www.socialstyrelsen.se/en/statistics-and-data/registers/national-cancer-register/ click here to learn more].


{| class="wikitable"
{| class="wikitable"
|-
|-
| Age of patient at diagnosis
! Variable Name !! Definition
|-
| AGE || Patient's age at diagnosis
|-
| YEAR || Year of diagnosis
|-
| BEN* || Indicator for malignant or benign tumour according to morphology. (See link to the regulation)
|-
| DBGRUND1 || Basis for cause of death information. If clinical or forensic autopsy.
|-
| DIADATE || Date when the diagnosis was established
|-
| DIADATEN || Date when the diagnosis was established
|-
| DIGR* || Type of examination underlying the diagnosis.
|-
| DEATHDATE || Date when the patient died, information from the cause of death register
|-
|-
| Year of diagnosis
| DEATHDATEN || Date when the patient died, information from the cause of death register
|-
|-
| Indicator of malignant or benign tumor based on morphology
| EXNR || Counter for breast cancer records in the registry, one line per reported breast cancer tumour.
|-
|-
| Basis for cause of death statement, either clinical or forensic autopsy
| FIGO || Tumour spread at the time of diagnosis, gynecological tumours.
|-
|-
| Date diagnosis was established
| DOB || Patient's date of birth
|-
|-
| Type of examination that formed basis of diagnosis
| DOBN || Patient's date of birth
|-
|-
| Date patient died, information from cause of death register
| HEMFR || Patient's registered residence at the time of diagnosis, extrapolated to January 1 of the latest year
|-
|-
| Tumor spread at time of diagnosis for gynecological tumors
| HEMFRF || Error code for extrapolating the patient's registered residence
|-
|-
| Patient's date of birth
| ICD7 || Tumour location according to ICD-7, Codes for leukemias and lymphomas according to ICD-8 throughout the period (1958-).
|-
|-
| Patient's place of registration at time of diagnosis, forwarded to January 1 of last year
| ICD9 || Tumour location according to ICD-9
|-
|-
| Error code for projecting patient's place of registration
| ICDO10 || Tumour location according to ICD-O/2 (with some elements of ICD-10)
|-
|-
| Location of tumor according to ICD-7 codes for leukemias and lymphomas according to ICD-8 during entire period (1958-)
| ICDO3 || Tumour location according to ICD-O/3
|-
|-
| Tumor location according to ICD-9
| JNR || Information retrieved from the A-form underlying hospital and diagnostic coding. It may be blank.
|-
|-
| Tumor location according to ICD-O/2 (with some elements of ICD-10)
| CLINIC || The clinic where the patient's diagnosis was established
|-
|-
| Tumor location according to ICD-O/3
| GENDER || Patient's gender
|-
|-
| Information taken from A-form that was basis for hospital and diagnosis coding (may be blank)
| LKF || Patient's registered residence at the time of diagnosis
|-
|-
| Clinic where patient's diagnosis was established
| M || Tumour spread at the time of diagnosis, distant metastases.
|-
|-
| Patient's gender
| N || Tumour spread at the time of diagnosis, lymph nodes.
|-
|-
| Patient's place of registration at time of diagnosis
| OBD1 || Tumour identified at autopsy
|-
|-
| Tumor spread at time of diagnosis, distant metastases
| PAD || Tumour's histopathological diagnosis according to C24.1.
|-
|-
| Tumor spread at time of diagnosis, lymph nodes
| PATH || Diagnosing pathology and cytology department
|-
|-
| Tumor identified at autopsy
| SSN || Patient's social security number
|-
|-
| Histopathological diagnosis of tumor according to C24.1
| SSNQ || Variable showing the quality of a social security number (SSN). The variable is created using the standard macro checkssn.
|-
|-
| Diagnostic pathology and cytology department
| PREP || Number of the histopathological specimen including year
|-
|-
| Patient's social security number
| REGION* || Healthcare region
|-
|-
| Variable showing quality of personal identification number (PNR), created using standard macro checking
| RTBDATUM ||
|-
|-
| Number of histopathological preparation including year
| MOVDATE || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Healthcare region
| SENUTV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Side indication for paired organs
| SIDE* || Side indication for paired organs
|-
|-
| Healthcare facility where diagnosis was established
| HOSPITAL || The healthcare institution where the diagnosis was established
|-
|-
| Morphological diagnosis of tumor according to ICD-O/3
| SNOMED3 || Tumour's morphological diagnosis according to ICD-O/3
|-
|-
| Morphological diagnosis of tumor according to ICD-O/2
| SNOMEDO10 || Tumour's morphological diagnosis according to ICD-O/2
|-
|-
| Tumor spread at time of diagnosis, tumor size
| T || Tumour spread at the time of diagnosis, tumour size.
|-
|-
| Week when move was announced until 1997 (Statistics Sweden has translated year and week into the first day of the respective week. From 1998, the date refers to the day person declared move to Tax Authority)
| TIMEINV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Research that was the basis for TNM, indicated as pathological if any of T, N, or M is based on morphological examination
| TIMEUTV || Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
|-
|-
| Clinical if only clinical examination was the basis and morphological examination is missing
| TNMGRUND* || Examination underlying TNM. Pathological is indicated if any of T, N, or M is based on morphological examination. Clinical is indicated when only clinical investigation is the basis and morphological examination is lacking.
|-
|-
| Tumor number in chronological order for all reportable tumors if the patient was diagnosed with multiple tumors
| TN || Tumour number in chronological order, all reportable tumours. (If the patient has been diagnosed with multiple tumours)
|-
|-
| Tumor numbers in chronological order for malignant tumors only if the patient was diagnosed with multiple tumors
| TNMAL || Tumour number in chronological order, only malignant tumours. (If the patient has been diagnosed with multiple tumours)
|-
|-
| Illness/injury that started a chain of events leading to death
| ULTCASE || The disease/injury that initiated the chain of events that ultimately led to death.
|}
|}

Latest revision as of 17:23, 4 December 2025

forresearchers swedencountry Go back to Database: Socialstyrelsen Cancer Registry (Sweden) page

Source: click here to learn more.

Variable Name Definition
AGE Patient's age at diagnosis
YEAR Year of diagnosis
BEN* Indicator for malignant or benign tumour according to morphology. (See link to the regulation)
DBGRUND1 Basis for cause of death information. If clinical or forensic autopsy.
DIADATE Date when the diagnosis was established
DIADATEN Date when the diagnosis was established
DIGR* Type of examination underlying the diagnosis.
DEATHDATE Date when the patient died, information from the cause of death register
DEATHDATEN Date when the patient died, information from the cause of death register
EXNR Counter for breast cancer records in the registry, one line per reported breast cancer tumour.
FIGO Tumour spread at the time of diagnosis, gynecological tumours.
DOB Patient's date of birth
DOBN Patient's date of birth
HEMFR Patient's registered residence at the time of diagnosis, extrapolated to January 1 of the latest year
HEMFRF Error code for extrapolating the patient's registered residence
ICD7 Tumour location according to ICD-7, Codes for leukemias and lymphomas according to ICD-8 throughout the period (1958-).
ICD9 Tumour location according to ICD-9
ICDO10 Tumour location according to ICD-O/2 (with some elements of ICD-10)
ICDO3 Tumour location according to ICD-O/3
JNR Information retrieved from the A-form underlying hospital and diagnostic coding. It may be blank.
CLINIC The clinic where the patient's diagnosis was established
GENDER Patient's gender
LKF Patient's registered residence at the time of diagnosis
M Tumour spread at the time of diagnosis, distant metastases.
N Tumour spread at the time of diagnosis, lymph nodes.
OBD1 Tumour identified at autopsy
PAD Tumour's histopathological diagnosis according to C24.1.
PATH Diagnosing pathology and cytology department
SSN Patient's social security number
SSNQ Variable showing the quality of a social security number (SSN). The variable is created using the standard macro checkssn.
PREP Number of the histopathological specimen including year
REGION* Healthcare region
RTBDATUM
MOVDATE Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SENUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
SIDE* Side indication for paired organs
HOSPITAL The healthcare institution where the diagnosis was established
SNOMED3 Tumour's morphological diagnosis according to ICD-O/3
SNOMEDO10 Tumour's morphological diagnosis according to ICD-O/2
T Tumour spread at the time of diagnosis, tumour size.
TIMEINV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TIMEUTV Until 1997, the week when the move was notified; SCB has translated year and week to the first day of each week. From 1998 onwards, the date refers to the day the person reported to the Tax Agency that the move will take place.
TNMGRUND* Examination underlying TNM. Pathological is indicated if any of T, N, or M is based on morphological examination. Clinical is indicated when only clinical investigation is the basis and morphological examination is lacking.
TN Tumour number in chronological order, all reportable tumours. (If the patient has been diagnosed with multiple tumours)
TNMAL Tumour number in chronological order, only malignant tumours. (If the patient has been diagnosed with multiple tumours)
ULTCASE The disease/injury that initiated the chain of events that ultimately led to death.