Data Dictionary: Socialstyrelsen Cause of Death Registry

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Table 1: Variables in the cause of death register.

Dataset	Variable Name	Definition
dors	AGE	Age at death in years
dors	ALCOHOL	Alcohol-related diagnosis mentioned on the certificate. Marking for all records that have an alcohol-related diagnosis either as underlying or contributing cause of death
dors	ACCIDENT	Registration of any marking if an accident during gainful employment occurred
dors	YEAR	Year of death
dors	DAYSDTH	Age at death in days if the person died before turning 1 month old
dors	AGE5	Age at death in five-year age groups
dors	MONTHSDTH	Age at death in months if the person died after turning 1 month old but before turning 1 year old
dors	INTNDET	Registration of any marking on the form regarding the deceased's age
dors	DBGRUND1	If clinical or forensic autopsy
dors	DBGRUND5	If examination before death in hospital
dors	DBGRUND7	If external autopsy
dors	DBGRUND8	If "other source" or unknown source
dors	DIABETES	Diabetes as either underlying or contributing cause of death
dors	DEATHDATE	Date of death
dors	DEATHDATEN	Date of death
dors	DEATHPLACE	Place of death
dors	DEATHABR	Death abroad
dors	PREVCIV	Previous marital status
dors	BIRTHC	The country where the deceased was born
dors	DOB	Date of birth
dors	DOBN	Date of birth
dors	BIRTHL	The county where the deceased was born
dors	BIRTHC	The country where the deceased was born
dors	ICD	ICD version
dors	CAP19	Main injury. When the underlying cause of death is an external cause, there is a code from chapter 19 (ICD-10) in this variable. For ICD 7, ICD 8, and ICD 9, this information is in chapter 17 (CAP17) instead.
dors	GENDER	Gender
dors	COUNTY	County, municipality where the deceased was registered at the time of death
dors	DISTRICT	District where the deceased was registered at the time of death
dors	RESIDENCE	County, municipality, parish where the deceased was registered at the time of death
dors	CAUSE1_CAUSE48	Multiple causes of death according to ICD. In combination with ULCAUSE and CAP19/CAP17, these include all multiple causes of death
dors	DRUG	"Drug-related diagnosis mentioned on the certificate. Marking for all records that have a drug-related diagnosis either as underlying or contributing cause of death. Note that this is an old definition no longer used by the National Board of Health and Welfare."
dors	NATIONALITY	Nationality
dors	OPDATE	Date of any operation
dors	SURGERY	If surgery was performed within 4 weeks before death
dors	SSN	The deceased's social security number
dors	SSNQ	Variable indicating the quality of a social security number (SSN) according to certain predefined rules. The variable is created using the standard macro checkssn.
dors	COUNTRYOFBIRTH	Indicates that the deceased was not registered in Sweden at the time of death
dors	DEATHCOMMUNE	Municipality where the death occurred
dors	NATIONALITY_COUNTRYOFBIRTH	Nationality/country of registration for deceased who were not registered in Sweden at the time of death
avi	DEATHDATE	Date of death
avi	DEATHDATEN	Date of death
avi	GENDER	Gender
avi	COUNTY	County, municipality where the deceased was registered at the time of death
avi	DISTRICT	District where the deceased was registered at the time of death
avi	SSN	The deceased's social security number
avi	SSNQ	Variable indicating the quality of a social security number (SSN) according to certain predefined rules. The variable is created using the standard macro checkssn.
avi	DOB	Date of birth
avi	DOBN	Date of birth
avi	AGE	Age at death in years
avi	INLAS
avi	REGDATE
avi	DATEINTERVAL
subst_mod	DEATHDATE	Date of death
subst_mod	DEATHDATEN	Date of death
subst_mod	YEAR	Year of death
subst_mod	ULCAUSE	Underlying cause of death according to ICD
subst_mod	CAP19	Main injury. When the underlying cause of death is an external cause, there is a code from chapter 19 (ICD-10) in this variable. For ICD 7, ICD 8, and ICD 9, this information is in chapter 17 (CAP17) instead.
subst_mod	AGE	Age at death in years
subst_mod	GENDER	Gender
subst_mod	COUNTY	County, municipality where the deceased was registered at the time of death
subst_mod	SUBSTANCE1-SUBSTANCE48	Substances
subst_mod	COUNTRYOFBIRTH	Indicates that the deceased was not registered in Sweden at the time of death

Table 2: Available datasets.

Dataset	Definition
a_dors	Causes of death for deceased who were registered in Sweden at the time of death. From 2012 onwards, deaths in Sweden where the person was not registered in Sweden at the time of death are also included. However, these are included in the register with a delay of approximately 15 months. This means that all deaths that occurred in Sweden or where the person was registered in Sweden at the time of death from 2012 onwards are included in the register. Pseudo
a_dors_avi	Notifications of deaths. Contains information about date of death, date of birth, age, gender, and county for persons who died after the last year in a_dors. Pseudo. Does not contain causes of death.
r_dors	Causes of death for deceased who were registered in Sweden at the time of death. From 2012 onwards, deaths in Sweden where the person was not registered in Sweden at the time of death are also included. However, these are included in the register with a delay of approximately 15 months. This means that all deaths that occurred in Sweden or where the person was registered in Sweden at the time of death from 2012 onwards are included in the register. Personal identification number.
r_dors_avi	Notifications of deaths. Contains information about date of death, date of birth, age, gender, and county for persons who died after the last year in r_dors. Personal identification number. Does not contain causes of death.
r_dors_subst_mod	Contains information about substances mentioned on the death certificates. Includes only deaths classified as drug and narcotic poisonings (ICD-10: X40-X44, X60-X64 or Y10-Y14)
a_dors_subst_mod	Contains information about substances mentioned on the death certificates. Includes only deaths classified as drug and narcotic poisonings (ICD-10: X40-X44, X60-X64 or Y10-Y14)