Database: North-West Regional Cancer Registry (Romania): Difference between revisions
(Created page with "{{#subobject:North-West Regional Cancer Registry |dct:title=North-West Regional Cancer Registry |datatype=registry }} [http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html] '''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN). '''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance. '''Type of informati...") |
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[http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html] | [http://nwcanportal.iocn.ro/html/registrul_de_cancer_-_prezenta.html] | ||
'''Sponsor, manager or home institution:''' Oncological Institute of Cluj (IOCN). | '''Sponsor, manager or home institution:''' [[dataOwner::Oncological Institute of Cluj (IOCN)]]. | ||
'''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance. | '''Primary purpose:''' Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance. | ||
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'''Type of information:''' The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death. | '''Type of information:''' The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death. | ||
'''Available type of information:''' | '''Available type of information:''' [[availableVariable::cancer incidence]]; [[availableVariable::region]]; [[availableVariable::diagnosis]]; [[availableVariable::year]]; [[availableVariable::sex]]; Annual incidence by 100.000 inhabitants; | ||
Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; | Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; [[availableVariable::age]] group; [[availableVariable::number of deaths]] by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population). | ||
'''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries. | '''Source of Information:''' Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries. | ||
'''Data level:''' | '''Data level:''' [[dataLevel::patient level]]. | ||
'''Available data level:''' | '''Available data level:''' [[availableDataLevel::regional level]]. | ||
'''Number of Records:''' | '''Number of Records:''' [[numberRecords::unknown]]. | ||
'''Date Range:''' Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards. | '''Date Range:''' Regarding the county of Cluj, information is available from [[dataStart::2000]] [[dataEnd::onwards]]. There is data about other counties from 2008 onwards. | ||
'''Cancer Areas of Interest:''' Cancer areas of interest [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc]. Some specific cancer locations are excluded [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc]. | '''Cancer Areas of Interest:''' Cancer areas of interest [http://nwcanportal.iocn.ro/Lista_localizarilor_maligne_inregistrate.doc]. Some specific cancer locations are excluded [http://nwcanportal.iocn.ro/Codurile_de_boala_si_morfologiile_specifice.doc]. | ||
'''Data access:''' | '''Data access:''' [[dataAvailability::partially publicly available]] [https://www.old.iocn.ro/Centrul-de-prevenire-si-control-al-cancerului/Registrul-regional-de-cancer/Rapoartele-Registrului-Regional-de-Cancer.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[http://nwcanportal.iocn.ro/OncReg/]]]. | ||
'''Contact information:''' Information [https://www.old.iocn.ro/en]. | '''Contact information:''' Information [https://www.old.iocn.ro/en]. | ||
Revision as of 16:31, 16 November 2023
Sponsor, manager or home institution: Oncological Institute of Cluj (IOCN).
Primary purpose: Register the cases of cancer in the counties of Cluj, Bihor, Maramureş, Bistrita Năsăud, Sălaj, and Satu Mare to maintain epidemiological surveillance.
Type of information: The variables available to be registered by the sources in the database are: CNP; Name; First name; Date of birth; Age; Sex; County; City; Address; Date of cancer diagnosis; Explication (reason for registering the diagnosis: hospitalization, death, biopsy, etc.); Date of clinical onset; Date of relapse; Reason for reporting; Registration base (data source); Tumor location; Topographical code; Laterality. Histopathological / cytological examination: Date of examination and result; Tumor location; Topographical code; Laterality, Behavior, Morphological code, Differentiation degree, Stage type, TNM classification. Also informs if the cancer was detected by screening and if it is an interval cancer. Treatment: Type of treatment, Date of initiation. Informs if there was a refusal to the treatment. Tracking: Date of last contact, Name of the last doctor consulted, Date of death, Main cause and secondary cause of death.
Available type of information: cancer incidence; region; diagnosis; year; sex; Annual incidence by 100.000 inhabitants; Sexual rate (M/F) of new cases of cancer; Percentage distribution of new cases of cancer; age group; number of deaths by cancer; Crude rate of mortality by 100.000 inhabitants; Standardized mortality rate by 100.000 inhabitants (related to the world population).
Source of Information: Pathology, hematology and immunology laboratories, outpatients offices, and oncology departments from private and public national cancer centers; Also receives information from death certificates, screening units and other registries.
Data level: patient level.
Available data level: regional level.
Number of Records: unknown.
Date Range: Regarding the county of Cluj, information is available from 2000 onwards. There is data about other counties from 2008 onwards.
Cancer Areas of Interest: Cancer areas of interest [2]. Some specific cancer locations are excluded [3].
Data access: partially publicly available [4]. Instructions to request data for restricted content [5].
Contact information: Information [6].
