Database: German Childhood Cancer Registry (DKKR) (Germany): Difference between revisions
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'''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors. | '''Cancer Areas of Interest:''' Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors. | ||
'''Open data access:''' [[dataAvailability::partially publicly available]] | '''Open data access:''' [[dataAvailability::partially publicly available]] [https://www.kinderkrebsregister.de/dkkr/ergebnisse/jahresberichte.html]. Instructions to request data for restricted content [[hasDataAccessInstructions::[https://wims.imbei.uni-mainz.de/kontakt.jsf]]]. | ||
'''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html]. | '''Contact information:''' Information [https://www.kinderkrebsregister.de/dkkr/ueber-uns/personal.html]. | ||
Revision as of 22:01, 12 December 2023
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Sponsor, manager or home institution: Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätsmedizin Mainz.
Primary purpose: Collect epidemiological cancer data for children under 18 diagnosed with cancer.
Type of information: Incidence of children with cancer by age and cancer type.
Source of Information: Information about GPOH study patients is sent to the DKKR [1].
Data level: national level.
Number of Records: Covers more than 95% of the population.
Date Range: 1980 onwards.
Cancer Areas of Interest: Leukemias (lymphocytic and acute myeloid leukemias); Lymphomas (Hodgkin's and Non-Hodgkin's lymphomas); Brain (ependymomas, astrocytomas, intracranial and intraspinal embryonic); Peripheral nerve cell (neuroblastoma and ganglioneuroblastoma); Kidney (nephroblastoma); Retinoblastoma; Bone (osteosarcoma, Ewing's sarcoma); Soft tissue sarcomas (rhabdomyosarcoma); Liver; Germ cell tumors.
Open data access: partially publicly available [2]. Instructions to request data for restricted content [3].
Contact information: Information [4].
