Slovenia: Difference between revisions

From Beacon
 
(158 intermediate revisions by 6 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">sloveniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Slovenia uses a universal healthcare system, which is primarily funded through the Health Insurance Institute of Slovenia (Zavod za zdravstveno zavarovanje Slovenije or ZZZS). The system provides comprehensive and compulsory health insurance coverage to all citizens and residents, with opting out not allowed.
[[hasCancerCenter::Institute of Oncology Ljubljana]]


The healthcare system is managed at the national level by the Ministry of Health, while the Health Insurance Institute of Slovenia (ZZZS) is responsible for administering the health insurance fund. There are also regional healthcare providers and institutions that operate under the guidance of the national framework. Municipalities have a role in overseeing the organization and provision of primary care, albeit limited in decision-making.
</div>


The population receives a wide range of healthcare benefits through the system, including primary care, specialist care, hospital care, dental care, maternity care, mental health services, preventive care, and prescription medications. Some services may require co-payments, but the majority of the costs are covered by the national health insurance fund. About 95% of the population purchases complementary Voluntary Health Insurance (VHI) mainly to cover co-payments.
== [[hasHealthcareSystem::Healthcare_System_(Slovenia)|Healthcare System]] ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
</div>


To access the benefits of the healthcare system, individuals must be insured under the ZZZS. This insurance is mandatory for all citizens and residents, and it is typically provided through employment. Unemployed individuals, students, retirees, and other vulnerable groups are also insured through various social programs or via their family members' insurance.
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


In Slovenia, claims data, registries, and electronic health records are maintained and recorded using a combination of digital systems and traditional methods. The National Institute of Public Health (NIJZ) manages the national health registries, which include data on births, deaths, diseases, and treatments. Electronic health records are increasingly being adopted, with the eHealth project aiming to improve and integrate health information systems to facilitate better care coordination and information sharing among healthcare providers. GPs act as gatekeepers for accessing specialized care, and long waiting times for some specialist services persist.
=== [[hasDatabase::Database:_SiStat_Death_(Slovenia)|Database: SiStat Death]] ===


== [[Administrative or Claims Data]] ==
=== [[hasDatabase::Database:_NIJZ_Sick_Leave_(Slovenia)|Database: NIJZ Sick Leave]] ===


=== Database: SiStat Death ===
=== [[hasDatabase::Database:_NIJZ_Outpatient_Health_(ZUBSTAT)_(Slovenia)|Database: NIJZ Outpatient Health (ZUBSTAT)]] ===


'''Sponsor, manager or home institution:''' Statistični urad RS; Nacionalni inštitut za javno zdravje.
=== [[hasDatabase::Database:_NIJZ_Records_on_Diseases,_Poisonings_and_Injuries_on_Hospitals_(BOLOB)_(Slovenia)|Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)]] ===


'''Primary purpose:''' To provide data on deaths and natural population trends for the formulation of appropriate demographic, social, health and other policies at national and subnational levels.
=== [[hasDatabase::Database:_NIJZ_Healthcare_Providers_(Slovenia)|Database: NIJZ Healthcare Providers]] ===


'''Type of information:''' Data dictionary was not found. More metadata can be found [https://www.stat.si/statweb/File/DocSysFile/9513 here].
=== [[hasDatabase::Database:_NIJZ_Hospital_Beds_(Slovenia)|Database: NIJZ Hospital Beds]] ===


'''Available type of information:''' Number of deaths by sex, age and number of deaths per 1,000 population, average age of deaths, cause of deaths, life expectancy, and infant deaths per 1,000 live births.
=== [[hasDatabase::Database:_NIJZ_Medical_Devices_(Slovenia)|Database: NIJZ Medical Devices]] ===


'''Source of Information:''' Surveys. More information can be found in methodological document [https://www.stat.si/statweb/File/DocSysFile/9513 here].
=== [[hasDatabase::Database:_ZZZS_Number_of_treatments_by_healthcare_provider_(Slovenia)|Database: ZZZS Number of treatments by healthcare provider]] ===


'''Data level:''' Patient level.
=== [[hasDatabase::Database:_ZZZS_Planned_Number_of_Teams_(Slovenia)|Database: ZZZS Planned Number of Teams]] ===


'''Available data level:''' Regional and national level.
=== [[hasDatabase::Database:_ZZZS_Planned_and_Implemented_Health_Services_(Slovenia)|Database: ZZZS Planned and Implemented Health Services]] ===


'''Number of Records:''' Unknown.
=== [[hasDatabase::Database:_ZZZS_Planned_and_Implemented_Imaging_Diagnostics_for_the_Detection_or_Treatment_of_Cancer_(Slovenia)|Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer]] ===
</div>


'''Date Range:''' Unknown.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available date range:''' 2002 onwards.
=== [[hasDatabase::Database:_Slovenian_Cancer_Registry_(Slovenia)|Database: Slovenian Cancer Registry]] ===


'''Cancer Areas of Interest:''' Neoplasms (C00-D48).
=== [[hasDatabase::Database:_The_Svit_Programme_-_Colorectal_Cancer_Screening_Programme_(Slovenia)|Database: The Svit Programme - Colorectal Cancer Screening Programme]] ===


'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://pxweb.stat.si/SiStat/sl/Podrocja/Index/100/prebivalstvo here] under "HPopulation" > "Mortality" > "Cause of Death". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
=== [[hasDatabase::Database:_DORA_Breast_Cancer_Screening_Registry_(Slovenia)|Database: DORA Breast Cancer Screening Registry]] ===


'''Information/Contact for data request:''' Contact information can be found [https://pxweb.stat.si/SiStatData/pxweb/sl/Data/-/05L3013S.px here].
=== [[hasDatabase::Database:_Cervical_Cancer_Screening_Registry_ZORA_(Slovenia)|Database: Cervical Cancer Screening Registry ZORA]] ===


=== Database: NIJZ Sick Leave ===
</div>


'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Primary purpose:''' To monitor and analyze the causes and other characteristics of temporary absenteeism.
=== [[hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Guidelines: Onko Guidelines]] ===


'''Type of information:''' Data dictionary was not found. More metadata can be found [https://podatki.nijz.si/docs/3_3f_BS_2018.pdf here].
=== [[hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Guideline: Zora Professional recommendations and guidelines]] ===
</div>


'''Available type of information:''' Indicators of the patient population; Year; Gender; Age; Disease groups; Reason for withholding patient population; Economic activities; Health regions and statistical regions.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Source of Information:''' Public and private healthcare providers at the primary level (outpatient clinics of selected - personal physicians) report to the regional units of the NIJZ.
=== [[hasReport::Reports:_Slovenian_Cancer_Registry_(Slovenia)|Reports: Slovenian Cancer Registry]] ===


'''Data level:''' Patient level.
=== [[hasReport::Reports:_ZORA_Program_(Slovenia)|Reports: ZORA Program]] ===


'''Available data level:''' National level.
=== [[hasReport::Reports:_DORA_Program_(Slovenia)|Reports: DORA Program]] ===


'''Number of Records:''' Unknown.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Slovenia)|Report: EU Country Cancer Profile 2023]] ===


'''Date Range:''' 1983 onwards.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Slovenia)|Report: EU Country Cancer Profile 2025]] ===


'''Available date range:''' 2000 onwards.
=== [[hasReport::Report:_National_Cancer_Control_Program_2022-2026_(Slovenia)|Report: National Cancer Control Program 2022-2026]] ===
</div>


'''Cancer Areas of Interest:''' Neoplasms (C00-D48)
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Health status of the population" > "Sick Leave". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
=== [[hasPatientAssociation::Patient_Association:_The_Association_of_Oncology_Patients_of_Slovenia_(Slovenia)|Patient Association: The Association of Oncology Patients of Slovenia]] ===


'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/docs/3_3f_BS_2018.pdf here].
=== [[hasPatientAssociation::Patient_Assocaition:_ONKO_NET_(Slovenia)|Patient Association: ONKO NET]] ===


=== Database: NIJZ Outpatient Health (ZUBSTAT) ===
=== [[hasPatientAssociation::Patient_Association:_Europa_Donna_-_Slovenian_association_for_the_fight_against_breast_cancer_(Slovenia)|Patient Association: Europa Donna - Slovenian association for the fight against breast cancer]] ===


'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
=== [[hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|Patient Guides: ESMO Patient Guides]] ===


'''Primary purpose:''' The purpose of the out-of-hospital health statistics database (ZUBSTAT) is to monitor, evaluate and
=== [[hasPatientResource::Self-help_Group:_Cancer_Patient_to_Patient_Community_(Slovenia)|Self-help Group: Cancer Patient to Patient Community]] ===
plan curative and preventive health care at the primary and secondary levels.


'''Type of information:''' Data dictionary was not found. More metadata can be found [https://podatki.nijz.si/docs/MP_Zubstat.pdf here].
</div>


'''Available type of information:''' Number and rate of visits at the primary level; Year; Types of visits; Number and rate of preventive visits; Age group; Gender; Number and rate of curative; Home visits and counseling; Statistical region; Number of curative visits; Number and rate of diagnosed diseases; Conditions at the primary level; ICD-10; Main diagnoses chapters; Number and rate of visits to specialist outpatient services; Type of medical activity; Number of curative visits in specialist outpatient services and conditions in specialist outpatient services.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Slovenia)|Quality of Life and Palliative Care Research]] ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
</div>


'''Source of Information:''' Reported by public and private healthcare providers.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Institute of Oncology Ljubljana</span>
'''Data level:''' Patient level.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Slovenia)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_SiStat_Death_(Slovenia)|Database: SiStat Death</span>
'''Available data level:''' National level.
<span style="display:none">hasDatabase::Database:_NIJZ_Sick_Leave_(Slovenia)|Database: NIJZ Sick Leave</span>
 
<span style="display:none">hasDatabase::Database:_NIJZ_Outpatient_Health_(ZUBSTAT)_(Slovenia)|Database: NIJZ Outpatient Health (ZUBSTAT)</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasDatabase::Database:_NIJZ_Records_on_Diseases,_Poisonings_and_Injuries_on_Hospitals_(BOLOB)_(Slovenia)|Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)</span>
 
<span style="display:none">hasDatabase::Database:_NIJZ_Healthcare_Providers_(Slovenia)|Database: NIJZ Healthcare Providers</span>
'''Date Range:''' 1996 onwards [https://podatki.nijz.si/docs/MP_Zubstat.pdf].
<span style="display:none">hasDatabase::Database:_NIJZ_Hospital_Beds_(Slovenia)|Database: NIJZ Hospital Beds</span>
 
<span style="display:none">hasDatabase::Database:_NIJZ_Medical_Devices_(Slovenia)|Database: NIJZ Medical Devices</span>
'''Cancer Areas of Interest:''' Neoplasms (C88-D48)
<span style="display:none">hasDatabase::Database:_ZZZS_Number_of_treatments_by_healthcare_provider_(Slovenia)|Database: ZZZS Number of treatments by healthcare provider</span>
 
<span style="display:none">hasDatabase::Database:_ZZZS_Planned_Number_of_Teams_(Slovenia)|Database: ZZZS Planned Number of Teams</span>
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Healthcare" > "Treatments at primary care level" and "Healthcare" > "Specialized outpatient treatments". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
<span style="display:none">hasDatabase::Database:_ZZZS_Planned_and_Implemented_Health_Services_(Slovenia)|Database: ZZZS Planned and Implemented Health Services</span>
 
<span style="display:none">hasDatabase::Database:_ZZZS_Planned_and_Implemented_Imaging_Diagnostics_for_the_Detection_or_Treatment_of_Cancer_(Slovenia)|Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer</span>
'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/docs/MP_Zubstat.pdf here].
<span style="display:none">hasDatabase::Database:_Slovenian_Cancer_Registry_(Slovenia)|Database: Slovenian Cancer Registry</span>
 
<span style="display:none">hasDatabase::Database:_The_Svit_Programme_-_Colorectal_Cancer_Screening_Programme_(Slovenia)|Database: The Svit Programme - Colorectal Cancer Screening Programme</span>
=== Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB) ===
<span style="display:none">hasDatabase::Database:_DORA_Breast_Cancer_Screening_Registry_(Slovenia)|Database: DORA Breast Cancer Screening Registry</span>
 
<span style="display:none">hasDatabase::Database:_Cervical_Cancer_Screening_Registry_ZORA_(Slovenia)|Database: Cervical Cancer Screening Registry ZORA</span>
'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
<span style="display:none">hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Onko Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Zora: Professional recommendations and guidelines</span>
'''Primary purpose:''' Monitoring and studying the incidence of diseases, injuries and poisonings that require hospital treatment.
<span style="display:none">hasReport::Reports:_Slovenian_Cancer_Registry_(Slovenia)|Reports: Slovenian Cancer Registry</span>
 
<span style="display:none">hasReport::Reports:_ZORA_Program_(Slovenia)|Reports: ZORA Program</span>
'''Type of information:''' Data dictionary was not found. More metadata can be found [https://podatki.nijz.si/docs/6_6b_SBO_2016.pdf here].
<span style="display:none">hasReport::Reports:_DORA_Program_(Slovenia)|Reports: DORA Program</span>
 
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Slovenia)|Report: EU Country Cancer Profile 2023</span>
'''Available type of information:''' Number of hospitalizations due to illness; Gender; Year; Statistical region; Age group; Main diagnoses; ICD-10; Number of first and re-admissions to hospitals; Number of hospitalizations due to injuries and poisoning; Reason for hospital treatment; External cause; Number of deaths; Number of hospitalizations due to accidental injuries and poisoning; Number of hospitalizations due to intentional injuries and poisoning; Number of hospitalizations due to transport accidents with motor vehicles; Type of injury and poisoning; Number of episodes of hospital treatment due to illness, injury and poisoning; Type of treatment; Number of daily hospital treatments due to illnesses, injuries and poisoning; Number of episodes of prolonged hospital treatment due to diseases, injuries and poisoning; Number of episodes of extended hospital treatment due to illness, injury and poisoning; Rate of hospitalizations due to illness (per 1,000 inhabitants); Average duration of hospitalizations due to illness; Average duration of hospitalizations due to illness in days; Percentage of first and re-admissions to hospitals due to illness; Admission type; Proportion of hospitalizations due to illness; Average duration of hospitalization (in days) due to the most common diseases; Rate of hospitalizations (per 1,000 inhabitants) due to injuries and poisoning; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to injuries and poisonings; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to (un)intentional injuries and poisonings; Rate of hospitalizations (first admissions per 1,000 inhabitants) due to transport accidents with motor vehicles, suicide and assault and legal intervention; Average duration of hospitalizations (in days) due to injuries and poisonings.
<span style="display:none">hasReport::Report:_National_Cancer_Control_Program_2022-2026_(Slovenia)|Report: National Cancer Control Program 2022-2026</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Association_of_Oncology_Patients_of_Slovenia_(Slovenia)|Patient Association: The Association of Oncology Patients of Slovenia</span>
'''Source of Information:''' Reporters are all institutions that perform hospital activities in the Republic of Slovenia.
<span style="display:none">hasPatientAssociation::Patient_Assocaition:_ONKO_NET_(Slovenia)|Patient Association: ONKO NET</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Europa_Donna_-_Slovenian_association_for_the_fight_against_breast_cancer_(Slovenia)|Patient Association: Europa Donna - Slovenian association for the fight against breast cancer</span>
'''Data level:''' Patient level.
<span style="display:none">hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|ESMO Patient Guides</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Slovenia)|Quality of Life and Palliative Care Research</span>
''' Available data level:''' Regional and national level.
<span style="display:none">hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Guideline: Zora Professional recommendations and guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Guidelines: Onko Guidelines</span>
'''Number of Records:''' Unknown.
<span style="display:none">hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|Patient Guides: ESMO Patient Guides</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Date Range:''' 1965 onwards.
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Cancer Areas of Interest:''' [[Cancer Areas of Interest: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)]]
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Healthcare" > "Hospital treatments". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/docs/6_6b_SBO_2016.pdf here].
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
=== Database: NIJZ Healthcare Providers ===
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
'''Primary purpose:''' To serve as a comprehensive national resource for planning, monitoring, and implementing healthcare and health insurance systems, as well as a register for various groups of medical personnel.
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
'''Type of information:''' Data dictionary was not found. More metadata can be found [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf here].
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Available type of information:''' Year; Age group; Gender; Employees; Professional groups; Statistical regions; Employees according to the list of occupations in the health sector; Type of contractor and legal status; MOH profession; Type of specialization; Specialization status; Indicators of employees in healthcare.
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Source of Information:''' Providers are registered on the NIJZ, private providers are managed by the Ministry of Health. More details can be found [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf here].
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Data level:''' Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1997 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Resources in Healthcare" > "Healthcare Providers". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
 
'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/docs/6d_Metodolo%C5%A1ka_pojasnila_struktura_BPI.pdf here].
 
=== Database: NIJZ Hospital Beds ===
 
'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
 
'''Primary purpose:''' Provide information on hospital beds for the purposes of research and policymaking.
 
'''Type of information:''' Data dictionary was not found.
 
'''Available type of data:''' Number of hospital beds, Hospital activity; Year; Region; Statistical region of hospitals.
 
'''Source of Information:''' Report on the work of the inpatient institution.
 
'''Data level:''' Patient level.
 
'''Available data level:''' National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 2003 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Resources in Healthcare" > "Hospital Beds". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
 
'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__5%20Viri%20v%20zdravstvu__3%20Bolni%C5%A1ke%20postelje/Postelje1.px/ here].
 
=== Database: NIJZ Medical Devices ===
 
'''Sponsor, manager or home institution:''' Nacionalni inštitut za javno zdravje.
 
'''Primary purpose:''' To provide information about medical devices for the purposes of research and policymaking.
 
'''Type of information:''' Data dictionary was not found. More metadata can be found [https://podatki.nijz.si/docs/6i_MET_POJASNILA_NAPRAVE.pdf here].
 
'''Available type of information:''' Year; Devices in healthcare; Number and rate; Contractor type.
 
'''Source of Information:''' Administration of the Republic of Slovenia for Radiation Protection; Ministry of Health in cooperation with the Institute for Health Insurance of Slovenia.
 
'''Data level:''' Hospital level.
 
'''Available data level:''' National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 2004 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Resources in Healthcare" > "Devices in Healthcare". Information on how to access full database can be found [https://nijz.si/izvajalci/ here].
 
'''Information/Contact for data request:''' Contact information can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__5%20Viri%20v%20zdravstvu__2%20Naprave%20v%20zdravstvu/Naprave.px/ here].
 
=== Database: ZZZS Number of treatments by healthcare provider ===
 
'''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
 
'''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on treatments provided by healthcare providers for healthcare management, policy decisions, and to facilitate better citizen access to health services.
 
'''Type of information:''' Days; Months; Year; Contractor; Health worker; Type of medical activity; Subtype of health activity; Number of treatments.
 
'''Source of Information:''' Unknown.
 
'''Data level:''' Provider and hospital level.
 
'''Number of Records:''' Number of records can be counted in each spreadsheet.
 
'''Date Range:''' October, 2022 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is publicly available and can be found [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/podatki_o_izvedenih_obravnavah_po_zdravstvenem_delavcu/seznam_datotek_4136 here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/ here].
 
=== Database: ZZZS Planned Number of Teams ===
 
'''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
 
'''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the planned number of teams by individual providers and medical activities (VZD) for healthcare management, policy decisions, and to facilitate better citizen access to health services.
 
'''Type of information:''' Year; Name of the activity; Number of teams; Type of ownership; Regional contracting unit; ZZZS no. contractor; IVZ no. contractor; Name of the contractor; Type of medical activity; Subtype of health activity; Service code; 4th level of contractual activity; Description of the 4th level of contractual activity; NO. TIMOV.
 
'''Source of Information:''' Unknown.
 
'''Data level:''' Hospital level.
 
'''Number of Records:''' Number of records can be counted in each spreadsheet.
 
'''Date Range:''' 2013-2020.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is publicly available and can be found [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/podatki_o_dostopnosti_do_zdravstvenih_storitev/planirano_stevilo_timov/!ut/p/z1/04_Sj9CPykssy0xPLMnMz0vMAfIjo8zivf19DAz9DQwNA3yczA3MLILNPZy9gwzcDc31C7IdFQF0gdKM/ here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/ here].
 
=== Database: ZZZS Planned and Implemented Health Services ===
 
'''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
 
'''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the planned and implemented health services for healthcare management, policy decisions, and to facilitate better citizen access to health services.
 
'''Type of information:''' Activity; Regional contracting unit; Type of ownership; Type of medical activity; Subtype of health activity; Service code; Name of the activity; Plan; Rea; Index; Plan O,P; Rea O,P; Index O,P; ZZZS no. contractor; IVZ no. contractor; Name of the contractor.
 
'''Source of Information:''' Unknown.
 
'''Data level:''' Hospital and regional level.
 
'''Number of Records:''' Number of records can be counted in each spreadsheet.
 
'''Date Range:''' 2018 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is publicly available and can be found [https://api.zzzs.si/zzzs/pao/izvajalci.nsf/ZbirniPlanRealizacija?openview&count=1000 here] for data before 2022 and [https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/plan_in_realizacija/podatki_o_planu_in_realizaciji_zdrav_storitve/seznam_datotek#Z7_KOL01O011PO860QNVUM8V00IU0 here] for data after 2022.
 
'''Information/Contact for data request:''' Contact information can be found [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/ here].
 
=== Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer ===
 
'''Sponsor, manager or home institution:''' Zavod za zdravstveno zavarovanje Slovenije.
 
'''Primary purpose:''' To increase transparency and efficiency in the public health system by providing data on the imaging diagnostics for the detection or treatment of cancer for healthcare management, policy decisions, and to facilitate better citizen access to health services.
 
'''Type of information:'''
 
'''Source of Information:''' Unknown.
 
'''Data level:''' Hospital level.
 
'''Number of Records:''' Number of records can be counted in each spreadsheet.
 
'''Date Range:''' 2018 and 2019.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Data is publicly available and can be found [https://api.zzzs.si/zzzs/pao/izvajalci.nsf/slike?openview&count=1000 here] for data after 2022.
 
'''Information/Contact for data request:''' Contact information can be found [https://www.zzzs.si/zzzs-api/organizacijske-enote-zzzs-in-kontakti/ here].
 
== [[Registries]] ==
 
=== Database: Slovenian Cancer Registry ===
 
'''Sponsor, manager or home institution:'''  [https://www.onko-i.si/eng/ Institute of Oncology Ljubljana]
 
'''Primary purpose:'''  to provide comprehensive historical and ongoing data on cancer incidence, prevalence, mortality, and survival in Slovenia, serving as a critical resource for evaluating the effectiveness of cancer prevention, diagnosis, treatment, and care, as well as for planning necessary resources for cancer control.
 
'''Type of information:''' Definitions of available cancer burden measures can be found [http://www.slora.si/en/definicije-kazalnikov-in-metod here].
 
'''Source of Information:''' Source for incidence and prevalence is the [https://www.onko-i.si/eng/crs Slovenian Cancer Registry (SCR)]. Source for Mortality is the [http://www.nijz.si/ Nacionalni inštitut za javno zdravje (NIJZ)].
 
'''Data level:''' Aggregated level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' N/A.
 
'''Date Range:''' 1961 onwards.
 
'''Cancer Areas of Interest:''' All malignant neoplasms and some additional benign and in situ entities. All age groups are included.
 
'''Open data access:''' Patient data are not publicly available. Publicly available data on cancer burden can be found [http://www.slora.si/en/ here]. Reports can be found [https://www.onko-i.si/eng/crs here]. Information on how to access full database can be found [https://www.onko-i.si/rrs here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.onko-i.si/eng/crs here].
 
=== Database: SVIT Colonoscopy Screening ===
 
'''Sponsor, manager or home institution:''' Svit Program; Nacionalni inštitut za javno zdravje.
 
'''Primary purpose:''' To provide information on the colonoscopy screenings performed by the SVIT Program in order to support research and policymaking.
 
'''Type of information:''' Data dictionary was not found.
 
'''Available type of information:'''
 
'''Source of Information:''' Information collected by the SVIT Program.
 
'''Data level:''' Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' Reports with the number of participants for each year can be found [https://www.program-svit.si/za-uporabnike/o-nas/#porocila-o-izvajanju-programa here].
 
'''Date Range:''' 2010 onwards [https://podatki.nijz.si/docs/Metodolo%C5%A1ka_pojasnila_SVIT.pdf].
 
'''Cancer Areas of Interest:''' Malignant neoplasm of colon (C18); Malignant neoplasm of rectosigmoid junction (C19); Malignant neoplasm of rectum (C20); Benign neoplasm of colon, rectum, anus and anal canal (D12).
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/ here] under "Preventive Programs" > "National program for screening and early detection of precancerous changes and colon and rectal cancer (SVIT)". Reports can be found [https://www.program-svit.si/za-uporabnike/o-nas/#porocila-o-izvajanju-programa here].
 
'''Information/Contact for data request:''' Contact information can be found [https://www.program-svit.si/ here] at the end of the page.
 
=== Database: DORA Breast Cancer Screening ===
 
'''Sponsor, manager or home institution:''' DORA Program;  Ljubljana Oncology Institute.
 
'''Primary purpose:''' To provide information on the breast screenings performed by the DORA Program in order to support research and policymaking.
 
'''Type of information:''' Data dictionary was not found.
 
'''Available type of information:'''
 
'''Source of Information:''' Information collected by the DORA Program.
 
'''Data level:''' Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' Reports with the number of participants for each year can be found [https://dora.onko-i.si/dokumenti here].
 
'''Date Range:''' 2008 onwards.
 
'''Cancer Areas of Interest:''' Malignant neoplasm of breast (C50).
 
'''Open data access:''' Data is not publicly available. Reports can be found [https://dora.onko-i.si/dokumenti here].
 
'''Information/Contact for data request:''' Contact information can be found [https://dora.onko-i.si/dokumenti here] at the end of the page.
 
=== Database: ZORA Cervical Cancer Screening ===
 
'''Sponsor, manager or home institution:''' ZORA Program;  Ljubljana Oncology Institute.
 
'''Primary purpose:''' To reduce morbidity and mortality from cervical cancer in Slovenia
 
'''Type of information:''' Data dictionary was not found.
 
'''Available type of information:'''
 
'''Source of Information:''' Information collected by the ZORA Program.
 
'''Data level:''' Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' Reports with the number of participants for each year can be found [https://zora.onko-i.si/publikacije/letna-porocila here].
 
'''Date Range:''' 2003 onwards.
 
'''Cancer Areas of Interest:''' Malignant neoplasm of cervix uteri (C53); Carcinoma in situ of cervix uteri (D06).
 
'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://zora.onko-i.si/publikacije/kazalniki here]. Reports can be found [https://zora.onko-i.si/publikacije/letna-porocila here]. Information on how to access full dataset can be found [https://zora.onko-i.si/program-zora/register-zora here].
 
'''Information/Contact for data request:''' Contact information can be found [https://zora.onko-i.si/pomozne-strani/kontakt here].
<!--
More data that I didn't have time to look into: https://podatki.gov.si/data/search?open_data=True&all_podrocje=Zdravje
 
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
 
=== Database: European Health Interview Survey ===
 
https://podatki.nijz.si/pxweb/sl/NIJZ%20podatkovni%20portal/NIJZ%20podatkovni%20portal__1%20Zdravstveno%20stanje%20prebivalstva__10%20Samoocena%20kroni%C4%8Dnih%20obolenj__2%20Bolezni%20in%20bolezenska%20stanja%20(EHIS_CD)/01EHIS14%20bolezni.px/
 
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
Guidelines from the Dora Program: https://dora.onko-i.si/dokumenti
Publications on cervical cancer screening: https://zora.onko-i.si/publikacije/drugo
https://zora.onko-i.si/za-stroko/strokovna-priporocila-in-smernice
 
 
== [[Latest Policymaking Initiatives]] ==
 
https://partner.zzzs.si/wps/portal/portali/aizv/zdravstvene_storitve/splosni_dogovori_in_aneksi/splosni_dogovori_in_aneksi
 
== [[Cancer-related Patient Associations and Resources]] ==
 
 
-->

Latest revision as of 13:20, 23 January 2026

forresearchers forpatients forproviders forpolicymakers sloveniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Institute of Oncology Ljubljana

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: SiStat Death[edit | edit source]

Database: NIJZ Sick Leave[edit | edit source]

Database: NIJZ Outpatient Health (ZUBSTAT)[edit | edit source]

Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB)[edit | edit source]

Database: NIJZ Healthcare Providers[edit | edit source]

Database: NIJZ Hospital Beds[edit | edit source]

Database: NIJZ Medical Devices[edit | edit source]

Database: ZZZS Number of treatments by healthcare provider[edit | edit source]

Database: ZZZS Planned Number of Teams[edit | edit source]

Database: ZZZS Planned and Implemented Health Services[edit | edit source]

Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer[edit | edit source]

Registries[edit | edit source]

Database: Slovenian Cancer Registry[edit | edit source]

Database: The Svit Programme - Colorectal Cancer Screening Programme[edit | edit source]

Database: DORA Breast Cancer Screening Registry[edit | edit source]

Database: Cervical Cancer Screening Registry ZORA[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: Onko Guidelines[edit | edit source]

Guideline: Zora Professional recommendations and guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: Slovenian Cancer Registry[edit | edit source]

Reports: ZORA Program[edit | edit source]

Reports: DORA Program[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: National Cancer Control Program 2022-2026[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: The Association of Oncology Patients of Slovenia[edit | edit source]

Patient Association: ONKO NET[edit | edit source]

Patient Association: Europa Donna - Slovenian association for the fight against breast cancer[edit | edit source]

Patient Guides: ESMO Patient Guides[edit | edit source]

Self-help Group: Cancer Patient to Patient Community[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Institute of Oncology Ljubljana hasHealthcareSystem::Healthcare_System_(Slovenia)|Healthcare System hasDatabase::Database:_SiStat_Death_(Slovenia)|Database: SiStat Death hasDatabase::Database:_NIJZ_Sick_Leave_(Slovenia)|Database: NIJZ Sick Leave hasDatabase::Database:_NIJZ_Outpatient_Health_(ZUBSTAT)_(Slovenia)|Database: NIJZ Outpatient Health (ZUBSTAT) hasDatabase::Database:_NIJZ_Records_on_Diseases,_Poisonings_and_Injuries_on_Hospitals_(BOLOB)_(Slovenia)|Database: NIJZ Records on Diseases, Poisonings and Injuries on Hospitals (BOLOB) hasDatabase::Database:_NIJZ_Healthcare_Providers_(Slovenia)|Database: NIJZ Healthcare Providers hasDatabase::Database:_NIJZ_Hospital_Beds_(Slovenia)|Database: NIJZ Hospital Beds hasDatabase::Database:_NIJZ_Medical_Devices_(Slovenia)|Database: NIJZ Medical Devices hasDatabase::Database:_ZZZS_Number_of_treatments_by_healthcare_provider_(Slovenia)|Database: ZZZS Number of treatments by healthcare provider hasDatabase::Database:_ZZZS_Planned_Number_of_Teams_(Slovenia)|Database: ZZZS Planned Number of Teams hasDatabase::Database:_ZZZS_Planned_and_Implemented_Health_Services_(Slovenia)|Database: ZZZS Planned and Implemented Health Services hasDatabase::Database:_ZZZS_Planned_and_Implemented_Imaging_Diagnostics_for_the_Detection_or_Treatment_of_Cancer_(Slovenia)|Database: ZZZS Planned and Implemented Imaging Diagnostics for the Detection or Treatment of Cancer hasDatabase::Database:_Slovenian_Cancer_Registry_(Slovenia)|Database: Slovenian Cancer Registry hasDatabase::Database:_The_Svit_Programme_-_Colorectal_Cancer_Screening_Programme_(Slovenia)|Database: The Svit Programme - Colorectal Cancer Screening Programme hasDatabase::Database:_DORA_Breast_Cancer_Screening_Registry_(Slovenia)|Database: DORA Breast Cancer Screening Registry hasDatabase::Database:_Cervical_Cancer_Screening_Registry_ZORA_(Slovenia)|Database: Cervical Cancer Screening Registry ZORA hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Onko Guidelines hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Zora: Professional recommendations and guidelines hasReport::Reports:_Slovenian_Cancer_Registry_(Slovenia)|Reports: Slovenian Cancer Registry hasReport::Reports:_ZORA_Program_(Slovenia)|Reports: ZORA Program hasReport::Reports:_DORA_Program_(Slovenia)|Reports: DORA Program hasReport::Report:_EU_Country_Cancer_Profile_2023_(Slovenia)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Cancer_Control_Program_2022-2026_(Slovenia)|Report: National Cancer Control Program 2022-2026 hasPatientAssociation::Patient_Association:_The_Association_of_Oncology_Patients_of_Slovenia_(Slovenia)|Patient Association: The Association of Oncology Patients of Slovenia hasPatientAssociation::Patient_Assocaition:_ONKO_NET_(Slovenia)|Patient Association: ONKO NET hasPatientAssociation::Patient_Association:_Europa_Donna_-_Slovenian_association_for_the_fight_against_breast_cancer_(Slovenia)|Patient Association: Europa Donna - Slovenian association for the fight against breast cancer hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Slovenia)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Zora:_Professional_recommendations_and_guidelines_(Slovenia)|Guideline: Zora Professional recommendations and guidelines hasClinicalGuidelines::Onko_Guidelines_(Slovenia)|Guidelines: Onko Guidelines hasPatientGuides::ESMO_Patient_Guides_(Slovenia)|Patient Guides: ESMO Patient Guides hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

Retrieved from "https://wiki.beaconcancer.org/index.php?title=Slovenia&oldid=36220"
Powered by MediaWiki
Powered by Semantic MediaWiki