Database: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST) (Greece)

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Type of database: registry, biobank.

Primary purpose: Provide information about cancer incidence in children (0-14 years old) across Greece.

Sponsor, manager or home institution: NARECHEM-ST.

Type of information: longitudinal. Data dictionary has not been found. It includes demographic data, personal and family history of the primary child, sex, age, year; confirmed diagnosis, tumour morphology and localization, stage, metastases, and cancer survival. Moreover, biological samples are accessible for the majority of cases and controls. If applicable, bone marrow aspiration slides and biopsy reports are provided, while biopsy specimens are stored in their respective Pathology Departments. There is also follow-up data on all patients as well as biological materials collected and stored.

Available type of information: age; sex; diagnosis; tumour histology; tumour staging; cancer incidence; year.

Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).

Source of Information: Reports mainly from seven pediatric hematology-oncology departments across Greece, and personal interviews with children or their guardians. Click here to learn more.

Data level: patient level.

Available data level: national level.

Number of records: About 4000 patients.

Date range: 1996 to 2019.

Cancer areas of interest: C15-C26: Digestive system cancers; C64-C68: Urinary system cancers; C69-C72: Eye and brain cancer; C73-C75: Thyroid and other gland cancers; C81-C96: Cancers of the blood and immune system. See the full list of cancer types:

Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST).

Data access: partially publicly available. Data can be downloaded in the JPG format. Data requires a grant proposal to be accessed. Instructions to request data for restricted content click here to access.

Contact information: Click here to access.

Esophagus Stomach Small intestine Large intestine Rectum Anus Liver Gallbladder Bile ducts Pancreas Colon Kidney Ureter Bladder Urethra Eye Brain Spinal cord Thyroid gland Parathyroid Adrenal glands Pituitary gland Pancreas Thymus gland Blood Bone marrow Lymph nodes Spleen Leukemia databaseType::registry databaseType::biobank dataOwner::NARECHEM-ST databaseStructure::longitudinal hasVariable::sex hasVariable::age hasVariable::year hasVariable::diagnosis hasVariable::tumour histology|localization hasVariable::tumour staging|stage hasVariable::cancer survival availableVariable::age availableVariable::sex availableVariable::diagnosis availableVariable::tumour histology availableVariable::tumour staging availableVariable::cancer incidence availableVariable::year hasAvailableDataDictionary::Data Dictionary: Nationwide Registry of Childhood Hematological Malignancies and Solid Tumours (NARECHEM-ST) dataLevel::patient level availableDataLevel::national level dataStart::1996 dataEnd::2019 dataAvailability::partially publicly available hasDownloadableData::JPG hasGrantRequirement::Data requires a grant proposal to be accessed hasDataAccessInstructions::[http://www.narechem.gr/node/13 click here to access isDatabase hasCancerType::C15-C26: Digestive system cancers hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasDataAccessInstructions::[http://narechem.makis.us/node/13 click here to access Esophageal Gastric Intestinal Bowel Colorectal Appendix Appendiceal Duodenum Jejunum Ileum Anal Perianal Hepatic Biliary Hepatobiliary Renal Urothelial Ureteral Urethral Ocular Orbital Retinal Optic nerve Meninges Meningeal Cerebral Cerebellar Brainstem Lymphatic Lymphoid Lymphoma Hematologic Hematopoietic Myeloma Plasma cell Endocrine